In the family: access to, and communication of, familial information in clinical practice
In the family: access to, and communication of, familial information in clinical practice
How an individual's genetic information is governed by confidentiality, and how the interests of others-such as close relatives-in knowing such information might be respected, has been the topic of much debate ever since genetic testing has become more prevalent. In this paper, two authors who often appear to have different views on familial disclosure, discuss where they agree on this topic.
Communication, Confidentiality, Disclosure, Family, Genetic Testing, Humans
1053-1058
Lucassen, Anneke
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Clarke, Angus
934116e6-81eb-4f1f-ab9a-ef2b80b933cf
Lucassen, Anneke
2eb85efc-c6e8-4c3f-b963-0290f6c038a5
Clarke, Angus
934116e6-81eb-4f1f-ab9a-ef2b80b933cf
Lucassen, Anneke and Clarke, Angus
(2021)
In the family: access to, and communication of, familial information in clinical practice.
Human Genetics, 141 (5), .
(doi:10.1007/s00439-021-02401-0).
Abstract
How an individual's genetic information is governed by confidentiality, and how the interests of others-such as close relatives-in knowing such information might be respected, has been the topic of much debate ever since genetic testing has become more prevalent. In this paper, two authors who often appear to have different views on familial disclosure, discuss where they agree on this topic.
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Lucassen-Clarke2022_Article_InTheFamilyAccessToAndCommunic
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Accepted/In Press date: 8 November 2021
e-pub ahead of print date: 8 November 2021
Additional Information:
© 2021. The Author(s).
Keywords:
Communication, Confidentiality, Disclosure, Family, Genetic Testing, Humans
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Local EPrints ID: 468029
URI: http://eprints.soton.ac.uk/id/eprint/468029
ISSN: 0340-6717
PURE UUID: df273b84-4549-4cee-8d6d-919e450c4a92
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Date deposited: 28 Jul 2022 16:42
Last modified: 17 Mar 2024 02:54
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Author:
Angus Clarke
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