‘It’s a challenge, but I’m up for it’: exploring the life experiences and self-concept of autistic adolescents

Abstract

The first chapter of this thesis is a systematic review of the available qualitative literature exploring the life experiences of autistic adolescents. A thematic synthesis of the findings of 11 qualitative studies was completed. Three themes pertinent to the lived experiences of autistic adolescents were identified: ‘social experiences’, ‘personal experiences’ and ‘working out what helps me’. Supported by the literature, these findings offer insight into the shared experiences of autistic individuals during adolescence; highlighting factors that may impact autistic adolescents’ wellbeing, and identifying possible support options. Further research is required in this field to enhance the understanding of life experiences of autistic adolescents from first-hand perspectives. This chapter concludes with clinical and educational recommendations.

The second chapter of this thesis is a qualitative empirical study exploring the self-concept of adolescent females diagnosed as on the autism spectrum in adolescence. Individual semi-structured interviews were completed with six participants, aged 14-18 years old. Interview transcripts were analysed using Interpretative Phenomenological Analysis, identifying four themes: ‘belonging’, ‘struggling sense of self’, ‘outsider support’ and ‘moving towards the authentic self’. Participants in this study appeared to journey through experiences of belonging, struggling sense of self and outsider support before moving towards a sense of authenticity. This was discussed in relation to the literature. In addition to this, factors enhancing participants’ sense of self were discussed. This chapter concludes with consideration of directions for further research and clinical recommendations which may enhance the support provided to this population.

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