Participant ID number
Geographical location
Geographical location - PARENTS
Survey block progess
Duration in seconds
Finished
Teen or parent (survey pathway)
Are you currently attending an NHS-based pain management service or programme?
Please rate your pain by selecting the box beside the number that best describes your pain at its worst in the last 24 hours. - Pain rating
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice YouTube videos
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Facebook
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Instagram
Please rate your pain by selecting the box beside the number that best describes your pain at its least in the last 24 hours. - Pain Rating
Please rate your pain by selecting the box beside the number that best describes your pain on average. - Pain Rating
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice/ guidance on pain medications
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Methods to improve sleep
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Support for returning to school
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice on explaining chronic pain to others (e.g. friends and family)
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) An explanation of what chronic pain is ('pain education')
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Physiotherapy examples
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice on how to pace yourself in daily activities
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice on how to pace yourself for exercise/ sport
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Relaxation and breathing techniques
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Advice on transitioning from 'paediatric' (child) to adult healthcare
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Examples of other physical pain management methods (e.g. using TENS, thermal analgesia, desensitisation)
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Challenging and restructuring negative thoughts
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Massage techniques
Age category: 16, 17 or 18
Birth sex - Male or Female
Male, Female or Does not identify
Chronic primary pain (including nonspecific back pain, any other area-specific chronic pain (e.g. back pain), chronic widespread pain and fibromyalgia)
Chronic cancer pain
Chronic post-surgical or post-traumatic pain
Chronic neuropathic pain
Chronic headache or orofacial pain (including primary and secondary headaches)
Chronic visceral pain (i.e. pain originating from internal organs)
Chronic musculoskeletal pain (i.e. pain arising as part of a disease process that affects the bones, joints, muscles, or related soft tissues; examples: arthritis, Ehlers-Danlos syndrome)
Who diagnosed your chronic pain? - Selected Choice
Who diagnosed your chronic pain? - Someone else (please specify) - Text
How long have you been experiencing chronic pain for?
About my feelings (problems with...) - 1. I feel afraid or scared
About my feelings (problems with...) - 2. I feel sad
About my feelings (problems with...) - 3. I feel angry
About my feelings (problems with...) - 4. I have trouble sleeping
About my feelings (problems with...) - 5. I worry about what will happen to me
How I get along with others (problems with...) - 1. I have trouble getting along with other teenagers
How I get along with others (problems with...) - 2. Other teenagers do not want to be my friend
How I get along with others (problems with...) - 3. Other teenagers tease me
How I get along with others (problems with...) - 4. I cannot do things that other people my age can do
How I get along with others (problems with...) - 5. It is hard to keep up with other teenagers
About school (problems with...) - 1. It is hard to pay attention in class
About school (problems with...) - 2. I forget things
About school (problems with...) - 3. I have trouble keeping up with my school work
About school (problems with...) - 4. I am away from school because I feel sick
About school (problems with...) - 5. I am away from school to go to the doctor or hospital
Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) GP
Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Consultant (a medical doctor, e.g. paediatrician, rheumatologist)
Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Nurse (clinical nurse specialist or advanced nurse practitioner)
Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Occupational Therapist
Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Physiotherapist
Which healthcare professionals have been helping you to manage chronic pain? (please note: you can select multiple options) Psychologist
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice MeToo
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice PainBytes
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Online forum
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice No - I do not use websites/ apps for pain management
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice I use a different app/ website
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Reddit
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - Selected Choice Twitter
Do you currently use any mobile apps or websites to manage chronic pain? (please note: you can select multiple options) - I use a different app/ website - Text
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Headspace
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Calm
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice MeToo
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice YouTube videos
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Facebook
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Instagram
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Online forum
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice No - I do not use websites/ apps for mental health
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice I use a different app/ website
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Reddit
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Twitter
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Young Minds
Do you use any mobile apps or websites to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - I use a different app/ website - Text
Please use the boxes below to indicate your top 3 most helpful pain management techniques. Please type numbers 1, 2 and 3 into the boxes provided (1 = most helpful). - Medication/ pain-killers
Initial thoughts - parent and child combi (qual)
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Mindfulness and/ or meditation techniques
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Hypnosis
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Biofeedback (increasing awareness and modifying physiological processes e.g. heart rate)
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Exposure therapy techniques (i.e. gradually exposing yourself to situations that you would usually avoid)
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Art therapy
What sort of techniques do you think would be helpful to include in an online resource for chronic pain? (please note: you can select multiple options) Guided imagery and/or visualization
Is there any technique or therapy (not yet mentioned) that you think would be especially useful for you to be able to access at home?
