The University of Southampton
University of Southampton Institutional Repository

In the family: access to, and communication of, familial information in clinical practice

In the family: access to, and communication of, familial information in clinical practice
In the family: access to, and communication of, familial information in clinical practice

How an individual's genetic information is governed by confidentiality, and how the interests of others-such as close relatives-in knowing such information might be respected, has been the topic of much debate ever since genetic testing has become more prevalent. In this paper, two authors who often appear to have different views on familial disclosure, discuss where they agree on this topic.

Communication, Confidentiality, Disclosure, Family, Genetic Testing, Humans
0340-6717
1053-1058
Lucassen, Anneke
2eb85efc-c6e8-4c3f-b963-0290f6c038a5
Clarke, Angus
934116e6-81eb-4f1f-ab9a-ef2b80b933cf
Lucassen, Anneke
2eb85efc-c6e8-4c3f-b963-0290f6c038a5
Clarke, Angus
934116e6-81eb-4f1f-ab9a-ef2b80b933cf

Lucassen, Anneke and Clarke, Angus (2021) In the family: access to, and communication of, familial information in clinical practice. Human Genetics, 141 (5), 1053-1058. (doi:10.1007/s00439-021-02401-0).

Record type: Article

Abstract

How an individual's genetic information is governed by confidentiality, and how the interests of others-such as close relatives-in knowing such information might be respected, has been the topic of much debate ever since genetic testing has become more prevalent. In this paper, two authors who often appear to have different views on familial disclosure, discuss where they agree on this topic.

Text
Lucassen-Clarke2022_Article_InTheFamilyAccessToAndCommunic - Version of Record
Available under License Creative Commons Attribution.
Download (482kB)

More information

Accepted/In Press date: 8 November 2021
e-pub ahead of print date: 8 November 2021
Additional Information: © 2021. The Author(s).
Keywords: Communication, Confidentiality, Disclosure, Family, Genetic Testing, Humans

Identifiers

Local EPrints ID: 468029
URI: http://eprints.soton.ac.uk/id/eprint/468029
ISSN: 0340-6717
PURE UUID: df273b84-4549-4cee-8d6d-919e450c4a92
ORCID for Anneke Lucassen: ORCID iD orcid.org/0000-0003-3324-4338

Catalogue record

Date deposited: 28 Jul 2022 16:42
Last modified: 17 Mar 2024 02:54

Export record

Altmetrics

Contributors

Author: Anneke Lucassen ORCID iD
Author: Angus Clarke

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×