How has the COVID-19 pandemic affected eczema self-management and help seeking? A qualitative interview study with young people and parents/carers of children with eczema
How has the COVID-19 pandemic affected eczema self-management and help seeking? A qualitative interview study with young people and parents/carers of children with eczema
Background: eczema can have a considerable impact on quality of life. Treatments can improve this, but management is complex. Barriers to eczema self-management may be impacted upon by environmental context, such as the COVID-19 pandemic.
Objectives: to explore experiences of eczema, self-management, and accessing healthcare and advice during the COVID-19 pandemic among young people with eczema and parents/carers of children with eczema.
Methods: qualitative semi-structured interviews were carried out with 36 participants recruited from general practices as part of randomised controlled trials of online eczema resources.
Results: changes to everyday life—Periods of staying at home due to the pandemic alter the burden of eczema, with reports of an improved routine and application of topical treatments for many, but difficulties with handwashing for others. Parents/carers reported improved eczema control due to closures of educational settings. Young people reported higher stress that may have triggered eczema flare-ups. Changes to access to advice and treatment—There was a reluctance to seek medical appointments in a non-emergency situation. Participants reported a lack of trust in the outcome of telephone consultations because health professionals were unable to see or feel the skin. Delays or difficulties when obtaining appointments and treatments caused frustration. Access to an online eczema resource was reported to have extra value in the context of the pandemic.
Conclusion: changes to lifestyle and access to healthcare during the pandemic have affected eczema and self-management. Healthcare settings may want to consider providing extra reassurance around remote consultations.
e59
Steele, Mary
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Howells, Laura
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Santer, Miriam
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Sivyer, Katy
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Lawton, Sandra
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Roberts, Amanda
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Teasdale, Emma
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Muller, Ingrid
2569bf42-51bd-40da-bbfd-dd4dbbd62cad
Greenwell, Kate
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23 June 2021
Steele, Mary
dd7833c4-c04c-495c-aa9a-b23e01a89762
Howells, Laura
4cbdc7f3-fc8e-4e74-b239-8fc6a78423d3
Santer, Miriam
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Sivyer, Katy
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Lawton, Sandra
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Roberts, Amanda
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Teasdale, Emma
f156de5f-e83e-40c0-aafa-0c95dd17aa80
Muller, Ingrid
2569bf42-51bd-40da-bbfd-dd4dbbd62cad
Greenwell, Kate
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Steele, Mary, Howells, Laura, Santer, Miriam, Sivyer, Katy, Lawton, Sandra, Roberts, Amanda, Teasdale, Emma, Muller, Ingrid and Greenwell, Kate
(2021)
How has the COVID-19 pandemic affected eczema self-management and help seeking? A qualitative interview study with young people and parents/carers of children with eczema.
Skin Health and Disease Open Access, .
(doi:10.1002/ski2.59).
Abstract
Background: eczema can have a considerable impact on quality of life. Treatments can improve this, but management is complex. Barriers to eczema self-management may be impacted upon by environmental context, such as the COVID-19 pandemic.
Objectives: to explore experiences of eczema, self-management, and accessing healthcare and advice during the COVID-19 pandemic among young people with eczema and parents/carers of children with eczema.
Methods: qualitative semi-structured interviews were carried out with 36 participants recruited from general practices as part of randomised controlled trials of online eczema resources.
Results: changes to everyday life—Periods of staying at home due to the pandemic alter the burden of eczema, with reports of an improved routine and application of topical treatments for many, but difficulties with handwashing for others. Parents/carers reported improved eczema control due to closures of educational settings. Young people reported higher stress that may have triggered eczema flare-ups. Changes to access to advice and treatment—There was a reluctance to seek medical appointments in a non-emergency situation. Participants reported a lack of trust in the outcome of telephone consultations because health professionals were unable to see or feel the skin. Delays or difficulties when obtaining appointments and treatments caused frustration. Access to an online eczema resource was reported to have extra value in the context of the pandemic.
Conclusion: changes to lifestyle and access to healthcare during the pandemic have affected eczema and self-management. Healthcare settings may want to consider providing extra reassurance around remote consultations.
Text
ski2.59
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Submitted date: 21 May 2021
Accepted/In Press date: 15 June 2021
e-pub ahead of print date: 23 June 2021
Published date: 23 June 2021
Additional Information:
© 2021 The Authors. Skin Health and Disease published by John Wiley & Sons Ltd on behalf of British Association of Dermatologists.
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Local EPrints ID: 450036
URI: http://eprints.soton.ac.uk/id/eprint/450036
ISSN: 2690-442X
PURE UUID: 6b9cea9f-8075-48c1-a533-fa9081fc9c16
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Date deposited: 06 Jul 2021 16:31
Last modified: 17 Mar 2024 03:45
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Author:
Mary Steele
Author:
Laura Howells
Author:
Sandra Lawton
Author:
Amanda Roberts
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