0 = False
1 = True

Teen or parent (survey pathway)
1 = I am aged 16 to 18 years.
2 = I am a parent/ guardian of a young person aged 12 to 18 years.

Are you currently attending an NHS-based pain management service or programme?
1 = Yes
2 = No

Please rate your pain by selecting the box beside the number that best describes your pain at its worst in the last 24 hours. - Pain rating
1 = 0. No Pain
2 = 1.
3 = 2.
4 = 3.
5 = 4.
6 = 5. Moderate Pain
7 = 6.
8 = 7.
9 = 8.
10 = 9.
11 = 10. Pain as bad as you can imagine

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice YouTube videos
0 = no YouTube
1 = YouTube videos

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Facebook
0 = no Facebook
1 = Facebook

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Instagram
0 = No Instagram
1 = Instagram

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice/ guidance on pain medications
0 = not preferred
1 = Advice/ guidance on pain medications

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Methods to improve sleep
0 = not preferred
1 = Methods to improve sleep

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Support for returning to school
0 = not preferred
1 = Support for returning to school

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice on explaining chronic pain to others (e.g. friends and family)
0 = not preferred
1 = Advice on explaining chronic pain to others (e.g. friends and family)

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) An explanation of what chronic pain is ('pain education')
0 = not preferred
1 = An explanation of what chronic pain is ('pain education')

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Physiotherapy examples
0 = not preferred
1 = Physiotherapy examples

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice on how to pace yourself in daily activities
0 = not preferred
1 = Advice on how to pace yourself in daily activities

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice on how to pace yourself for exercise/ sport
0 = not preferred
1 = Advice on how to pace yourself for exercise/ sport

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Relaxation and breathing techniques
0 = not preferred
1 = Relaxation and breathing techniques

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice on transitioning from 'paediatric' (child) to adult healthcare
0 = not preferred
1 = Advice on transitioning from 'paediatric' (child) to adult healthcare

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Examples of other physical pain management methods (e.g. using TENS, thermal analgesia, desensitisation)
0 = not preferred
1 = Examples of other physical pain management methods (e.g. using TENS, thermal analgesia, desensitisation)

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Challenging and restructuring negative thoughts
0 = not preferred
1 = Challenging and restructuring negative thoughts

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Massage techniques
0 = not preferred
1 = Massage techniques

Birth sex - Male or Female
1 = Male
2 = Female

Male, Female or Does not identify
1 = Male
2 = Female
3 = Do not identify as female, male, or transgender

Chronic primary pain (including nonspecific back pain, any other area-specific chronic pain (e.g. back pain), chronic widespread pain and fibromyalgia)
1 = Chronic primary pain (including nonspecific back pain, any other area-specific chronic pain (e.g. back pain), chronic widespread pain and fibromyalgia)

Chronic cancer pain
1 = Chronic cancer pain

Chronic post-surgical or post-traumatic pain
1 = Chronic post-surgical or post-traumatic pain

Chronic neuropathic pain
1 = Chronic neuropathic pain

Chronic headache or orofacial pain (including primary and secondary headaches)
1 = Chronic headache or orofacial pain (including primary and secondary headaches)

Chronic visceral pain (i.e. pain originating from internal organs)
1 = Chronic visceral pain (i.e. pain originating from internal organs)

Chronic musculoskeletal pain (i.e. pain arising as part of a disease process that affects the bones, joints, muscles, or related soft tissues; examples: arthritis, Ehlers-Danlos syndrome)
1 = Chronic musculoskeletal pain (i.e. pain arising as part of a disease process that affects the bones, joints, muscles, or related soft tissues; examples: arthritis, Ehlers-Danlos syndrome)

Who diagnosed your chronic pain? - Selected Choice
1 = GP
2 = Consultant (a medical doctor, e.g. paediatrician, rheumatologist)
3 = Nurse (clinical nurse specialist or advanced nurse practitioner)
4 = Someone else (please specify)

How long have you been experiencing chronic pain for?
1 = 4-weeks or less
2 = Less than 3-months
3 = 3-months or longer
4 = 6-months or longer
5 = 1-year or longer
6 = 3-years or longer
7 = 5-years or longer

1 = 0. Never
2 = 1. Almost Never
3 = 2. Sometimes
4 = 3. Often
5 = 4. Almost Always

Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) GP
1 = GP

Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Consultant (a medical doctor, e.g. paediatrician, rheumatologist)
1 = Consultant (a medical doctor, e.g. paediatrician, rheumatologist)

Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Nurse (clinical nurse specialist or advanced nurse practitioner)
1 = Nurse (clinical nurse specialist or advanced nurse practitioner)

Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Occupational Therapist
1 = Occupational Therapist

Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Physiotherapist
1 = Physiotherapist

Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Psychologist
1 = Psychologist

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice MeToo
1 = MeToo

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice PainBytes
1 = PainBytes

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Online forum
1 = Online forum

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice No - I do not use websites/ apps for pain management
1 = No - I do not use websites/ apps for pain management

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice I use a different app/ website
1 = I use a different app/ website

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Reddit
1 = Reddit

Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Twitter
1 = Twitter

Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Headspace
1 = Headspace

Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Calm
1 = Calm

Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice YouTube videos
1 = YouTube videos

Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Facebook
1 = Facebook

Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Instagram
1 = Instagram

Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice No - I do not use websites/ apps for mental health
1 = No - I do not use websites/ apps for mental health

Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Young Minds
1 = Young Minds

Please use the boxes below to indicate your top 3 most helpful pain management techniques. Please type numbers 1, 2 and 3 into the boxes provided (1 = most helpful). - Medication/ pain-killers
1 = 1
2 = 2
3 = 3
4 = 4
5 = 5
6 = 6
7 = 7
8 = 8
9 = 9
10 = 10
11 = 11
12 = 12
13 = 13
14 = 14
15 = 15
16 = 16
17 = 17
18 = 18
19 = 19

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Mindfulness and/ or meditation techniques
1 = Mindfulness and/ or meditation techniques

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Hypnosis
1 = Hypnosis

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Biofeedback (increasing awareness and modifying physiological processes e.g. heart rate)
1 = Biofeedback (increasing awareness and modifying physiological processes e.g. heart rate)

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Exposure therapy techniques (i.e. gradually exposing yourself to situations that you would usually avoid)
1 = Exposure therapy techniques (i.e. gradually exposing yourself to situations that you would usually avoid)

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Art therapy
1 = Art therapy

What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Guided imagery and/or visualization
1 = Guided imagery and/or visualization

What sort of structure would you like a resource with multiple pain management techniques to have? - Selected Choice
1 = I would like a flexible structure where I could choose which sections I want to use.
2 = I would like something that has a set structure and is completed over a number of days/ weeks.
3 = I do not mind how the resource is structured.
4 = I would like something else (please describe).

Would you like to have professional support over the telephone whilst accessing the intervention?
1 = Definitely yes
2 = Probably yes
3 = Might or might not
4 = Probably not
5 = Definitely not

1 = Yes
2 = Maybe
3 = No

In your opinion, how important is the design of an online resource for chronic pain?
1 = Extremely important
2 = Very important
3 = Moderately important
4 = Slightly important
5 = Not at all important

If videos, e.g. videos of physiotherapy, were included in an online pain management resource, would you prefer the person in the video to be a professional or a patient?
1 = A healthcare professional
2 = A (teenage) patient
3 = No preference

Would you prefer the person in the video(s) to be male or female?
1 = Male
2 = Female
3 = No preference

Would you prefer the person in the video(s) to be of a particular ethnicity?
1 = No preference
2 = White
3 = Mixed/ Multiple ethnic groups
4 = Asian/ Asian British
5 = Black / African / Caribbean / Black British

Is there anything that could motivate or prevent you from using an online pain programme on a regular basis? - Selected Choice
1 = Not that I know of
2 = Yes (please state)

Please select your age group.
1 = 18-35 years
2 = 36-55 years
3 = 55+ years

How do you describe yourself?
1 = Male
2 = Female
3 = Transgender
4 = Do not identify as female, male, or transgender

Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice YouTube videos
0 = not YouTube
1 = YouTube videos

Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice Facebook
0 = No Facebook
1 = Facebook

Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice No - They do not use websites/ apps for pain management
1 = No - They do not use websites/ apps for pain management

Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice They use a different app/ website
1 = They use a different app/ website

Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice No - They do not use websites/ apps for mental health
1 = No - They do not use websites/ apps for mental health

As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice No - I do not use online resources to understand/ manage my teenagers chronic pain
1 = No - I do not use online resources to understand/ manage my teenagers chronic pain

As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice I use a different online resource
1 = I use a different online resource