Patient and Public Involvement in research: A journey to co-production
Patient and Public Involvement in research: A journey to co-production
The public and patients can be powerful sensors for shaping and powering healthcare research. They are joining research teams as investigators and collaborators to co-produce evidence for the practical use of interventions in clinical practice. While clinicians and researchers are encouraged by funders and policymakers to involve the public and patients as partners in research, knowledge on what involvement consists of is limited, and the continuum between consultation, collaboration and co-production are not clearly defined. In this article, we explore Patient and Public Involvement (PPI) and introduce greater involvement through research co-production. Co-production describes ways that research partnership can work through public and patient involvement and we outline the similarities of co-production to “The Commons”, a strategy utilized by economists to increase effective use of resources. We share examples of how public and patient involvement have used co-production, to demonstrate financial and health benefits. We then outline practical challenges at system, social and cultural levels and consider how others have worked to resolve them.
Co-production, Community research, Informed patients, Patient and Public Involvement, Public and patient involvement, Public and patient partnership
Price, Amy
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Clarke, Mike
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Staniszewska, Sophie
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Chu, Larry
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Tembo, Doreen
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Kirkpatrick, Marjorie
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Nelken, Yasmine
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Price, Amy
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Clarke, Mike
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Staniszewska, Sophie
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Chu, Larry
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Tembo, Doreen
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Kirkpatrick, Marjorie
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Nelken, Yasmine
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Price, Amy, Clarke, Mike, Staniszewska, Sophie, Chu, Larry, Tembo, Doreen, Kirkpatrick, Marjorie and Nelken, Yasmine
(2021)
Patient and Public Involvement in research: A journey to co-production.
Patient Education and Counseling.
(doi:10.1016/j.pec.2021.07.021).
Abstract
The public and patients can be powerful sensors for shaping and powering healthcare research. They are joining research teams as investigators and collaborators to co-produce evidence for the practical use of interventions in clinical practice. While clinicians and researchers are encouraged by funders and policymakers to involve the public and patients as partners in research, knowledge on what involvement consists of is limited, and the continuum between consultation, collaboration and co-production are not clearly defined. In this article, we explore Patient and Public Involvement (PPI) and introduce greater involvement through research co-production. Co-production describes ways that research partnership can work through public and patient involvement and we outline the similarities of co-production to “The Commons”, a strategy utilized by economists to increase effective use of resources. We share examples of how public and patient involvement have used co-production, to demonstrate financial and health benefits. We then outline practical challenges at system, social and cultural levels and consider how others have worked to resolve them.
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Accepted/In Press date: 12 July 2021
e-pub ahead of print date: 19 July 2021
Additional Information:
Funding Information:
AP is the Research Editor (Patient and Public Partnership) at The BMJ and is a senior research advisor with Medicine X. LC is on editorial boards at the BMJ and is the Executive Director of Stanford Medicine X, MC is an academic researcher involved in many clinical trials and systematic reviews who seeks funding for these trials and reviews, as well as for research into methodology, including dissemination and accessibility. SSt is the Co-editor in chief of Research Involvement and Engagement and is part funded by NIHR ARC-West Midlands, NIHR HPRU in Gastrointestinal Infections and NIHR HPRU in Genomics and Enabling Data. DT is the Senior Research Manager, NIHR Evaluation Trials and Studies Coordinating Centre, MK and YN have no competing interests to declare.
Publisher Copyright:
© 2021 Elsevier B.V.
Copyright:
Copyright 2021 Elsevier B.V., All rights reserved.
Keywords:
Co-production, Community research, Informed patients, Patient and Public Involvement, Public and patient involvement, Public and patient partnership
Identifiers
Local EPrints ID: 453402
URI: http://eprints.soton.ac.uk/id/eprint/453402
ISSN: 0738-3991
PURE UUID: 20f70a74-8937-4089-9bb2-6df22edac646
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Date deposited: 13 Jan 2022 18:23
Last modified: 05 Jun 2024 19:11
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Contributors
Author:
Amy Price
Author:
Mike Clarke
Author:
Sophie Staniszewska
Author:
Larry Chu
Author:
Doreen Tembo
Author:
Marjorie Kirkpatrick
Author:
Yasmine Nelken
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