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The experiences of fathers who have a child with autism spectrum disorder: from birth to adulthood

The experiences of fathers who have a child with autism spectrum disorder: from birth to adulthood
The experiences of fathers who have a child with autism spectrum disorder: from birth to adulthood

Purpose: the purpose of this study is to explore fathers’ experiences of raising a child with autism spectrum disorder (ASD), taking into consideration how this experience fluctuates as their child develops from infancy to adulthood.

Design/methodology/approach: semi-structured interviews were used to investigate the experiences of fathers who have a young adult with ASD. Seven fathers participated in this study. Data was analysed using thematic analysis.

Findings: four themes were identified, these were: ubiquitous impact, divergent support, impeding factors and facilitating factors. 

Practical implications: findings from this study highlighted the pervasive impacts of having a child with ASD. This study highlighted the need to educate health-care professionals, the general public and prospective fathers. Creating “dads groups” could help to direct fathers towards other people who understand their situation. Finally, trialling methods to accelerate fathers’ acceptance, such as acceptance and commitment therapy (ACT), could help to reduce psychological stress. 

Originality/value: to date, most research largely focusses on mothers’ experiences, as mothers are typically seen as the primary caregiver. Previous research also tends to focus on the earlier years of life. This research addresses the often-overlooked topic of fathers’ experiences, investigating their experience of having a child with ASD from birth through to adulthood.

Autism spectrum disorder, Fathers, Life experience, Qualitative research, Young adult
2056-3868
Dewey, Katherine
820b78c1-c609-49aa-9750-47f0325ff4ef
Hodgkinson, Melanie
72964a09-0d9c-4941-91ee-a37d33a81d7b
Dewey, Katherine
820b78c1-c609-49aa-9750-47f0325ff4ef
Hodgkinson, Melanie
72964a09-0d9c-4941-91ee-a37d33a81d7b

Dewey, Katherine and Hodgkinson, Melanie (2022) The experiences of fathers who have a child with autism spectrum disorder: from birth to adulthood. Advances in Autism, 8 (1). (doi:10.1108/AIA-01-2021-0001).

Record type: Article

Abstract

Purpose: the purpose of this study is to explore fathers’ experiences of raising a child with autism spectrum disorder (ASD), taking into consideration how this experience fluctuates as their child develops from infancy to adulthood.

Design/methodology/approach: semi-structured interviews were used to investigate the experiences of fathers who have a young adult with ASD. Seven fathers participated in this study. Data was analysed using thematic analysis.

Findings: four themes were identified, these were: ubiquitous impact, divergent support, impeding factors and facilitating factors. 

Practical implications: findings from this study highlighted the pervasive impacts of having a child with ASD. This study highlighted the need to educate health-care professionals, the general public and prospective fathers. Creating “dads groups” could help to direct fathers towards other people who understand their situation. Finally, trialling methods to accelerate fathers’ acceptance, such as acceptance and commitment therapy (ACT), could help to reduce psychological stress. 

Originality/value: to date, most research largely focusses on mothers’ experiences, as mothers are typically seen as the primary caregiver. Previous research also tends to focus on the earlier years of life. This research addresses the often-overlooked topic of fathers’ experiences, investigating their experience of having a child with ASD from birth through to adulthood.

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e-pub ahead of print date: 21 May 2021
Published date: 3 January 2022
Keywords: Autism spectrum disorder, Fathers, Life experience, Qualitative research, Young adult

Identifiers

Local EPrints ID: 484619
URI: http://eprints.soton.ac.uk/id/eprint/484619
ISSN: 2056-3868
PURE UUID: 945f0e91-0b7a-4f72-a09f-5e1e776783db

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Date deposited: 17 Nov 2023 18:08
Last modified: 16 Mar 2024 12:38

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Author: Katherine Dewey

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