First validation study of the living with long term conditions scale (LwLTCs) among English-speaking population living with Parkinson’s disease
First validation study of the living with long term conditions scale (LwLTCs) among English-speaking population living with Parkinson’s disease
Introduction: Parkinson’s disease is the second most prevalent neurodegenerative disease, affecting 10 million people worldwide. Health and social care professionals need to have personalised tools to evaluate the process of living with Parkinson’s disease and consequently, plan individualised and targeted interventions. Recently, the English version of the Living with Long term conditions (LwLTCs) scale has been developed filling an important gap related to person-centred tools to evaluate the process of living with long term conditions among English-speaking population. However, no validation studies for testing its psychometric properties have been conducted.
Aim: to analyse the psychometric properties of the LwLTCs scale in a wide English-speaking population living with Parkinson’s disease.
Methods: validation study, with an observational and cross-sectional design. The sample was composed of individuals living with Parkinson’s disease from non-NHS services in the community. Psychometric properties including feasibility and acceptability, internal consistency, reproducibility, and construct, internal and known-groups validity were tested.
Results: a total sample of 241 people living with Parkinson’s disease were included. 6 individuals did not complete 1 or 2 items on the scale. Ordinal alpha was 0.89 for the total scale. The intraclass correlation coefficient for the total scale was 0.88. The LwLTCs scale is strongly correlated with scales measuring satisfaction with life (rs=0.67), quality of life (rs=0.54), and moderately correlated with social support (rs=0.45). Statistically significant difference just for therapy and co-morbidity, yet no for gender, employment situation, or lifestyle changes.
Conclusions: the LwLTCs scale is a valid scale to evaluate how the person is living with Parkinson’s disease. Future validation studies to prove the repeatability of the total scale and particularly, domains 3-Self-management, and 4-Integration and internal consistency will be needed. Developing further studies on the English version of the LwLTC in people with other long term conditions is also proposed.
Living with long term conditions, Parkinson’s disease, Psychometric properties, Validation
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
Hislop-Lennie, Kelly
4489bd0e-403e-4636-baf9-606762504ce4
Serrano-Fuentes, Nestor
a61ca307-6fd1-42c9-9d81-315f4027f4aa
Driessens, Corine
59335f14-4ead-4692-9969-7ed9cc1ccf08
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
10 July 2023
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
Hislop-Lennie, Kelly
4489bd0e-403e-4636-baf9-606762504ce4
Serrano-Fuentes, Nestor
a61ca307-6fd1-42c9-9d81-315f4027f4aa
Driessens, Corine
59335f14-4ead-4692-9969-7ed9cc1ccf08
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Ambrosio, Leire, Hislop-Lennie, Kelly, Serrano-Fuentes, Nestor, Driessens, Corine and Portillo, Mari Carmen
(2023)
First validation study of the living with long term conditions scale (LwLTCs) among English-speaking population living with Parkinson’s disease.
Health and Quality of Life Outcomes, 21, [69].
(doi:10.1186/s12955-023-02154-6).
Abstract
Introduction: Parkinson’s disease is the second most prevalent neurodegenerative disease, affecting 10 million people worldwide. Health and social care professionals need to have personalised tools to evaluate the process of living with Parkinson’s disease and consequently, plan individualised and targeted interventions. Recently, the English version of the Living with Long term conditions (LwLTCs) scale has been developed filling an important gap related to person-centred tools to evaluate the process of living with long term conditions among English-speaking population. However, no validation studies for testing its psychometric properties have been conducted.
Aim: to analyse the psychometric properties of the LwLTCs scale in a wide English-speaking population living with Parkinson’s disease.
Methods: validation study, with an observational and cross-sectional design. The sample was composed of individuals living with Parkinson’s disease from non-NHS services in the community. Psychometric properties including feasibility and acceptability, internal consistency, reproducibility, and construct, internal and known-groups validity were tested.
Results: a total sample of 241 people living with Parkinson’s disease were included. 6 individuals did not complete 1 or 2 items on the scale. Ordinal alpha was 0.89 for the total scale. The intraclass correlation coefficient for the total scale was 0.88. The LwLTCs scale is strongly correlated with scales measuring satisfaction with life (rs=0.67), quality of life (rs=0.54), and moderately correlated with social support (rs=0.45). Statistically significant difference just for therapy and co-morbidity, yet no for gender, employment situation, or lifestyle changes.
Conclusions: the LwLTCs scale is a valid scale to evaluate how the person is living with Parkinson’s disease. Future validation studies to prove the repeatability of the total scale and particularly, domains 3-Self-management, and 4-Integration and internal consistency will be needed. Developing further studies on the English version of the LwLTC in people with other long term conditions is also proposed.
Text
361_First validation study of the Living with Long term conditions scale (LwLTCs) among English-speaking population living with Parkinson’s disease
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Accepted/In Press date: 26 June 2023
Published date: 10 July 2023
Additional Information:
Funding Information:
The authors would like to acknowledge the collaboration of people with PD. Besides, the authors would like to thank the NIHR Applied Research Collaboration Wessex for the financial support in the development of this project. project. Finally, the authors really appreciate the support of voluntary organizations, such as Parkinson’s UK to recruit participants.
Funding Information:
This study is funded by the National Institute for Health and Care Research ARC Wessex. The views expressed in this publication are those of the author(s) and not necessarily those of the National Institute for Health and Care Research or the Department of Health and Social Care.
Funding Information:
The authors would like to acknowledge the collaboration of people with PD. Besides, the authors would like to thank the NIHR Applied Research Collaboration Wessex for the financial support in the development of this project. project. Finally, the authors really appreciate the support of voluntary organizations, such as Parkinson’s UK to recruit participants.
Keywords:
Living with long term conditions, Parkinson’s disease, Psychometric properties, Validation
Identifiers
Local EPrints ID: 479819
URI: http://eprints.soton.ac.uk/id/eprint/479819
ISSN: 1477-7525
PURE UUID: 669c933b-2528-4099-8088-823887e31bde
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Date deposited: 27 Jul 2023 11:22
Last modified: 17 Mar 2024 04:19
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