Treatment burden in multiple long-term conditions: a mixed-methods study protocol
Treatment burden in multiple long-term conditions: a mixed-methods study protocol
Background: treatment burden represents the work patients undertake because of their healthcare, and the impact of that effort on the patient. Most research has focused on older adults (65+) with multiple long-term conditions (MLTC-M) but there are more younger adults (18-65) living with MLTC-M and they may experience treatment burden differently. Understanding experiences of treatment burden, and identifying those most at risk of high treatment burden, are important for designing primary care services to meet their needs.
Aim: to understand the treatment burden associated with MLTC-M, for people aged 18–65 years, and how primary care services affect this burden.
Design & setting: mixed-methods study in 20–33 primary care practices in two UK regions.
Method: i. In-depth qualitative interviews with adults living with MLTC-M (approximately 40 participants) to understand their experiences of treatment burden and the impact of primary care; with a think-aloud aspect to explore face validity of a novel short treatment burden questionnaire for routine clinical use (STBQ) in the initial 15 interviews. ii. Cross-sectional patient survey (approximately 1,000 participants) with linked routine medical record data to examine the factors associated with treatment burden for people living with MLTC-M, and to test the validity of STBQ.
Conclusion: this study will generate in-depth understanding of the treatment burden experienced by people aged 18–65 years living with MLTC-M, and how primary care services affect this burden. This will inform further development and testing of interventions to reduce treatment burden, and potentially influence MLTC-M trajectories and improve health outcomes.
Johnson, Rachel
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Kovalenko, Anastasiia
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Blakeman, Thomas
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Panagioti, Maria
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Lawton, Michael
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Dawson, Shoba
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Duncan, Polly
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Fraser, Simon
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Valderas, Jose
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Chilcott, Simon
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Goulding, Rebecca
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Salisbury, Chris
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9 June 2023
Johnson, Rachel
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Kovalenko, Anastasiia
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Blakeman, Thomas
805f6f85-5cf2-4c4b-b6b6-c94ee0e46a8e
Panagioti, Maria
c6c253c8-656b-4de8-8c13-0e58001fed23
Lawton, Michael
24006095-2e4f-4f8b-b603-696d341fdf17
Dawson, Shoba
33f55aea-ba05-47e6-bbcf-f0395453fd1f
Duncan, Polly
c108afcb-1580-4b31-af87-3dbc9fe23dc4
Fraser, Simon
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Valderas, Jose
e70ac5b8-7c86-415e-b412-710fbf5eb9f9
Chilcott, Simon
e0ed5212-2f6b-4f7e-8b18-d84ca0ca66d6
Goulding, Rebecca
36c9a881-c9bb-4f84-8178-62d133dc8859
Salisbury, Chris
50e9a5a0-c074-4af8-9b1b-e1e8408aae3c
Johnson, Rachel, Kovalenko, Anastasiia, Blakeman, Thomas, Panagioti, Maria, Lawton, Michael, Dawson, Shoba, Duncan, Polly, Fraser, Simon, Valderas, Jose, Chilcott, Simon, Goulding, Rebecca and Salisbury, Chris
(2023)
Treatment burden in multiple long-term conditions: a mixed-methods study protocol.
BJGP Open.
(doi:10.3399/BJGPO.2023.0097).
Abstract
Background: treatment burden represents the work patients undertake because of their healthcare, and the impact of that effort on the patient. Most research has focused on older adults (65+) with multiple long-term conditions (MLTC-M) but there are more younger adults (18-65) living with MLTC-M and they may experience treatment burden differently. Understanding experiences of treatment burden, and identifying those most at risk of high treatment burden, are important for designing primary care services to meet their needs.
Aim: to understand the treatment burden associated with MLTC-M, for people aged 18–65 years, and how primary care services affect this burden.
Design & setting: mixed-methods study in 20–33 primary care practices in two UK regions.
Method: i. In-depth qualitative interviews with adults living with MLTC-M (approximately 40 participants) to understand their experiences of treatment burden and the impact of primary care; with a think-aloud aspect to explore face validity of a novel short treatment burden questionnaire for routine clinical use (STBQ) in the initial 15 interviews. ii. Cross-sectional patient survey (approximately 1,000 participants) with linked routine medical record data to examine the factors associated with treatment burden for people living with MLTC-M, and to test the validity of STBQ.
Conclusion: this study will generate in-depth understanding of the treatment burden experienced by people aged 18–65 years living with MLTC-M, and how primary care services affect this burden. This will inform further development and testing of interventions to reduce treatment burden, and potentially influence MLTC-M trajectories and improve health outcomes.
Text
BJGPO.2023.0097.full
- Accepted Manuscript
More information
Accepted/In Press date: 5 June 2023
e-pub ahead of print date: 9 June 2023
Published date: 9 June 2023
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Local EPrints ID: 477754
URI: http://eprints.soton.ac.uk/id/eprint/477754
PURE UUID: c68a0840-e277-4275-8b53-f8bcecbcc9f5
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Date deposited: 14 Jun 2023 16:31
Last modified: 17 Mar 2024 03:14
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Contributors
Author:
Rachel Johnson
Author:
Anastasiia Kovalenko
Author:
Thomas Blakeman
Author:
Maria Panagioti
Author:
Michael Lawton
Author:
Shoba Dawson
Author:
Polly Duncan
Author:
Jose Valderas
Author:
Simon Chilcott
Author:
Rebecca Goulding
Author:
Chris Salisbury
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