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What does “Good” community and public engagement look like? Developing relationships with community members in global health research

What does “Good” community and public engagement look like? Developing relationships with community members in global health research
What does “Good” community and public engagement look like? Developing relationships with community members in global health research
Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does “good” CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ensure clarity of expectations of award holders, and inform effective monitoring frameworks and the development of guidance. The work reported upon here builds on existing guidance and is a first step in trying to identify the key components of what “good” CPE looks like, which can be used for all approaches to global health research and in a range of different settings and contexts. This article draws on data collected as part of an evaluation of CPE by 53 NIHR-funded award holders to provide insights on CPE practice in global health research. This data was then debated, developed and refined by a group of researchers, CPE specialists and public contributors to explore what “good” CPE looks like, and the barriers and facilitators to good CPE. A key finding was the importance, for some research, of investing in and developing long term relationships with communities, perhaps beyond the life cycle of a project; this was regarded as crucial to the development of trust, addressing power differentials and ensuring the legacy of the research was of benefit to the community.
patient and public involvement, power dynamics, research relationships, research stakeholders, respecting community
2296-2565
776940
Hickey, Gary
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Porter, Katie
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Tembo, Doreen
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Rennard, Una
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Tholanah, Martha
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Beresford, Peter
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Chandler, David
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Chimbari, Moses
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Coldham, Tina
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Dikomitis, Lisa
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Dziro, Biggy
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Ekiikina, Peter O.
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Khattak, Maria I.
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Montenegro, Cristian R.
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Mumba, Noni
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Musesengwa, Rosemary
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Nelson, Erica
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Nhunzvi, Clement
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Ramirez, Caroline M.
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Staniszewska, Sophie
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Hickey, Gary
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Porter, Katie
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Tembo, Doreen
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Rennard, Una
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Tholanah, Martha
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Beresford, Peter
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Chandler, David
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Chimbari, Moses
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Coldham, Tina
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Dikomitis, Lisa
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Dziro, Biggy
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Ekiikina, Peter O.
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Khattak, Maria I.
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Montenegro, Cristian R.
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Mumba, Noni
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Musesengwa, Rosemary
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Nelson, Erica
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Nhunzvi, Clement
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Ramirez, Caroline M.
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Staniszewska, Sophie
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Hickey, Gary, Porter, Katie, Tembo, Doreen, Rennard, Una, Tholanah, Martha, Beresford, Peter, Chandler, David, Chimbari, Moses, Coldham, Tina, Dikomitis, Lisa, Dziro, Biggy, Ekiikina, Peter O., Khattak, Maria I., Montenegro, Cristian R., Mumba, Noni, Musesengwa, Rosemary, Nelson, Erica, Nhunzvi, Clement, Ramirez, Caroline M. and Staniszewska, Sophie (2022) What does “Good” community and public engagement look like? Developing relationships with community members in global health research. Frontiers in Public Health, 9, 776940, [776940]. (doi:10.3389/fpubh.2021.776940).

Record type: Article

Abstract

Community and public engagement (CPE) is increasingly becoming a key component in global health research. The National Institute for Health Research (NIHR) is one of the leading funders in the UK of global health research and requires a robust CPE element in the research it funds, along with CPE monitoring and evaluation. But what does “good” CPE look like? And what factors facilitate or inhibit good CPE? Addressing these questions would help ensure clarity of expectations of award holders, and inform effective monitoring frameworks and the development of guidance. The work reported upon here builds on existing guidance and is a first step in trying to identify the key components of what “good” CPE looks like, which can be used for all approaches to global health research and in a range of different settings and contexts. This article draws on data collected as part of an evaluation of CPE by 53 NIHR-funded award holders to provide insights on CPE practice in global health research. This data was then debated, developed and refined by a group of researchers, CPE specialists and public contributors to explore what “good” CPE looks like, and the barriers and facilitators to good CPE. A key finding was the importance, for some research, of investing in and developing long term relationships with communities, perhaps beyond the life cycle of a project; this was regarded as crucial to the development of trust, addressing power differentials and ensuring the legacy of the research was of benefit to the community.

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Accepted/In Press date: 31 December 2021
Published date: 27 January 2022
Keywords: patient and public involvement, power dynamics, research relationships, research stakeholders, respecting community

Identifiers

Local EPrints ID: 456377
URI: http://eprints.soton.ac.uk/id/eprint/456377
ISSN: 2296-2565
PURE UUID: 7e4b9b28-1ed8-4250-965c-d6b23925a419
ORCID for Katie Porter: ORCID iD orcid.org/0000-0002-7841-2588

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Date deposited: 27 Apr 2022 15:22
Last modified: 11 Jul 2024 02:04

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Contributors

Author: Gary Hickey
Author: Katie Porter ORCID iD
Author: Doreen Tembo
Author: Una Rennard
Author: Martha Tholanah
Author: Peter Beresford
Author: David Chandler
Author: Moses Chimbari
Author: Tina Coldham
Author: Lisa Dikomitis
Author: Biggy Dziro
Author: Peter O. Ekiikina
Author: Maria I. Khattak
Author: Cristian R. Montenegro
Author: Noni Mumba
Author: Rosemary Musesengwa
Author: Erica Nelson
Author: Clement Nhunzvi
Author: Caroline M. Ramirez
Author: Sophie Staniszewska

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