A Parkinson care-coordinator may make a difference: a scoping review on multi-sectoral integrated care initiatives for people living with Parkinson’s disease and their caregivers
A Parkinson care-coordinator may make a difference: a scoping review on multi-sectoral integrated care initiatives for people living with Parkinson’s disease and their caregivers
Objective: to identify multi-sectoral integrated care initiatives for people with Parkinson's disease and caregivers.
Method: following the Matrix Method we created a synthesis of literature across methodological approaches. The search was conducted in four databases until June 2022, and included studies focusing on multi-sectoral integrated care initiatives, and how they helped people with Parkinson's disease and caregivers in everyday living.
Results: the search yielded 5921 articles of which nine were included. We identified four topics describing characteristics of multi-sectoral integrated care initiatives: 1) Peer-support, 2) Personalised care plan, 3) One-off initiatives limited in time and 4) Presence of a coordinator. And four topics describing how the initiatives helped in everyday living: 1) Confidence, trust and support, 2) Positive changes in health outcomes, 3) Quality of life, coping skills & psychosocial adjustment, and 4) A strengthened multi-agent collaboration and personalised assistance.
Conclusion: multi-sectoral integrated care initiatives should be ongoing offers, and include a Parkinson care-coordinator, who can enhance multi-sectoral communication and an individualised approach to information about resources responsive to evolving needs at different disease stages. Practice implications: Initiatives should be multidisciplinary, multi-sectoral and aimed at people with Parkinson's disease and caregivers, preferably facilitated by a care-coordinator to promote cross-sectoral communication.
Caregiver, Integrated care, Intervention, Multi-sectoral, Multidisciplinary, Parkinson's disease
Vester, Louise Buus
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Haahr, Anita
a10458a2-592d-4afa-adc6-ee562cb9929e
Nielsen, Tove Lise
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Bartolomeu, Sandra
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Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
19 August 2023
Vester, Louise Buus
93244ddf-234d-42d9-8ca1-2790efa0b55c
Haahr, Anita
a10458a2-592d-4afa-adc6-ee562cb9929e
Nielsen, Tove Lise
d65ab440-eeab-45b2-8113-5926492dea94
Bartolomeu, Sandra
52d30493-b841-443d-85a5-df78e7ae76ee
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Vester, Louise Buus, Haahr, Anita, Nielsen, Tove Lise, Bartolomeu, Sandra and Portillo, Mari Carmen
(2023)
A Parkinson care-coordinator may make a difference: a scoping review on multi-sectoral integrated care initiatives for people living with Parkinson’s disease and their caregivers.
Patient Education and Counseling, 116, [107931].
(doi:10.1016/j.pec.2023.107931).
Abstract
Objective: to identify multi-sectoral integrated care initiatives for people with Parkinson's disease and caregivers.
Method: following the Matrix Method we created a synthesis of literature across methodological approaches. The search was conducted in four databases until June 2022, and included studies focusing on multi-sectoral integrated care initiatives, and how they helped people with Parkinson's disease and caregivers in everyday living.
Results: the search yielded 5921 articles of which nine were included. We identified four topics describing characteristics of multi-sectoral integrated care initiatives: 1) Peer-support, 2) Personalised care plan, 3) One-off initiatives limited in time and 4) Presence of a coordinator. And four topics describing how the initiatives helped in everyday living: 1) Confidence, trust and support, 2) Positive changes in health outcomes, 3) Quality of life, coping skills & psychosocial adjustment, and 4) A strengthened multi-agent collaboration and personalised assistance.
Conclusion: multi-sectoral integrated care initiatives should be ongoing offers, and include a Parkinson care-coordinator, who can enhance multi-sectoral communication and an individualised approach to information about resources responsive to evolving needs at different disease stages. Practice implications: Initiatives should be multidisciplinary, multi-sectoral and aimed at people with Parkinson's disease and caregivers, preferably facilitated by a care-coordinator to promote cross-sectoral communication.
Text
PEC-23-497_R3 (5)
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Restricted to Repository staff only until 19 August 2024.
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Accepted/In Press date: 2 August 2023
e-pub ahead of print date: 9 August 2023
Published date: 19 August 2023
Additional Information:
Funding Information:
The study was funded under The EU Joint Programme for Neurodegenerative Research (JPND) , by Innovation Fund Denmark , The Norwegian Research Council (project No. 299762 ), and The Alzheimer’s Society , UK. The funding bodies had no role in neither study design, data collection, analysis, interpretation of data or writing the manuscript.
Keywords:
Caregiver, Integrated care, Intervention, Multi-sectoral, Multidisciplinary, Parkinson's disease
Identifiers
Local EPrints ID: 482190
URI: http://eprints.soton.ac.uk/id/eprint/482190
ISSN: 0738-3991
PURE UUID: 1c1bd26e-a3fe-4c5b-b9f3-0b0e472a220c
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Date deposited: 20 Sep 2023 16:52
Last modified: 18 Mar 2024 03:31
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Contributors
Author:
Louise Buus Vester
Author:
Anita Haahr
Author:
Tove Lise Nielsen
Author:
Sandra Bartolomeu
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