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The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study

Record type: Article

Members of the public are increasingly consulted over health care and research priorities. Patient involvement in determining cancer research priorities, however, has remained underdeveloped. This paper presents the findings of the first consultation to be conducted with UK cancer patients concerning research priorities. The study adopted a participatory approach using a collaborative model that sought joint ownership of the study with people affected by cancer. An exploratory, qualitative approach was used. Consultation groups were the main method, combining focus group and nominal group techniques. Seventeen groups were held with a total of 105 patients broadly representative of the UK cancer population. Fifteen areas for research were identified. Top priority areas included the impact cancer has on life, how to live with cancer and related support issues; risk factors and causes of cancer; early detection and prevention. Although biological and treatment related aspects of science were identified as important, patients rated the management of practical, social and emotional issues as a higher priority. There is a mismatch between the research priorities identified by participants and the current UK research portfolio. Current research activity should be broadened to reflect the priorities of people affected by the disease.

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Citation

Corner, J., Wright, D., Hopkinson, J., Gunaratnam, Y., McDonald, J.W. and Foster, C. (2007) The research priorities of patients attending UK cancer treatment centres: findings from a modified nominal group study British Journal of Cancer, 96, (6), pp. 875-881. (doi:10.1038/sj.bjc.6603662).

More information

Published date: 2007
Keywords: consultation, service users, cancer research agenda, participatory, priorities
Organisations: Faculty of Health Sciences

Identifiers

Local EPrints ID: 45945
URI: http://eprints.soton.ac.uk/id/eprint/45945
ISSN: 0007-0920
PURE UUID: 944d707c-6ef9-4626-877e-28a9fc24a227
ORCID for C. Foster: ORCID iD orcid.org/0000-0002-4703-8378

Catalogue record

Date deposited: 30 Apr 2007
Last modified: 17 Jul 2017 15:10

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Contributors

Author: J. Corner
Author: D. Wright
Author: J. Hopkinson
Author: Y. Gunaratnam
Author: J.W. McDonald
Author: C. Foster ORCID iD

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