The challenges and opportunities of mental health data sharing in the UK

e-pub ahead of print date: 24 May 2021

Published date: 24 May 2021

Additional Information: Funding Information: SMc reports institutional funding from NHS Digital, outside of this Comment. TN-D reports that they are an author of the Mental Health of Children and Young People in England 2020 Survey report and has two applications submitted to NHS Digital for access to survey data. JDM reports grants from the National Institute for Health Research (NIHIR), the Economic and Social Research Council (ESRC), and the Health Foundation, outside of this Comment. PBJ reports salary support from the Higher Education Funding Council through the University of Cambridge and from the NHS. TFol reports employment by NHS Digital, outside of this Comment. All other authors declare no competing interests. KLM is funded by the NIHR Oxford Health NHS Foundation Trust Biomedical Research Centre. JDM is partly supported by the ESRC Centre for Society and Mental Health at King's College London (ESRC reference ES/S012567/1), a jointly funded clinical fellowship from the Health Foundation and Academy of Medical Sciences, and the NIHR Applied Research Collaboration South London at King's College Hospital NHS Foundation Trust. JD and JDM are partly supported by the NIHR Biomedical Research Centre at South London and Maudsley NHS Foundation Trust. MF was funded by the NIHR Applied Research Collaboration Oxford and Thames Valley at Oxford Health NHS Foundation Trust. AR is supported by an NIHR advanced fellowship (NIHR300591). KF received funding from Place2Be, Research England's Strategic Priorities Fund, and the ESRC postdoctoral fellowship scheme (ES/V011936/1). AJ is funded by MQ and the Medical Research Council. TN-D is supported by an NIHR advanced fellowship (NIHR300056). The views expressed in this Comment are those of the authors and not necessarily those of the NIHR, the ESRC, the Department of Health and Social Care, or NHS Digital. We are grateful for MQ's support in organising the series of teleconferences and workshops that resulted in the content of this Comment. In particular, we thank Eva Wölbert and Peter B Jones for facilitating the workshop, Sarah Shenow for supporting the survey of researchers' experiences and helping to refine the implementation actions required in the sector, Abigail Russell for leading the survey, Taj Sallamuddin for his advice on the impact of the GDPR on delays in accessing data and for improving figure 1 in our appendix , and our contacts at NHS Digital for supporting the workshop and providing invaluable comments and advice.

Local EPrints ID: 484948

URI: http://eprints.soton.ac.uk/id/eprint/484948

DOI: doi:10.1016/S2589-7500(21)00078-9

ISSN: 2589-7500

PURE UUID: 2a41f176-07c7-4fe4-9a05-6b6ecf983537

ORCID for Graham Moon: orcid.org/0000-0002-7256-8397

Date deposited: 24 Nov 2023 18:05

Last modified: 18 Mar 2024 03:05