International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease
Objectives: to validate the Living with Chronic Illness (LW-CI) Scale in patients with chronic obstructive pulmonary disease (COPD).
Design: observational, cross-sectional validation study with retest. Acceptability, reliability, precision and construct validity were tested.
Setting: the study took place in primary and secondary specialised units of public and private hospitals of Spain and Colombia.
Participants: the study included 612 patients with COPD assessed from May 2018 to May 2019. A consecutive cases sampling was done. Inclusion criteria included: (A) patients with a diagnosis of COPD; (B) native Spanish speaking; (C) able to read and understand questionnaires; and (D) able to provide informed consent. Exclusion criteria included: (A) cognitive deterioration and (B) pharmacological effect or disorder that could disrupt the assessment.
Results: the LW-CI-COPD presented satisfactory data quality, with no missing data or floor/ceiling effects, showing high internal consistency for all the domains (Cronbach’s alpha for the total score 0.92). Test–retest reliability was satisfactory (intraclass correlation coefficient=0.92). The LW-CI-COPD correlated 0.52–0.64 with quality of life and social support measures. The scale demonstrated satisfactory known-groups validity, yielding significantly different scores in patients grouped according to COPD severity levels.
Conclusions: this has been the first validation study of the LW-CI-COPD. It is a feasible, reliable, valid and precise self-reported scale to measure living with COPD in the Spanish-speaking population. Therefore, it could be recommended for research and clinical practice to measure this concept and evaluate the impact of centred-care interdisciplinary interventions based on the patients’ perspective, focused on providing holistic and comprehensive care to patients with COPD.
adult pathology, chronic airways disease, quality in health care
e039973
Corchon, Silvia
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Rodriguez-blazquez, Carmen
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Carvajal-carrascal, Gloria
45337594-5dc3-4379-8e5d-0e51a5ca2c2a
Fuentes-ramirez, Alejandra
80e5fb82-f07e-4d3d-8e6d-0f6150a649fc
Ruiz De Ocenda, Manuel Ignacio
f791231b-65d9-476d-9ff4-897ff81df7ad
Caparros, Neus
abf218db-ad1a-4613-9069-e0f4b9cb89a7
Timonet-andreu, Eva
2a22cb3f-f193-4396-b4de-79f607027b9d
Navarta-sanchez, Maria Victoria
27110875-8e86-4f88-ad68-c2996b08fbba
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
12 March 2021
Corchon, Silvia
7459e7d3-f033-4aeb-a16b-6d45a5cfad7c
Rodriguez-blazquez, Carmen
ab193914-8cd7-4c00-893f-14e14a32152c
Carvajal-carrascal, Gloria
45337594-5dc3-4379-8e5d-0e51a5ca2c2a
Fuentes-ramirez, Alejandra
80e5fb82-f07e-4d3d-8e6d-0f6150a649fc
Ruiz De Ocenda, Manuel Ignacio
f791231b-65d9-476d-9ff4-897ff81df7ad
Caparros, Neus
abf218db-ad1a-4613-9069-e0f4b9cb89a7
Timonet-andreu, Eva
2a22cb3f-f193-4396-b4de-79f607027b9d
Navarta-sanchez, Maria Victoria
27110875-8e86-4f88-ad68-c2996b08fbba
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
Corchon, Silvia, Rodriguez-blazquez, Carmen, Carvajal-carrascal, Gloria, Fuentes-ramirez, Alejandra, Ruiz De Ocenda, Manuel Ignacio, Caparros, Neus, Timonet-andreu, Eva, Navarta-sanchez, Maria Victoria and Ambrosio, Leire
(2021)
International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with chronic obstructive pulmonary disease.
BMJ Open, 11 (3), , [e039973].
(doi:10.1136/bmjopen-2020-039973).
Abstract
Objectives: to validate the Living with Chronic Illness (LW-CI) Scale in patients with chronic obstructive pulmonary disease (COPD).
Design: observational, cross-sectional validation study with retest. Acceptability, reliability, precision and construct validity were tested.
Setting: the study took place in primary and secondary specialised units of public and private hospitals of Spain and Colombia.
