Managing Parkinson’s during the COVID‐19 pandemic: perspectives from people living with Parkinson’s and health professionals
Managing Parkinson’s during the COVID‐19 pandemic: perspectives from people living with Parkinson’s and health professionals
Objectives: the aim of this study was to understand how people living with Parkinson's and healthcare professionals perceived their care management and interactions with health services were affected during the COVID-19 pandemic. Background: During the COVID-19 pandemic, many governments introduced restrictions and services that support Parkinson's care management had to cease or be delivered remotely. These changes may have had an impact on the well-being of people living with Parkinson's.
Methods: a qualitative exploratory UK study was carried out. Semi-structured individual interviews with people living with Parkinson's and health professionals were recorded, transcribed verbatim and analysed using Braun´s and Clarke´s thematic analysis. Eleven patients and 10 health professionals were recruited between April and September 2020. The study was reported using the COREQ.
Results: two main themes were identified. In the first theme, many patients and professionals reported that the COVID-19 pandemic made some people living with Parkinson's feel isolated and vulnerable due to disruptions to their social networks and usual activities related to Parkinson's disease care. However, other patients remained connected with their networks. In the second theme, patients and most professionals mentioned that some clinical practices were cancelled, delayed or transformed to remote consultation.
Conclusion: the COVID-19 restrictions had an impact on how people living with Parkinson's managed their care and in their interactions with healthcare services. Health professionals should assess the risk of vulnerability, social isolation, physical inactivity and confidence with remote consultations in people living with Parkinson's. This might inform a rethinking of existing clinical interactions with people living with Parkinson's towards a flexible, sustainable, person-centred care model. Relevance to clinical practice: This study has shown that Parkinson's care management and interactions with healthcare services should provide personalised and flexible support. To meet this challenge, the design of the organisation of health services should include greater involvement of patients and person-centred care models.
COVID-19 pandemic, Parkinson, care management, nursing, older people, qualitative
Soilemezi, Dia
74f20da9-6646-419a-bec3-d34348bfaa3c
Roberts, Helen C.
5ea688b1-ef7a-4173-9da0-26290e18f253
Navarta‐sánchez, Maria Victoria
7f602943-ffc5-41d2-9b21-e4ce32be5d30
Kunkel, Dorit
6b6c65d5-1d03-4a13-9db8-1342cd43f352
Ewings, Sean
326656df-c0f0-44a1-b64f-8fe9578ca18a
Reidy, Claire
afb521f8-99d0-4315-9a30-d2f478d3f30c
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
17 May 2022
Soilemezi, Dia
74f20da9-6646-419a-bec3-d34348bfaa3c
Roberts, Helen C.
5ea688b1-ef7a-4173-9da0-26290e18f253
Navarta‐sánchez, Maria Victoria
7f602943-ffc5-41d2-9b21-e4ce32be5d30
Kunkel, Dorit
6b6c65d5-1d03-4a13-9db8-1342cd43f352
Ewings, Sean
326656df-c0f0-44a1-b64f-8fe9578ca18a
Reidy, Claire
afb521f8-99d0-4315-9a30-d2f478d3f30c
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Soilemezi, Dia, Roberts, Helen C., Navarta‐sánchez, Maria Victoria, Kunkel, Dorit, Ewings, Sean, Reidy, Claire and Portillo, Mari Carmen
(2022)
Managing Parkinson’s during the COVID‐19 pandemic: perspectives from people living with Parkinson’s and health professionals.
Journal of Clinical Nursing.
(doi:10.1111/jocn.16367).
Abstract
Objectives: the aim of this study was to understand how people living with Parkinson's and healthcare professionals perceived their care management and interactions with health services were affected during the COVID-19 pandemic. Background: During the COVID-19 pandemic, many governments introduced restrictions and services that support Parkinson's care management had to cease or be delivered remotely. These changes may have had an impact on the well-being of people living with Parkinson's.
Methods: a qualitative exploratory UK study was carried out. Semi-structured individual interviews with people living with Parkinson's and health professionals were recorded, transcribed verbatim and analysed using Braun´s and Clarke´s thematic analysis. Eleven patients and 10 health professionals were recruited between April and September 2020. The study was reported using the COREQ.
Results: two main themes were identified. In the first theme, many patients and professionals reported that the COVID-19 pandemic made some people living with Parkinson's feel isolated and vulnerable due to disruptions to their social networks and usual activities related to Parkinson's disease care. However, other patients remained connected with their networks. In the second theme, patients and most professionals mentioned that some clinical practices were cancelled, delayed or transformed to remote consultation.
Conclusion: the COVID-19 restrictions had an impact on how people living with Parkinson's managed their care and in their interactions with healthcare services. Health professionals should assess the risk of vulnerability, social isolation, physical inactivity and confidence with remote consultations in people living with Parkinson's. This might inform a rethinking of existing clinical interactions with people living with Parkinson's towards a flexible, sustainable, person-centred care model. Relevance to clinical practice: This study has shown that Parkinson's care management and interactions with healthcare services should provide personalised and flexible support. To meet this challenge, the design of the organisation of health services should include greater involvement of patients and person-centred care models.
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Managing Parkinson’s during the COVID-19 pandemic Perspectives from people living with Parkinson’s and health professionals
- Accepted Manuscript
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Journal of Clinical Nursing - 2022 - Soilemezi - Managing Parkinson s during the COVID‐19 pandemic Perspectives from
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More information
Accepted/In Press date: 3 May 2022
e-pub ahead of print date: 17 May 2022
Published date: 17 May 2022
Additional Information:
Funding Information:
This study was funded by the Alzheimer's Society as part of the Joint Programme for Neurodegenerative Research (JPND); grant number: 470. The Autonomous University of Madrid and the Ministry of Universities of the Spanish Government (Recovery, Transformation and Resilience Plan) were the financing entities of the researcher Dr M Victoria Navarta‐Sánchez (Grant number: CA2/RSUE/2021‐00854)
Publisher Copyright:
© 2022 The Authors. Journal of Clinical Nursing published by John Wiley & Sons Ltd.
Keywords:
COVID-19 pandemic, Parkinson, care management, nursing, older people, qualitative
Identifiers
Local EPrints ID: 467939
URI: http://eprints.soton.ac.uk/id/eprint/467939
ISSN: 0962-1067
PURE UUID: bc9ed83c-bc13-4a2d-b1b9-1dc46ac20d5d
Catalogue record
Date deposited: 26 Jul 2022 16:37
Last modified: 17 Mar 2024 03:37
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Contributors
Author:
Dia Soilemezi
Author:
Maria Victoria Navarta‐sánchez
Author:
Claire Reidy
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