Participant ID
Consent box ticked
Caregiver gender
Caregiver age (In years)
Caregiver ethnicity first
Caregiver ethnicity second
Caregiver ethnicity
Caregiver previous therapy, counselling or psychological support (yes/no)
ABI patient gender
ABI patient age
ABI patient ethnicity
Type of injury/diagnosis
Type of injury/diagnosis - Other (Please state) - Text
Time since injury/diagnosis (In years/months, e.g. 1 year 3 months)
6. Who is currently involved in their day-to-day care (Please select all that apply)? - Selected Choice Me
6. Who is currently involved in their day-to-day care (Please select all that apply)? - Selected Choice Other family members
6. Who is currently involved in their day-to-day care (Please select all that apply)? - Selected Choice Friends
6. Who is currently involved in their day-to-day care (Please select all that apply)? - Selected Choice Neighbours
6. Who is currently involved in their day-to-day care (Please select all that apply)? - Selected Choice Paid carers
6. Who is currently involved in their day-to-day care (Please select all that apply)? - Selected Choice Healthcare professionals
6. Who is currently involved in their day-to-day care (Please select all that apply)? - Selected Choice Other (please state)
6. Who is currently involved in their day-to-day care (Please select all that apply)? - Other (please state) - Text
Other caregivers involved in providing care
Length of relationship to spouse or partner (In years and months)
Length of relationship years
Length of relationship months
Type of relationship to person with ABI
Current living situation with spouse or partner
HPLP-Q1. Discuss my problems and concerns with people close to me.
HPLP-Q2. Choose a diet low in fat, saturated fat, and cholesterol.
HPLP-Q3. Report any unusual signs or symptoms to a physician or other health professional.
HPLP-Q4. Follow a planned exercise program.
HPLP-Q5. Get enough sleep.
HPLP-Q6. Feel I am growing and changing in positive ways.
HPLP-Q7. Praise other people easily for their achievements.
HPLP-Q8. Limit use of sugars and food containing sugar (sweets).
HPLP-Q9. Read or watch TV programs about improving health.
HPLP-Q10. Exercise vigorously for 20 or more minutes at least three times a week (such as brisk walking, bicycling, aerobic dancing, using a stair climber).
HPLP-Q11. Take some time for relaxation each day.
HPLP-Q12. Believe that my life has purpose.
HPLP-Q13. Maintain meaningful and fulfilling relationships with others.
HPLP-Q14. Eat 6-11 servings of bread, cereal, rice and pasta each day.
HPLP-Q15. Question health professionals in order to understand their instructions.
HPLP-Q16. Take part in light to moderate physical activity (such as sustained walking 30-40 minutes 5 or more times a week).
HPLP-Q17. Accept those things in my life which I cannot change.
HPLP-Q18. Look forward to the future.
HPLP-Q19. Spend time with close friends.
HPLP-Q20. Eat 2-4 servings of fruit each day.
HPLP-Q21. Get a second opinion when I question my health care provider's advice.
HPLP-Q22. Take part in leisure-time (recreational) physical activities (such as swimming, dancing, bicycling).
HPLP-Q23. Concentrate on pleasant thoughts at bedtime.
HPLP-Q24. Feel content and at peace with myself.
HPLP-Q25. Find it easy to show concern, love and warmth to others.
HPLP-Q26. Eat 3-5 servings of vegetables each day.
HPLP-Q27. Discuss my health concerns with health professionals.
HPLP-Q28. Do stretching exercises at least 3 times per week.
HPLP-Q29. Use specific methods to control my stress.
HPLP-Q30. Work toward long-term goals in my life.
HPLP-Q31. Touch and am touched by people I care about.
HPLP-Q32. Eat 2-3 servings of milk, yogurt or cheese each day.
HPLP-Q33. Inspect my body at least monthly for physical changes/danger signs.
HPLP-Q34. Get exercise during usual daily activities (such as walking during lunch, using stairs instead of elevators, parking car away from destination and walking).
HPLP-Q35. Balance time between work and play.
HPLP-Q36. Find each day interesting and challenging.
HPLP-Q37. Find ways to meet my needs for intimacy.
HPLP-Q38. Eat only 2-3 servings from the meat, poultry, fish, dried beans, eggs, and nuts group each day.
HPLP-Q39. Ask for information from health professionals about how to take good care of myself.
HPLP-Q40. Check my pulse rate when exercising.
HPLP-Q41. Practice relaxation or meditation for 15-20 minutes daily.
HPLP-Q42. Am aware of what is important to me in life.
HPLP-Q43. Get support from a network of caring people.
HPLP-Q44. Read labels to identify nutrients, fats, and sodium content in packaged food.
HPLP-Q45. Attend educational programs on personal health care.
HPLP-Q46. Reach my target heart rate when exercising.
HPLP-Q47. Pace myself to prevent tiredness.