What sort of structure would you like a resource with multiple pain management techniques to have? - Selected Choice
What sort of structure would you like a resource with multiple pain management techniques to have? - I would like something else (please describe). - Text
Would you like to have professional support over the telephone whilst accessing the intervention?
Would you like to have professional support online whilst accessing the intervention?
In your opinion, how important is the design of an online resource for chronic pain?
How important is it for online pain management programmes to be linked with a hospital or clinic?
Are pictures and videos important for online pain management?
If videos, e.g. videos of physiotherapy, were included in an online pain management resource, would you prefer the person in the video to be a professional or a patient?
Would you prefer the person in the video(s) to be male or female?
Would you prefer the person in the video(s) to be of a particular ethnicity?
Is there anything that could motivate or prevent you from using an online pain programme on a regular basis? - Selected Choice
Is there anything that could motivate or prevent you from using an online pain programme on a regular basis? - Yes (please state) - Text
Are there any additional comments you would like to make about online chronic pain management for young people?
Please select your age group.
What sex were you assigned at birth, on your original birth certificate?
How do you describe yourself?
Who diagnosed your teenagers chronic pain? - Selected Choice
Who diagnosed your teenagers chronic pain? - Someone else (please specify) - Text
How long has your teenager been experiencing chronic pain for?
Please rate your teenagers pain by selecting the box beside the number that best describes their pain at its worst in the last 24 hours. - Pain Rating
Please rate your teenagers pain by selecting the box beside the number that best describes their pain at its least in the last 24 hours. - Pain Rating
Please rate your teenagers pain by selecting the box beside the number that best describes their pain on average. - Pain Rating
Emotional functioning (problems with...) - 1. Feeling afraid or scared
Emotional functioning (problems with...) - 2. Feeling sad
Emotional functioning (problems with...) - 3. Feeling angry
Emotional functioning (problems with...) - 4. Having trouble sleeping
Emotional functioning (problems with...) - 5. Worrying about what will happen to him or her
Social functioning (problems with...) - 1. Getting along with other teenagers
Social functioning (problems with...) - 2. Other teenagers wanting to be his or her friend
Social functioning (problems with...) - 3. Getting teased by other teenagers
Social functioning (problems with...) - 4. Not being able to do things that other teenagers his or her age can do
Social functioning (problems with...) - 5. Keeping up with other teenagers
School functioning (problems with...) - 1. Paying attention in class
School functioning (problems with...) - 2. Forgetting things
School functioning (problems with...) - 3. Keeping up with school work
School functioning (problems with...) - 4. Missing school because of not feeling well
School functioning (problems with...) - 5. Missing school to go to the doctor or hospital
Is your teenager currently attending an NHS-based pain management service or programme?
Which healthcare professionals have been helping your teenager to manage chronic pain? (please note: you can select multiple options) GP
Which healthcare professionals have been helping your teenager to manage chronic pain? (please note: you can select multiple options) Consultant (a medical doctor, e.g. paediatrician, rheumatologist)
Which healthcare professionals have been helping your teenager to manage chronic pain? (please note: you can select multiple options) Nurse (clinical nurse specialist or advanced nurse practitioner)
Which healthcare professionals have been helping your teenager to manage chronic pain? (please note: you can select multiple options) Occupational Therapist
Which healthcare professionals have been helping your teenager to manage chronic pain? (please note: you can select multiple options) Physiotherapist
Which healthcare professionals have been helping your teenager to manage chronic pain? (please note: you can select multiple options) Psychologist
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice YouTube videos
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice MeToo
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice PainBytes
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice Facebook
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice Online forum
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice No - They do not use websites/ apps for pain management
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice Instagram
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice They use a different app/ website
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice Reddit
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - Selected Choice Twitter
Does your teenager currently use any mobile apps or websites (that your know of) to manage chronic pain? (please note: you can select multiple options) - They use a different app/ website - Text
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Headspace
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Calm
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice MeToo
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice YouTube videos
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Facebook
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Instagram
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Online forum
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice No - They do not use websites/ apps for mental health
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice They use a different app/ website
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Reddit
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Twitter
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - Selected Choice Young Minds
Does your teenager use any mobile apps or websites (that you know of) to manage other mental health issues (e.g. depression, anxiety)? (please note: you can select multiple options) - They use a different app/ website - Text
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice YouTube videos
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice PainBytes
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice Facebook
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice Online forum
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice No - I do not use online resources to understand/ manage my teenagers chronic pain
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice Instagram
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice I use a different online resource
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice Reddit
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - Selected Choice Twitter
As a parent/ guardian, do YOU use any online resources to help you understand or manage your teenagers chronic pain? (please note: you can select multiple options) - I use a different online resource - Text
What are your initial thoughts about creating a new online resource that could help young people manage chronic pain?
