The psychosocial burdens of living with diabetes
The psychosocial burdens of living with diabetes
Aim: To better understand the prevalence of self-reported psychosocial burdens and the unmet needs identified by people with diabetes in relation to routine diabetes visits. Methods: An English language, online survey was distributed via social media, key stakeholder networks, charity and advocacy groups to adults with type 1 diabetes or type 2 diabetes. Survey items were designed by members of the FDA RESCUE Collaborative Community Governing Committee prior to pilot testing with potential participants. Descriptive statistical analyses were conducted, as well as thematic analyses on free-text responses using NVivo v14. Results: Four hundred and seventy-eight participants completed the survey: 373 (78%) had type 1 diabetes, 346 (73%) identified as a woman and 433 (91%) were white. Most participants had experienced self-reported (rather than diagnosed) anxiety and depression (n = 323 and n = 313, respectively), as well as fear of low blood sugars (n = 294), low mood (n = 290) and diabetes-related distress (n = 257). Sixty-eight percent reported that diabetes had negatively affected self-esteem, 62% reported the feelings of loneliness, but 93% reported that friends/family/work colleagues were supportive when needed. Two hundred and seventy-two percent (57%) reported that their diabetes team had never raised the topic of mental health. The overwhelming majority stated that the best thing their diabetes team could do to help was to simply ask about mental well-being, listen with empathy and without judgement, and practice skills to understand psychosocial issues in diabetes. Conclusion: Integrating psychosocial discussions and support within routine healthcare visits is crucial to improve outcomes for people with diabetes. Such a biopsychosocial model of healthcare has long been advocated by regulatory bodies.
emotional burden, psychosocial, RESCUE diabetes, type 1 diabetes, type 2 diabetes
Kelly, Ryan Charles
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Holt, Richard I.G.
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Desborough, Lane
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Majidi, Shideh
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Town, Marissa
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Naranjo, Diana
bdcea653-87a7-4e53-b3f8-7363de031851
Messer, Laurel
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Barnard, Ethan
6ce15db3-31a0-4dbf-a3cf-474ee148af75
Soderberg, Jeannette
847219e6-52fa-4358-ada4-6440755161e4
Barnard-Kelly, Katharine
8d016ab8-12db-43fd-82aa-e5678a5427bc
3 September 2023
Kelly, Ryan Charles
4aa49241-24e9-40d9-89b7-883617277110
Holt, Richard I.G.
d54202e1-fcf6-4a17-a320-9f32d7024393
Desborough, Lane
5ebd078b-0a6f-479d-9e14-6d3bf4b95113
Majidi, Shideh
5c3bc8ad-3275-435f-a1d7-d84f00722414
Town, Marissa
2b119872-f2c8-415f-888d-f1de88565cb2
Naranjo, Diana
bdcea653-87a7-4e53-b3f8-7363de031851
Messer, Laurel
b3d01e45-25d9-4070-b5de-d2fa7a040ef1
Barnard, Ethan
6ce15db3-31a0-4dbf-a3cf-474ee148af75
Soderberg, Jeannette
847219e6-52fa-4358-ada4-6440755161e4
Barnard-Kelly, Katharine
8d016ab8-12db-43fd-82aa-e5678a5427bc
Kelly, Ryan Charles, Holt, Richard I.G., Desborough, Lane, Majidi, Shideh, Town, Marissa, Naranjo, Diana, Messer, Laurel, Barnard, Ethan, Soderberg, Jeannette and Barnard-Kelly, Katharine
(2023)
The psychosocial burdens of living with diabetes.
Diabetic Medicine, [e15219].
(doi:10.1111/dme.15219).
Abstract
Aim: To better understand the prevalence of self-reported psychosocial burdens and the unmet needs identified by people with diabetes in relation to routine diabetes visits. Methods: An English language, online survey was distributed via social media, key stakeholder networks, charity and advocacy groups to adults with type 1 diabetes or type 2 diabetes. Survey items were designed by members of the FDA RESCUE Collaborative Community Governing Committee prior to pilot testing with potential participants. Descriptive statistical analyses were conducted, as well as thematic analyses on free-text responses using NVivo v14. Results: Four hundred and seventy-eight participants completed the survey: 373 (78%) had type 1 diabetes, 346 (73%) identified as a woman and 433 (91%) were white. Most participants had experienced self-reported (rather than diagnosed) anxiety and depression (n = 323 and n = 313, respectively), as well as fear of low blood sugars (n = 294), low mood (n = 290) and diabetes-related distress (n = 257). Sixty-eight percent reported that diabetes had negatively affected self-esteem, 62% reported the feelings of loneliness, but 93% reported that friends/family/work colleagues were supportive when needed. Two hundred and seventy-two percent (57%) reported that their diabetes team had never raised the topic of mental health. The overwhelming majority stated that the best thing their diabetes team could do to help was to simply ask about mental well-being, listen with empathy and without judgement, and practice skills to understand psychosocial issues in diabetes. Conclusion: Integrating psychosocial discussions and support within routine healthcare visits is crucial to improve outcomes for people with diabetes. Such a biopsychosocial model of healthcare has long been advocated by regulatory bodies.
Text
PWD Mental Health Survey Report revised in line with minor revisions requested 25th August 2023 clean version
- Accepted Manuscript
Restricted to Repository staff only until 31 August 2024.
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Accepted/In Press date: 31 August 2023
e-pub ahead of print date: 3 September 2023
Published date: 3 September 2023
Additional Information:
Publisher Copyright:
© 2023 Diabetes UK.
Keywords:
emotional burden, psychosocial, RESCUE diabetes, type 1 diabetes, type 2 diabetes
Identifiers
Local EPrints ID: 481649
URI: http://eprints.soton.ac.uk/id/eprint/481649
ISSN: 0742-3071
PURE UUID: 4f2c270c-c48c-4827-8927-8c4fb0e080bb
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Date deposited: 05 Sep 2023 16:52
Last modified: 18 Mar 2024 02:53
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Contributors
Author:
Ryan Charles Kelly
Author:
Lane Desborough
Author:
Shideh Majidi
Author:
Marissa Town
Author:
Diana Naranjo
Author:
Laurel Messer
Author:
Ethan Barnard
Author:
Jeannette Soderberg
Author:
Katharine Barnard-Kelly
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