The lived experience of Irritable Bowel Syndrome in adults

Abstract

This thesis sets out to explore the lived experience of Irritable Bowel Syndrome (IBS), a common condition characterised by gastrointestinal pain, bloating, and altered bowel habits. IBS is associated with increased psychological distress and comorbidity with depression and anxiety has been reported. While most of our knowledge and understanding of IBS comes from quantitative research, there has been growing interest in the subjective experience of the condition. In the first paper, I describe findings from a systematic review and meta-synthesis of 24 qualitative studies exploring the lived experience of IBS in adults. Using meta-ethnography, findings suggest those with IBS may experience challenges in managing unpredictable symptoms and perceived stigma. Furthermore, those
with IBS may encounter difficulties when interacting with healthcare in seeking answers for their condition and effective treatment options. In the second paper, I explore the lived experience of a particular section of the IBS population, those who have been living with IBS for a considerable time and for whom first-line treatments have proved unsuccessful. Adopting a qualitative, longitudinal design, I interviewed participants at two timepoints and analysed data using Interpretative Phenomenological Analysis. Findings highlight the continuing challenges those with long-term IBS experience, including managing unpredictable symptoms and searching for relief. Creating space where those with IBS can share the lived experience of their condition with healthcare professionals could aide better understanding and management of the condition. Greater promotion of psychological therapies in the management of the condition is also recommended.

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Identifiers

ORCID for Felicity Bishop: orcid.org/0000-0002-8737-6662

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