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Advice/ guidance on pain medications
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Methods to improve sleep
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Support for returning to school
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Advice on explaining chronic pain to others (e.g. friends and family)
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) An explanation of what chronic pain is ('pain education')
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Physiotherapy examples
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Advice on how to pace yourself in daily activities
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Advice on how to pace yourself for exercise/ sport
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Relaxation and breathing techniques
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Mindfulness and/ or meditation techniques
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Advice on transitioning from 'paediatric' (child) to adult healthcare
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Examples of other physical pain management methods (e.g. using TENS, thermal analgesia, desensitisation)
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Challenging and restructuring negative thoughts
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Hypnosis
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Massage techniques
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Biofeedback (increasing awareness and modifying physiological processes e.g. heart rate)
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Exposure therapy techniques (i.e. gradually exposing yourself to situations that you would usually avoid)
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Art therapy
What sort of techniques do you think would be helpful to include in an online resource for chronic pain in teenagers? (please note: you can select multiple options) Guided imagery and/or visualization
Is there any technique or therapy (not yet mentioned) that you think would be especially useful for your teenager to be able to access at home?
Would you like your teenager to have professional support over the telephone whilst accessing the intervention?
Would you like your teenager to have professional support online whilst accessing the intervention?
Some pain programmes have a theme, for example one online programme we know of has a travel theme.&
In your opinion, how important is the design of an online resource for chronic pain which is directed at teenagers?
How important is it for online pain management programmes for teenagers to be affiliated with a hospital or clinic?
Do you think that pictures and videos are important for online pain management in teenagers?
Is there anything that could motivate or prevent your teenager from using an online pain programme on a regular basis? - Selected Choice
Is there anything that could motivate or prevent your teenager from using an online pain programme on a regular basis? - Yes (please state) - Text
phys 1 transformation
phys 2 transformation
... transformation
COMPUTE pedsteensum=Phys_1 + Phys_2 + Phys_3 + Phys_4 + Phys_5 + Phys_6 + Phys_7 + Phys_8 + EF_1 + EF_2 + EF_3 + EF_4 + EF_5 + Soc_1 + Soc_2 + Soc_3 + Soc_4 + Soc_5 + Sch_1 + Sch_2 + Sch_3 + Sch_4 + Sch_5
COMPUTE pedsparentprox=p_Phys_1 + p_Phys_2 + p_Phys_3 + p_Phys_4 + p_Phys_5 + p_Phys_6 + p_Phys_7 + p_Phys_8 + p_EF_1 + p_EF_2 + p_EF_3 + p_EF_4 + p_EF_5 + p_Soc_1 + p_Soc_2 + p_Soc_3 + p_Soc_4 + p_Soc_5 + p_Sch_1 + p_Sch_2 + p_Sch_3 + p_Sch_4 + p_Sch_5
COMPUTE physonlysum=(Phys1TR + Phys2TR + Phys3TR + Phys4TR + Phys5TR + Phys6TR + Phys7TR + Phys8TR) / 8
COMPUTE emonlysum=(EF1TR + EF2TR + EF3TR + EF4TR + EF5TR) / 5
COMPUTE soconlysum=(Soc1TR + Soc2TR + Soc3TR + Soc4TR + Soc5TR) / 5
COMPUTE schonlysum=(Sch1TR + Sch2TR + Sch3TR + Sch4TR + Sch5TR) / 5
COMPUTE physonlysum_p=(p_phys1TR + p_phys2TR + p_phys3TR + p_phys4TR + p_phys5TR + p_phys6TR + p_phys7TR + p_phys8TR) / 8
COMPUTE emonlysum_p=(p_EF1TR + p_EF2TR + p_EF3TR + p_EF4TR + p_EF5TR) / 5
COMPUTE soconlysum_p=(p_Soc1TR + p_Soc2TR + p_Soc3TR + p_Soc4TR + p_Soc5TR) / 5