READ ME File For 'Quality of Life Dataset'

Dataset DOI: 10.5258/SOTON/D2370

ReadMe Author: Cara Louise Hens

This dataset supports the thesis entitled 'Quality of Life, Risks and Resilience in School-Aged Siblings of Autistic Children.' 
AWARDED BY: Univeristy of Southampton
DATE OF AWARD: [2022]

DESCRIPTION OF THE DATA

Data was collected online via an online survey platform. It contains demographic information on participants, in addition to participants' completion of psychometric scales measuring psychological wellbeing, school belonging, and quality of life.
The data was secondary data, obtained from a previous research study which used data that had not been previously analysed. Further details can be found in the ethical approval application, ERGO number: 56652. The data compares the outcomes on these psychological measures between two groups: adolescent siblings of autistic children and adolescent siblings of neurotypical children. 

Demographic data collected:
Age, Group (adolescent sibling of autistic/neurotypical child); whether participant has a disability; gender; whether participant has English as an additional langage; whether participants are older/younger than their sibling; measure of deprivation.

Psychometric measures used:
KIDSCREEN-27 Quality of Life Questionnaire
Strengths and Difficulties Questionnaire
The Belonging Scale


Date of data collection: Data was collected by Alex Gregory between October 2017 and April 2018. Data was retrieved for use in this thesis, following ethical approval, in May 2020.

Information about geographic location of data collection: Data was collected in the UK.

Licence: Creative Commons Attribution


Date that the file was created: Month, Year
September, 2022
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