The UK Genethics Club: clinical ethics support for genetic services
The UK Genethics Club: clinical ethics support for genetic services
The UK Genethics Club was established in November 2001 in order to provide a national forum of ethics support for the profession of clinical genetics in the UK. The forum brings together health professionals, medical ethicists and lawyers and support is provided through detailed discussion of cases and sharing of good practice. Clinical genetics professionals had previously voiced concerns about making extremely difficult ethical decisions, with profound implications, in something of a vacuum. Professionals saw a lack of guidance in the area and lack of time for discussion of difficult cases as reasons for this. This paper describes the origins of the group and gives (anonymized) examples of some of the types of issues discussed.
219-223
Lucassen, Anneke
2eb85efc-c6e8-4c3f-b963-0290f6c038a5
Parker, Michael
60739891-833c-46e4-8e0e-b318d61a3eaa
1 December 2006
Lucassen, Anneke
2eb85efc-c6e8-4c3f-b963-0290f6c038a5
Parker, Michael
60739891-833c-46e4-8e0e-b318d61a3eaa
Lucassen, Anneke and Parker, Michael
(2006)
The UK Genethics Club: clinical ethics support for genetic services.
Clinical Ethics, 1 (4), .
(doi:10.1258/147775006779151184).
Abstract
The UK Genethics Club was established in November 2001 in order to provide a national forum of ethics support for the profession of clinical genetics in the UK. The forum brings together health professionals, medical ethicists and lawyers and support is provided through detailed discussion of cases and sharing of good practice. Clinical genetics professionals had previously voiced concerns about making extremely difficult ethical decisions, with profound implications, in something of a vacuum. Professionals saw a lack of guidance in the area and lack of time for discussion of difficult cases as reasons for this. This paper describes the origins of the group and gives (anonymized) examples of some of the types of issues discussed.
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Published date: 1 December 2006
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Local EPrints ID: 469443
URI: http://eprints.soton.ac.uk/id/eprint/469443
ISSN: 1477-7509
PURE UUID: a700b282-fe51-486e-8842-3e33f68ab638
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Date deposited: 14 Sep 2022 16:52
Last modified: 17 Mar 2024 02:54
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Michael Parker
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