What outcomes should researchers select, collect and report in pre-eclampsia research? A qualitative study exploring the views of women with lived experience of pre-eclampsia

Accepted/In Press date: 2 January 2019

e-pub ahead of print date: 24 February 2019

Published date: 4 March 2019

Additional Information: Funding Information: This report is independent research arising from a doctoral fellowship (DRF-2014-07-051) supported by the National Institute for Health Research. Prof. Richard McManus is supported by a National Institute for Health Research Professorship (NIHR-RP-R2-12-015) and the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care Oxford. Prof. Sue Ziebland is a National Institute for Health Research Senior Investigator. The views expressed in this publication are those of the authors and not necessarily those of the National Health Service, the National Institute for Health Research, or the Department of Health. Funding Information: This is independent research arising from a doctoral fellowship (DRF-2014-07-051) supported by the National Institute for Health Research, awarded following external peer review. The funder had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. Funding Information: The funders had no role in the study design, data collection and analysis, decision to publish, or preparation of the manuscript. This report is independent research arising from a doctoral fellowship (DRF-2014-07-051) supported by the National Institute for Health Research. Prof. Richard McManus is supported by a National Institute for Health Research Professorship (NIHR-RP-R2-12-015) and the National Institute for Health Research Collaboration for Leadership in Applied Health Research and Care Oxford. Prof. Sue Ziebland is a National Institute for Health Research Senior Investigator. The views expressed in this publication are those of the authors and not necessarily those of the National Health Service, the National Institute for Health Research, or the Department of Health. We would like to thank the women who participated in this study. We would like to thank the Radcliffe Women's Health Patient Participation group, Action on Pre-eclampsia, and our patient and public representatives who assisted with study design, data interpretation and planned dissemination. We would like to thank Prof. Louise Locock, Health Services Research Unit, University of Aberdeen, who conducted several interviews contained within the University of Oxford Archive; Prof. Khalid Khan, Queen Mary, University of London who assisted with securing study funding; and Romola Watts for transcribing the interviews. We would like to thank colleagues at the Nuffield Department of Primary Care Health Sciences, University of Oxford including Jacqui Belcher, Carla Betts, Lucy Curtin, Dawn Evans, Caroline Jordan, Sarah King, Sam Monaghan, Dan Richards-Doran, Nicola Small, and Clare Wickings for administrative, technical and material support. We would like to thank colleagues at the Women's Health Research Unit, Queen Mary, University of London including Tracy Holtham and Rehan Khan for administrative and technical support, and subject-specific expertise. We would like to thank David J. Mills for administrative and material support.

Keywords: core outcome sets, in-depth patient interviews, outcomes, pre-eclampsia, qualitative research

Local EPrints ID: 478824

URI: http://eprints.soton.ac.uk/id/eprint/478824

DOI: doi:10.1111/1471-0528.15616

ISSN: 1470-0328

PURE UUID: 720ac990-eebb-4709-998f-80e9bcc78065

ORCID for Mark Johnson: orcid.org/0000-0003-1829-9912

Date deposited: 11 Jul 2023 16:55

Last modified: 18 Mar 2024 03:47