HPLP-Q48. Feel connected with some force greater than myself.
HPLP-Q49. Settle conflicts with others through discussion and compromise.
HPLP-Q50. Eat breakfast.
HPLP-Q51. Seek guidance or counselling when necessary.
HPLP-Q52. Expose myself to new experiences and challenges.
Total HPLP Score
Intention Q1. In the next month, if needed, I will engage in behaviours to look after my own health, e.g., attending medical appointments, contacting my GP to discuss a health concern.
Intention Q2. In the next month I intend to engage in physical activity, e.g., walking, running, cycling, yoga, stretching, swimming etc.
Intention Q5. In the next month, I intend to connect with other people, e.g., spending quality time with other friends and family members.
Total Intention Score
Attitudes Q1. Engaging in self-care is… - 6. Valuable:Worthless
Attitudes Q2. Engaging in self-care is… - 7. Harmful:Beneficial
Attitudes Q3. Engaging in self-care is… - 8. Enjoyable:Unejoyable
Attitudes Q4. Engaging in self-care is… - 9. Pleasant:Unpleasant
Attitudes Q5. Engaging in self-care is… - 10. Good:Bad
Total Attitude Score
SNs Q1. My friends and family think that self-care is important.
SNs Q2. My friends and family engage in self-care behaviour.
SNs Q3. If I engaged in self-care every day, my friends and family would approve.
SNs Q4. People whose opinions I value would say that self-care is necessary.
SNs Q5. It is expected of me that I will engage in self-care to look after myself.
Total Subjective Norms Score
PBC Q1. If I wanted to, I could engage in self-care behaviours in the next month.
PBC Q2. Engaging in self-care regularly is…
PBC Q3. Engaging in self-care behaviours would be easy.
PBC Q4. It is mostly up to me whether I engage in self-care behaviours.
PBC Q5. I have control over whether I engage in self-care behaviours.
Total Percieved Behavioural Control Score
Guilt Q1. I have felt bad about having made some plan or done some activity without taking my relative into account
Guilt Q2. I have felt guilty about the way I’ve sometimes behaved with my relative
Guilt Q3. I have felt bad for not looking after my other relatives (husband, wife, children . . .) as I should, due to my caregiving
Guilt Q4. I have felt bad about not being able to devote more time to my family (husband, wife, children . . .), due to my caregiving
Guilt Q5. I have thought that I’m not doing things right with the person I’m caring for
Guilt Q6. I have thought that, given the circumstances, I’m doing a good job as a caregiver
Guilt Q7. When I’ve gone out to do some pleasant activity (e.g. eating out in a restaurant), I’ve felt guilty and unable to stop thinking that I should be caring for my relative
Guilt Q8. I have felt bad about things I may have done wrong with the person I’m caring for
Guilt Q9. I have thought that perhaps I’m not caring well for my relative
Guilt Q10. I have felt bad about getting angry with the person I’m caring for
Guilt Q11. I have felt bad about telling off the person I’m caring for, for some reason
Guilt Q12. I’ve got angry with myself for having negative feelings toward the person I’m caring for
Guilt Q13. I’ve found myself thinking that I’m not up to the job
Guilt Q14. I have felt bad about not having more patience with the person I’m caring for
Guilt Q15. I have felt bad about leaving my relative in the care of someone else while I do my own things (e.g., work, shopping, going to the doctor)
Guilt Q16. I have felt bad for leaving my relative in the care of someone else while I had fun
Guilt Q17. I have felt guilty about having wished that others “could have this burden” or suffer as I do
Guilt Q18. I have felt like a bad person for hating and/or envying other relatives who could have taken responsibility for some caring and do not do so
Guilt Q19. I have felt bad for having negative feelings (e.g., hate, anger or resentment) toward some relatives
Guilt Q20. I have felt guilty about having so many negative emotions in relation to caring
Guilt Q21. I have thought that the way I care for my relative may not be appropriate and may make his/her problem get worse
Guilt Q22. I have felt guilty thinking that my lack of information and preparedness might mean that I’m not handling the care of my relative in the best way possible
Total Guilt Score
VO Q1. I spent a lot of time thinking about the past or future, rather than being engaged in activities that mattered to me
VO Q2. I was basically on “auto-pilot” most of the time
VO Q3. Difficult thoughts, feelings or memories got in the way of what I really wanted to do
VO Q4. When things didn’t go according to plan, I gave up easily
VO Q5. It seemed like I was just “going through the motions”, rather than focusing on what was important to me
Total Value Obstruction Score
VP Q1. I worked towards my goals even if I didn’t feel motivated to
VP Q2. I was proud about how I lived my life
VP Q3. I made progress in areas of my life that I care most about
VP Q4. I continued to get better at being the kind of person I want to be
VP Q5. I felt like I had a purpose in life