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Exploring the Outcomes That Matter Most to Young People Treated for Chronic Pain: A Qualitative Study

Exploring the Outcomes That Matter Most to Young People Treated for Chronic Pain: A Qualitative Study
Exploring the Outcomes That Matter Most to Young People Treated for Chronic Pain: A Qualitative Study

Global and national policies state that all children and young people should be part of decision making and that outcomes that matter to them should take priority, yet patient-centred outcomes have been identified as a gap in the paediatric chronic pain literature. This study gave youths experiencing chronic pain a platform to have their views heard. Using novel methods, twenty-one young people, aged 11 to 18 years old, completed a semi-structured interview in which they constructed a timeline drawing to symbolise their treatment. They identified when aspects of their life changed (outcomes) and described the importance of these changes. Thematic analysis identified four themes that emerged at different stages of the treatment: "perfect storm"; "turning points"; "disconnect"; and; "free". "Turning points" were points in time when the narrative of the young person took a turn in a different direction. At these points, the outcomes important to them also changed. Youths initially prioritised outcomes related to pain, then during treatment the focus became their emotional functioning, with role functioning and "going out" becoming the focus at the end. The stage of treatment as perceived by the young person impacted which outcomes mattered most.

Adolescent, Child, Chronic pain, Outcome, Persistent pain, Qualitative
2227-9067
Joslin, Rhiannon
2724bff5-4248-43db-b2d5-47bc10c1033e
Donovan-hall, Maggie
5f138055-2162-4982-846c-5c92411055e0
Roberts, Lisa
0a937943-5246-4877-bd6b-4dcd172b5cd0
Joslin, Rhiannon
2724bff5-4248-43db-b2d5-47bc10c1033e
Donovan-hall, Maggie
5f138055-2162-4982-846c-5c92411055e0
Roberts, Lisa
0a937943-5246-4877-bd6b-4dcd172b5cd0

Joslin, Rhiannon, Donovan-hall, Maggie and Roberts, Lisa (2021) Exploring the Outcomes That Matter Most to Young People Treated for Chronic Pain: A Qualitative Study. Children, 8 (12), [1170]. (doi:10.3390/children8121170).

Record type: Article

Abstract

Global and national policies state that all children and young people should be part of decision making and that outcomes that matter to them should take priority, yet patient-centred outcomes have been identified as a gap in the paediatric chronic pain literature. This study gave youths experiencing chronic pain a platform to have their views heard. Using novel methods, twenty-one young people, aged 11 to 18 years old, completed a semi-structured interview in which they constructed a timeline drawing to symbolise their treatment. They identified when aspects of their life changed (outcomes) and described the importance of these changes. Thematic analysis identified four themes that emerged at different stages of the treatment: "perfect storm"; "turning points"; "disconnect"; and; "free". "Turning points" were points in time when the narrative of the young person took a turn in a different direction. At these points, the outcomes important to them also changed. Youths initially prioritised outcomes related to pain, then during treatment the focus became their emotional functioning, with role functioning and "going out" becoming the focus at the end. The stage of treatment as perceived by the young person impacted which outcomes mattered most.

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More information

Accepted/In Press date: 7 December 2021
Published date: 10 December 2021
Additional Information: Funding Information: The Chartered Society of Physiotherapy and Private Physiotherapy Fund, UK supported educational fees. Publisher Copyright: © 2021 by the authors. Licensee MDPI, Basel, Switzerland.
Keywords: Adolescent, Child, Chronic pain, Outcome, Persistent pain, Qualitative

Identifiers

Local EPrints ID: 453040
URI: http://eprints.soton.ac.uk/id/eprint/453040
ISSN: 2227-9067
PURE UUID: 79df3bb1-0807-40b9-b75c-a6b337f14b8f
ORCID for Rhiannon Joslin: ORCID iD orcid.org/0000-0002-3712-3341
ORCID for Lisa Roberts: ORCID iD orcid.org/0000-0003-2662-6696

Catalogue record

Date deposited: 07 Jan 2022 17:45
Last modified: 30 Oct 2023 03:33

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Contributors

Author: Rhiannon Joslin ORCID iD
Author: Lisa Roberts ORCID iD

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