How do illness identity, patient workload and agentic capacity interact to shape patient and caregiver experience? Comparative analysis of lung cancer and chronic obstructive pulmonary disease
How do illness identity, patient workload and agentic capacity interact to shape patient and caregiver experience? Comparative analysis of lung cancer and chronic obstructive pulmonary disease
Some patients have to work hard to manage their illness. When this work outweighs capacity (the resources available to patients to undertake the illness workload and other workloads such as that of daily life), this may result in treatment burden, associated with poor health outcomes for patients. This cross-sectional, comparative qualitative analysis uses an abductive approach to identify, characterise and explain treatment burden in chronic obstructive pulmonary disease (COPD) and lung cancer. It uses complementary qualitative methods (semi-structured interviews with patients receiving specialist care n = 19, specialist clinicians n = 5; non-participant observation of specialist outpatient consultations in two English hospitals [11 h, 52 min] n = 41). The findings underline the importance of the diagnostic process in relation to treatment burden; whether diagnosis is experienced as a biographically disruptive shock (as with lung cancer) or is insidiously biographically erosive (as with COPD).
caregivers, chronic obstructive, health resources, lung neoplasms, pulmonary disease, qualitative research, workload
e4545-e4555
Lippiett, Kate
35184a9f-cf3c-49cc-ae6b-7b92f6ead7ee
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
May, Carl R.
17697f8d-98f6-40d3-9cc0-022f04009ae4
15 December 2022
Lippiett, Kate
35184a9f-cf3c-49cc-ae6b-7b92f6ead7ee
Richardson, Alison
3db30680-aa47-43a5-b54d-62d10ece17b7
May, Carl R.
17697f8d-98f6-40d3-9cc0-022f04009ae4
Lippiett, Kate, Richardson, Alison and May, Carl R.
(2022)
How do illness identity, patient workload and agentic capacity interact to shape patient and caregiver experience? Comparative analysis of lung cancer and chronic obstructive pulmonary disease.
Health & Social Care in the Community, 30 (6), .
(doi:10.1111/hsc.13858).
Abstract
Some patients have to work hard to manage their illness. When this work outweighs capacity (the resources available to patients to undertake the illness workload and other workloads such as that of daily life), this may result in treatment burden, associated with poor health outcomes for patients. This cross-sectional, comparative qualitative analysis uses an abductive approach to identify, characterise and explain treatment burden in chronic obstructive pulmonary disease (COPD) and lung cancer. It uses complementary qualitative methods (semi-structured interviews with patients receiving specialist care n = 19, specialist clinicians n = 5; non-participant observation of specialist outpatient consultations in two English hospitals [11 h, 52 min] n = 41). The findings underline the importance of the diagnostic process in relation to treatment burden; whether diagnosis is experienced as a biographically disruptive shock (as with lung cancer) or is insidiously biographically erosive (as with COPD).
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Health Social Care Comm - 2022 - Lippiett - How do illness identity patient workload and agentic capacity interact to
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Accepted/In Press date: 12 May 2022
e-pub ahead of print date: 28 May 2022
Published date: 15 December 2022
Additional Information:
Funding Information:
Kate Lippiett was supported financially by the Health Foundation. Kate Lippiett also received support from the NIHR Applied Research Collaboration ARC Wessex and Health Education England South East and was funded by an NIHR ARC Wessex and Health Education England South East Internship. Carl May's contribution to this article was supported by NIHR North Thames ARC. Alison Richardson's contribution to this article was supported by NIHR ARC Wessex. Professor Richardson is a National Institute for Health Research (NIHR) Senior Investigator. The views expressed in this article are those of the author(s) and not necessarily those of the NHS, the NIHR, the Department of Health, HEE South East or the Health Foundation.
Funding Information:
The authors thank Dr Michelle Myall, Dr Amanda Cummings and Dr Jonathan Harvey for their support in developing the coding framework and Martin Simpson-Scott for his assistance with data preparation. We also gratefully acknowledge the support and advice of the late Mark Stafford-Watson, patient advisor to NIHR Collaboration for Leadership in Applied Health Research and Care (CLAHRC) Wessex. The authors thank the participants who gave so generously of their time and their stories.
Publisher Copyright:
© 2022 The Authors. Health and Social Care in the Community published by John Wiley & Sons Ltd.
Keywords:
caregivers, chronic obstructive, health resources, lung neoplasms, pulmonary disease, qualitative research, workload
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Local EPrints ID: 467937
URI: http://eprints.soton.ac.uk/id/eprint/467937
ISSN: 0966-0410
PURE UUID: 368fee17-663a-43f6-992a-732449a3aac4
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Date deposited: 26 Jul 2022 16:36
Last modified: 17 Mar 2024 03:56
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Carl R. May
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