Participants: the study included 612 patients with COPD assessed from May 2018 to May 2019. A consecutive cases sampling was done. Inclusion criteria included: (A) patients with a diagnosis of COPD; (B) native Spanish speaking; (C) able to read and understand questionnaires; and (D) able to provide informed consent. Exclusion criteria included: (A) cognitive deterioration and (B) pharmacological effect or disorder that could disrupt the assessment.
Results: the LW-CI-COPD presented satisfactory data quality, with no missing data or floor/ceiling effects, showing high internal consistency for all the domains (Cronbach’s alpha for the total score 0.92). Test–retest reliability was satisfactory (intraclass correlation coefficient=0.92). The LW-CI-COPD correlated 0.52–0.64 with quality of life and social support measures. The scale demonstrated satisfactory known-groups validity, yielding significantly different scores in patients grouped according to COPD severity levels.
Conclusions: this has been the first validation study of the LW-CI-COPD. It is a feasible, reliable, valid and precise self-reported scale to measure living with COPD in the Spanish-speaking population. Therefore, it could be recommended for research and clinical practice to measure this concept and evaluate the impact of centred-care interdisciplinary interventions based on the patients’ perspective, focused on providing holistic and comprehensive care to patients with COPD.
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International psychometric validation of the Living with Chronic Illness Scale in Spanish-speaking patients with Chronic Obstructive Pulmonary Disease
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International psychometric validation
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Accepted/In Press date: 7 October 2020
Published date: 12 March 2021
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Funding Information:
1Faculty of Nursing and Chiropody, University of Valencia, Valencia, Spain 2National Centre of Epidemiology and Consortium for Biomedical Research in Neurodegenerative Diseases (Centro de Investigación Biomédica en Red sobre Enfermedades Neurodegenerativas/CIBERNED), Carlos III Institute of Health, Madrid, Spain 3Facultad de Enfermería y Rehabilitación, Universidad de La Sabana, Chia, Colombia 4La Rioja Health Care System, La Rioja, Spain 5Faculty of Legal and Social Science, University of La Rioja, La Rioja, Spain 6Department of Cardiology, Hospital Costa del Sol, Marbella, Spain 7Faculty of Medicine, Autonomous University of Madrid, Madrid, Spain 8School of Health Sciences, NIHR ARC Wessex, University of Southampton, Southampton, UK Acknowledgements The authors thank the participants living with COPD for taking part in this study, and all of the organisations who helped us to recruit participants. The authors also appreciate the support in the data recruitment process received from the following multidisciplinary researchers: Lorena Lopez (Madrid Healthcare system), Alfonso Meneses (Complutense University of Madrid), Nerea Elizondo (Navarra Healthcare System), Marta Aranda-Gallardo (Costa del Sol Hospital), Maria Eugenia Ursua (Navarra Healthcare System), Jorge Caro (Andalusian Public Health System) and David Perez-Manchon (Camilo Jose Cela University). Besides, the authors would like to thank the Ministry of Science, Innovation and University of the Spanish Government for the economical support provided to carry out this study.
Funding Information:
Funding This work was supported in Spain by the Ministry of Science, Innovation and University (FEDER/Ministerio de Ciencia, Innovación y Universidades - Agencia Estatal de Investigación) grant number CS02017-82691-R. In Colombia, the study was supported by the Universidad de La Sabana (ENF-28-2019).
Publisher Copyright:
© Author(s) (or their employer(s)) 2021.
Keywords:
adult pathology, chronic airways disease, quality in health care
Identifiers
Local EPrints ID: 447874
URI: http://eprints.soton.ac.uk/id/eprint/447874
ISSN: 2044-6055
PURE UUID: 70450edd-9669-4595-93ec-50826b55e74b
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Date deposited: 25 Mar 2021 18:18
Last modified: 16 Mar 2024 11:36
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Contributors
Author:
Silvia Corchon
Author:
Carmen Rodriguez-blazquez
Author:
Gloria Carvajal-carrascal
Author:
Alejandra Fuentes-ramirez
Author:
Manuel Ignacio Ruiz De Ocenda
Author:
Neus Caparros
Author:
Eva Timonet-andreu
Author:
Maria Victoria Navarta-sanchez
Author:
Leire Ambrosio
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