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AI3SD Video: Ethical data management – balancing individual privacy and public benefit

AI3SD Video: Ethical data management – balancing individual privacy and public benefit
AI3SD Video: Ethical data management – balancing individual privacy and public benefit
This talk will cover aspects of ethical data management, focussing on the key issues of participant consent, data minimisation, and data anonymisation, using examples from health sciences and engineering. Content within the talk aims to cover: big picture issues (societal benefits to data sharing versus individual right to privacy), relevant legislation (GDPR, DPA 2018 and FoIA 2000), what happens when things go wrong, managing risk via informed consent, data minimisation and anonymisation (formal, statistical and functional) and best practice guidelines and tools.
AI3SD Event, Data Access, Data Decision Making, Data Governance, Data Legislation, Data Sharing, Datasets, Research Data Management, Responsible Research
Beckles, Zosia
ae85c5d3-494e-4814-a6c2-dc1959511f7a
Kanza, Samantha
b73bcf34-3ff8-4691-bd09-aa657dcff420
Frey, Jeremy G.
ba60c559-c4af-44f1-87e6-ce69819bf23f
Hooper, Victoria
af1a99f1-7848-4d5c-a4b5-615888838d84
Knight, Nicola
fbc21e18-095e-4c1a-a4bf-6277debf5c4b
Beckles, Zosia
ae85c5d3-494e-4814-a6c2-dc1959511f7a
Kanza, Samantha
b73bcf34-3ff8-4691-bd09-aa657dcff420
Frey, Jeremy G.
ba60c559-c4af-44f1-87e6-ce69819bf23f
Hooper, Victoria
af1a99f1-7848-4d5c-a4b5-615888838d84
Knight, Nicola
fbc21e18-095e-4c1a-a4bf-6277debf5c4b

Beckles, Zosia (2020) AI3SD Video: Ethical data management – balancing individual privacy and public benefit. Kanza, Samantha, Frey, Jeremy G., Hooper, Victoria and Knight, Nicola (eds.) AI3SD, PSDS & Patterns Failed it to Nailed it: Getting Data Sharing Right Seminar Series 2020, Online, Southampton, United Kingdom. 22 Oct - 03 Dec 2020. (doi:10.5258/SOTON/P0059).

Record type: Conference or Workshop Item (Other)

Abstract

This talk will cover aspects of ethical data management, focussing on the key issues of participant consent, data minimisation, and data anonymisation, using examples from health sciences and engineering. Content within the talk aims to cover: big picture issues (societal benefits to data sharing versus individual right to privacy), relevant legislation (GDPR, DPA 2018 and FoIA 2000), what happens when things go wrong, managing risk via informed consent, data minimisation and anonymisation (formal, statistical and functional) and best practice guidelines and tools.

Video
FI2NI-Event3-Talk1-ZosiaBeckles-191120 - Version of Record
Available under License Creative Commons Attribution.
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More information

Published date: 19 November 2020
Additional Information: Zosia Beckles is an experienced information professional with a background in health informatics and research data management in the higher education and research sectors. She currently works with Library Research Support at the University of Bristol, providing training and support to academics in research metrics/bibliometrics and sensitive research data management, including the development of a new dataset disclosure risk assessment service to enable safe publication of sensitive data.
Venue - Dates: AI3SD, PSDS & Patterns Failed it to Nailed it: Getting Data Sharing Right Seminar Series 2020, Online, Southampton, United Kingdom, 2020-10-22 - 2020-12-03
Keywords: AI3SD Event, Data Access, Data Decision Making, Data Governance, Data Legislation, Data Sharing, Datasets, Research Data Management, Responsible Research

Identifiers

Local EPrints ID: 447090
URI: http://eprints.soton.ac.uk/id/eprint/447090
PURE UUID: 8d2f3b45-2e56-472e-8d48-b60a6c75ba50
ORCID for Samantha Kanza: ORCID iD orcid.org/0000-0002-4831-9489
ORCID for Jeremy G. Frey: ORCID iD orcid.org/0000-0003-0842-4302
ORCID for Nicola Knight: ORCID iD orcid.org/0000-0001-8286-3835

Catalogue record

Date deposited: 03 Mar 2021 17:30
Last modified: 25 Aug 2021 01:57

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Contributors

Author: Zosia Beckles
Editor: Samantha Kanza ORCID iD
Editor: Jeremy G. Frey ORCID iD
Editor: Victoria Hooper
Editor: Nicola Knight ORCID iD

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