Younger people's experience of and coping with dementia : a study using interpretative phenomenological analysis

Abstract

Experience of and Coping with Dementia for Younger People likely also have different social tastes and cultural experience than those over the age of 65. The losses associated with losing full time employment and changes in the family dynamic could lead to low self-esteem and depression (Woods, 1999). This literature review is concerned with the research on the lived experience of dementia and ways in which people cope with the disease. Much of the empirical field includes qualitative accounts of older people in the early stages of dementia. There is very little research focussing only on younger people with dementia. This review will offer a descriptive and critical account of the current literature with reference to areas requiring further research. Methodological Approach This literature review has chosen a narrative approach. It was felt that this best supported the available literature and offers a 'story telling' approach to the review of the literature. Searches were made in databases of journal articles such as PsycholNFO and PsyARTICLES to find relevant literature and resources. The Psychology Specialist working with Older People's special Interest group (PSIGE) was also consulted for any relevant literature on dementia in general and specifically related to younger people. Keywords in various conjunctions were used to identify literature these included; dementia, coping, alzheimer's disease, middle age, experience, younger people, early onset dementia, young onset dementia, lived experience of dementia. These searches returned numerous articles which the researcher then examined for relevance by reading the abstract.

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