Investigating parents’ experiences in re-introducing baked milk foods in children with cow's milk allergy
Investigating parents’ experiences in re-introducing baked milk foods in children with cow's milk allergy
Rationale: Baked milk challenges and milk ladders (ML) are currently recommended to determine the development of tolerance to baked milk in children with IgE and Non-IgE-mediated Cow’s Milk Allergy (CMA). However, there is still relatively little known about the parental perceptions of the gradual reintroduction of baked milk. This is the first qualitative study to explore parents’ experiences, understanding and their level of satisfaction in using milk in baked goods and the impact/outcomes of these products in the management of their children’s milk allergy.
Methods: Twenty two semi-structured individualised phone interviews were conducted with mothers (UK residents) of children (n=7; IgE-mediated CMA and n=15; Non-IgE-mediated CMA, 15months-8years) who followed or completed a ML (recruited via social networking sites and analysed using thematic analysis).
Results: It emerged that mothers of children following the ML experienced: 1)Confusion when there was not an explicit nationally recommended ML that all healthcare professionals (HCPs) adhere to. 2)Restricted healthcare support due to limited communication between parents and HCPs/lack of counselling or follow ups. 3)Dissatisfaction with the lack of healthy food choices or alternative food options in each stage of the ML. 4)Concerns about how to recognize potential symptoms of a baked milk reaction. 5)Uncertainty regarding the time spent on each stage of the ML. 6)Insecurity around home reintroduction in case of severe reaction.
Conclusions: Gradual milk reintroduction is usually a long process and mothers need an improved ML based on national recommendation, and local healthcare support, to ensure the efficacy and safety of this process.
Athanasopoulou, Panagiota
339847c5-52b3-4958-b9fc-5002d08f63a9
Mackenzie, Heather
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Deligianni, Elena
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Dean, Taraneh
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Venter, Carina
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12 February 2018
Athanasopoulou, Panagiota
339847c5-52b3-4958-b9fc-5002d08f63a9
Mackenzie, Heather
e1e524b1-b525-4da4-a7d3-d0bb359f4680
Deligianni, Elena
7e829b9d-b4d4-41d2-98e8-ef2d0c22b556
Dean, Taraneh
1bb6a824-55c0-484a-a3f9-3f4ea60912fc
Venter, Carina
b865c2a4-7789-46c9-b6ef-c032c4fda66a
Athanasopoulou, Panagiota, Mackenzie, Heather, Deligianni, Elena, Dean, Taraneh and Venter, Carina
(2018)
Investigating parents’ experiences in re-introducing baked milk foods in children with cow's milk allergy.
1 pp
.
(doi:10.1016/j.jaci.2017.12.831).
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(Other)
Abstract
Rationale: Baked milk challenges and milk ladders (ML) are currently recommended to determine the development of tolerance to baked milk in children with IgE and Non-IgE-mediated Cow’s Milk Allergy (CMA). However, there is still relatively little known about the parental perceptions of the gradual reintroduction of baked milk. This is the first qualitative study to explore parents’ experiences, understanding and their level of satisfaction in using milk in baked goods and the impact/outcomes of these products in the management of their children’s milk allergy.
Methods: Twenty two semi-structured individualised phone interviews were conducted with mothers (UK residents) of children (n=7; IgE-mediated CMA and n=15; Non-IgE-mediated CMA, 15months-8years) who followed or completed a ML (recruited via social networking sites and analysed using thematic analysis).
Results: It emerged that mothers of children following the ML experienced: 1)Confusion when there was not an explicit nationally recommended ML that all healthcare professionals (HCPs) adhere to. 2)Restricted healthcare support due to limited communication between parents and HCPs/lack of counselling or follow ups. 3)Dissatisfaction with the lack of healthy food choices or alternative food options in each stage of the ML. 4)Concerns about how to recognize potential symptoms of a baked milk reaction. 5)Uncertainty regarding the time spent on each stage of the ML. 6)Insecurity around home reintroduction in case of severe reaction.
Conclusions: Gradual milk reintroduction is usually a long process and mothers need an improved ML based on national recommendation, and local healthcare support, to ensure the efficacy and safety of this process.
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More information
Accepted/In Press date: 12 February 2018
e-pub ahead of print date: 12 February 2018
Published date: 12 February 2018
Additional Information:
Copyright © 2017 Published by Mosby, Inc.
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Local EPrints ID: 467356
URI: http://eprints.soton.ac.uk/id/eprint/467356
PURE UUID: e3e750b7-acea-47c6-9bf3-b82ca8f3d1f9
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Date deposited: 06 Jul 2022 17:22
Last modified: 17 Mar 2024 04:00
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Contributors
Author:
Panagiota Athanasopoulou
Author:
Heather Mackenzie
Author:
Elena Deligianni
Author:
Taraneh Dean
Author:
Carina Venter
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