Disablement in a community survey of multiple sclerosis
Disablement in a community survey of multiple sclerosis
Four hundred and eleven people with multiple sclerosis were found to be usually resident in the Southampton and South West Hampshire Health District on the 1st of January 1987. The prevalence, using the Poser Committee criteria, was 95/100,000 (95% C.I. 88-107). The mean age of onset was 33 years (range 10 to 60), the mean age 49 years (range 18 to 82), and median duration 13 years (range less than 1 to 56). The sex ratio was 2.1 females to each male. Three hundred and five (74%) were personally examined. They were representative of the population with regard to sex ratio, mean age, mean duration, mean age of onset and an estimate of disability from case-notes. The Kurtzke Expanded Disability Status Scale scores were 0-4.5 in 116 (38%), 5.0-6.5 in 95 (31%), and 7.0-9.5 in 94 (31%). One hundred (33%) were regularly incontinent of urine and this was not confined to the severely disabled. Thirteen (4%) were regularly incontinent of faeces. Twelve (4%) had pressure sores. Fifty-one percent of the males had erectile impotence. Using the Hospital Anxiety and Depression scale, 7% were `cases' of depression and 36 (12%) had cognitive impairment using Folstein's Mini-Mental State Examination. Two hundred and eighty (92%) were living at home, and of these 88 (31%) were regularly dependent on a relative for help in activities of daily living. The degree of contact with, and reported comments on voluntary, social and medical services are described as well as uptake of benefits. Some suggestions are made for improvements in the regular monitoring of the needs of people with multiple sclerosis and their families.
University of Southampton
Roberts, Mark Howard Wakley
1991
Roberts, Mark Howard Wakley
Roberts, Mark Howard Wakley
(1991)
Disablement in a community survey of multiple sclerosis.
University of Southampton, Doctoral Thesis.
Record type:
Thesis
(Doctoral)
Abstract
Four hundred and eleven people with multiple sclerosis were found to be usually resident in the Southampton and South West Hampshire Health District on the 1st of January 1987. The prevalence, using the Poser Committee criteria, was 95/100,000 (95% C.I. 88-107). The mean age of onset was 33 years (range 10 to 60), the mean age 49 years (range 18 to 82), and median duration 13 years (range less than 1 to 56). The sex ratio was 2.1 females to each male. Three hundred and five (74%) were personally examined. They were representative of the population with regard to sex ratio, mean age, mean duration, mean age of onset and an estimate of disability from case-notes. The Kurtzke Expanded Disability Status Scale scores were 0-4.5 in 116 (38%), 5.0-6.5 in 95 (31%), and 7.0-9.5 in 94 (31%). One hundred (33%) were regularly incontinent of urine and this was not confined to the severely disabled. Thirteen (4%) were regularly incontinent of faeces. Twelve (4%) had pressure sores. Fifty-one percent of the males had erectile impotence. Using the Hospital Anxiety and Depression scale, 7% were `cases' of depression and 36 (12%) had cognitive impairment using Folstein's Mini-Mental State Examination. Two hundred and eighty (92%) were living at home, and of these 88 (31%) were regularly dependent on a relative for help in activities of daily living. The degree of contact with, and reported comments on voluntary, social and medical services are described as well as uptake of benefits. Some suggestions are made for improvements in the regular monitoring of the needs of people with multiple sclerosis and their families.
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Published date: 1991
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Local EPrints ID: 460399
URI: http://eprints.soton.ac.uk/id/eprint/460399
PURE UUID: ebfd09fb-ff86-46b7-b639-6ab1e9e65264
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Date deposited: 04 Jul 2022 18:21
Last modified: 04 Jul 2022 18:21
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Author:
Mark Howard Wakley Roberts
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