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The lived experience of people with upper limb absence living in Uganda: a qualitative study

The lived experience of people with upper limb absence living in Uganda: a qualitative study
The lived experience of people with upper limb absence living in Uganda: a qualitative study
Background: The impact of upper limb absence on people’s lived experiences remains severely under-explored, particularly in African countries, with implications for policy and service design.

Objectives: explore the lived experiences of people with upper limb absence (PWULA) living in Uganda.

Method: informed by preliminary work, we designed a qualitative study employing semi-structured interviews to understand the experience of living with upper limb absence in Uganda. Seventeen adults with upper limb absence were individually interviewed and their interviews analysed utilizing thematic analysis.

Results: seven themes illustrating the impact on the individual’s life after amputation were identified and categorized into (1) living and adapting to life, (2) productivity and participation and (3) living within the wider environment. This paper presents three main findings: 1) PWULA need psychological and occupational support services which are not available in Uganda, 2) PWULA want to work but face multiple barriers to employment and limited support, this is combined with complex parenting and caring responsibilities, 3) the local Ugandan culture and social structures affect in both positive and negative ways the everyday life of PWULA.

Conclusion: This paper contributes the lived experiences of PWULA in Uganda which are lacking in the literature. PWULA face ableism and hardship underpinned by a lack of formal support structures and policies, which may in turn exacerbate the impact of upper limb absence on multiple facets of life.
2223-9170
Donovan-Hall, Maggie
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Ramirez, Dafne Zuleima Morgado
d0bf74b6-c278-4eb4-bd67-a71d298359d6
Nakandi, Brenda T.
21c76197-2f6a-4e88-b705-fc0bdcd1bc47
Ssekitoleko, Robert
431217ea-a850-49eb-a927-a972734c036a
Ackers, Louise
1dd7cbff-f26f-4e35-ba82-770da0031d80
Mwaka, Erisa
a98f2606-7f26-45f2-bbac-ea43e6b9a558
Kenney, Laurence P. J.
bcca2173-9135-4b41-8741-059dd432329f
Holloway, Cathy
479cb0b6-a351-433b-a434-4ca116bf6280
Donovan-Hall, Maggie
5f138055-2162-4982-846c-5c92411055e0
Ramirez, Dafne Zuleima Morgado
d0bf74b6-c278-4eb4-bd67-a71d298359d6
Nakandi, Brenda T.
21c76197-2f6a-4e88-b705-fc0bdcd1bc47
Ssekitoleko, Robert
431217ea-a850-49eb-a927-a972734c036a
Ackers, Louise
1dd7cbff-f26f-4e35-ba82-770da0031d80
Mwaka, Erisa
a98f2606-7f26-45f2-bbac-ea43e6b9a558
Kenney, Laurence P. J.
bcca2173-9135-4b41-8741-059dd432329f
Holloway, Cathy
479cb0b6-a351-433b-a434-4ca116bf6280

Donovan-Hall, Maggie, Ramirez, Dafne Zuleima Morgado, Nakandi, Brenda T., Ssekitoleko, Robert, Ackers, Louise, Mwaka, Erisa, Kenney, Laurence P. J. and Holloway, Cathy (2022) The lived experience of people with upper limb absence living in Uganda: a qualitative study. African Journal of Disability. (In Press)

Record type: Article

Abstract

Background: The impact of upper limb absence on people’s lived experiences remains severely under-explored, particularly in African countries, with implications for policy and service design.

Objectives: explore the lived experiences of people with upper limb absence (PWULA) living in Uganda.

Method: informed by preliminary work, we designed a qualitative study employing semi-structured interviews to understand the experience of living with upper limb absence in Uganda. Seventeen adults with upper limb absence were individually interviewed and their interviews analysed utilizing thematic analysis.

Results: seven themes illustrating the impact on the individual’s life after amputation were identified and categorized into (1) living and adapting to life, (2) productivity and participation and (3) living within the wider environment. This paper presents three main findings: 1) PWULA need psychological and occupational support services which are not available in Uganda, 2) PWULA want to work but face multiple barriers to employment and limited support, this is combined with complex parenting and caring responsibilities, 3) the local Ugandan culture and social structures affect in both positive and negative ways the everyday life of PWULA.

Conclusion: This paper contributes the lived experiences of PWULA in Uganda which are lacking in the literature. PWULA face ableism and hardship underpinned by a lack of formal support structures and policies, which may in turn exacerbate the impact of upper limb absence on multiple facets of life.

Text
The lived experience of people with upper limb absence living in Uganda - Accepted Manuscript
Restricted to Repository staff only until 31 May 2023.
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Accepted/In Press date: 19 January 2022

Identifiers

Local EPrints ID: 454932
URI: http://eprints.soton.ac.uk/id/eprint/454932
ISSN: 2223-9170
PURE UUID: 48e460ef-fb07-4532-bf8d-609cb18e3dcb

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Date deposited: 01 Mar 2022 17:51
Last modified: 12 Aug 2022 17:55

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Contributors

Author: Dafne Zuleima Morgado Ramirez
Author: Brenda T. Nakandi
Author: Robert Ssekitoleko
Author: Louise Ackers
Author: Erisa Mwaka
Author: Laurence P. J. Kenney
Author: Cathy Holloway

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