Participant-generated timelines: a participatory tool to explore young people with chronic pain and parents’ narratives of their healthcare experiences
Participant-generated timelines: a participatory tool to explore young people with chronic pain and parents’ narratives of their healthcare experiences
Visual methods are becoming more evident in health research. Timeline drawings have been used as a participatory tool alongside interviews in life course research. In this article, we describe how a method involving timeline generation can explore patient experiences along a treatment continuum. Grounded in previously published evidence and using specific examples from two studies exploring the experiences of young people treated for chronic pain, we outline the key components of this method. Moreover, we highlight the flexibility of its application and the importance of using a person-centered approach in tailoring the application pragmatically to study population-specific needs and characteristics, while answering the research question. We also reflect on how the dynamic visual display of the timeline and participants’ explanations add perspective and understanding to complex and multidimensional human experiences associated with healthcare treatment. Furthermore, we outline how this method can help capture changes in the meaning and sense-making of these experiences over time, all the while fostering empowerment in study participants. Finally, the key considerations of using the method are outlined. It is our aim that this article provides the details required to inspire others to consider this novel method as a means of capturing the healthcare experiences of young people with other chronic conditions, an important first step in fostering the changes required to improve the quality of healthcare services and research.
participatory approaches, timelines, visual methods, young people with chronic pain
931-944
Hurtubise, Karen
d0d948dd-4492-4064-916e-6c4375fbc1eb
Joslin, Rhiannon
2724bff5-4248-43db-b2d5-47bc10c1033e
September 2023
Hurtubise, Karen
d0d948dd-4492-4064-916e-6c4375fbc1eb
Joslin, Rhiannon
2724bff5-4248-43db-b2d5-47bc10c1033e
Hurtubise, Karen and Joslin, Rhiannon
(2023)
Participant-generated timelines: a participatory tool to explore young people with chronic pain and parents’ narratives of their healthcare experiences.
Qualitative Health Research, 33 (11), .
(doi:10.1177/10497323231189388).
Abstract
Visual methods are becoming more evident in health research. Timeline drawings have been used as a participatory tool alongside interviews in life course research. In this article, we describe how a method involving timeline generation can explore patient experiences along a treatment continuum. Grounded in previously published evidence and using specific examples from two studies exploring the experiences of young people treated for chronic pain, we outline the key components of this method. Moreover, we highlight the flexibility of its application and the importance of using a person-centered approach in tailoring the application pragmatically to study population-specific needs and characteristics, while answering the research question. We also reflect on how the dynamic visual display of the timeline and participants’ explanations add perspective and understanding to complex and multidimensional human experiences associated with healthcare treatment. Furthermore, we outline how this method can help capture changes in the meaning and sense-making of these experiences over time, all the while fostering empowerment in study participants. Finally, the key considerations of using the method are outlined. It is our aim that this article provides the details required to inspire others to consider this novel method as a means of capturing the healthcare experiences of young people with other chronic conditions, an important first step in fostering the changes required to improve the quality of healthcare services and research.
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hurtubise-joslin-2023-participant-generated-timelines-a-participatory-tool-to-explore-young-people-with-chronic-pain
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e-pub ahead of print date: 4 August 2023
Published date: September 2023
Additional Information:
Funding Information:
The Chartered Society of Physiotherapy, Private Physiotherapy Fund, and Association of Paediatric Chartered Physiotherapists, UK, supported the educational fees of Rhiannon Joslin. At the time of this submission, the Canadian Institute for Health Research Post-Doctoral Fellowship Award was supporting Karen Hurtubise. We wish to express our sincerest gratitude to the young people and the parent advisors who took us on this journey of discovery of a novel method and for their counsel along the way. Finally, we would like to thank Dr. Line Caes, Dr. Abbie Jordon, Dr. Melanie Noel and Dr. Jo White who introduced us to this method.
Publisher Copyright:
© The Author(s) 2023.
Keywords:
participatory approaches, timelines, visual methods, young people with chronic pain
Identifiers
Local EPrints ID: 482635
URI: http://eprints.soton.ac.uk/id/eprint/482635
ISSN: 1049-7323
PURE UUID: 2625f9ef-c60a-4597-9e7e-ed336c7bc81f
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Date deposited: 11 Oct 2023 16:42
Last modified: 18 Mar 2024 04:09
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Author:
Karen Hurtubise
Author:
Rhiannon Joslin
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