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National priority setting partnership using a Delphi consensus process to develop neonatal research questions suitable for practice-changing randomised trials in the United Kingdom

National priority setting partnership using a Delphi consensus process to develop neonatal research questions suitable for practice-changing randomised trials in the United Kingdom
National priority setting partnership using a Delphi consensus process to develop neonatal research questions suitable for practice-changing randomised trials in the United Kingdom
Introduction: methodologically robust clinical trials are required to improve neonatal care and reduce unwanted variations in practice. Previous neonatal research prioritisation processes have identified important research themes rather than specific research questions amenable to clinical trials. Practice-changing trials require well-defined research questions, commonly organised using the Population, Intervention, Comparison, Outcome (PICO) structure. By narrowing the scope of research priorities to those which can be answered in clinical trials and by involving a wide range of different stakeholders, we aim to provide a robust and transparent process to identify and prioritise research questions answerable within the National Healthcare System to inform future practice-changing clinical trials.

Methods and analysis: a steering group comprising parents, doctors, nurses, allied health professionals, researchers and representatives from key organisations (Neonatal Society, British Association of Perinatal Medicine, Neonatal Nurses Association and Royal College of Paediatrics and Child Health) was identified to oversee this project. We will invite submissions of research questions formatted using the PICO structure from the following stakeholder groups using an online questionnaire: parents, patients, healthcare professionals and academic researchers. Unanswered, non-duplicate research questions will be entered into a three-round eDelphi survey of all stakeholder groups. Research questions will be ranked by mean aggregate scores.

Ethics and dissemination: the final list of prioritised research questions will be disseminated through traditional academic channels, directly to key stakeholder groups through representative organisations and on social media. The outcome of the project will be shared with key research organisations such as the National Institute for Health Research. Research ethics committee approval is not required.
Academies and Institutes, Consensus, Delphi Technique, Female, Health Priorities, Humans, Infant, Newborn, Pregnancy, Randomized Controlled Trials as Topic, Surveys and Questionnaires, United Kingdom
2044-6055
Evans, Katie
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Battersby, Cheryl
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Boardman, James P.
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Boyle, Elaine M.
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Carroll, William D.
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Dinwiddy, Kate
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Dorling, Jon
e55dcb9a-a798-41a1-8753-9e9ff8aab630
Gallagher, Katie
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Hardy, Pollyanna
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Johnston, Emma
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Mactier, Helen
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Marcroft, Claire
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Webbe, James
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Gale, Chris
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Evans, Katie
db9c381e-0cf5-461d-a6a1-b79b50cc9e41
Battersby, Cheryl
24ba455f-7f54-427c-8732-3007926ee5ce
Boardman, James P.
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Boyle, Elaine M.
0a18aac0-3ba2-4463-a07c-f5957ed4ceb7
Carroll, William D.
090fbad9-03fd-4c7a-8b91-fae6ad2c2bcf
Dinwiddy, Kate
70987b9f-9cb9-4bb2-89d0-3d56ee5d3752
Dorling, Jon
e55dcb9a-a798-41a1-8753-9e9ff8aab630
Gallagher, Katie
e8e964db-e6bd-468a-bf68-f35e3fd0d7bb
Hardy, Pollyanna
6a9c6df8-9e5b-4300-8fc7-03fed7b390bd
Johnston, Emma
850eeb51-7d5c-41f3-8a8a-1660d9a7ca76
Mactier, Helen
eb1043b6-9fa4-491e-861c-2491db247225
Marcroft, Claire
c7ce010c-e716-49d6-87c3-3fc7fd87eb11
Webbe, James
ba5ee6a5-9595-405c-b157-1743fc693f03
Gale, Chris
210b7c81-9a39-460a-9ab3-54fe92a69f8e

Evans, Katie, Battersby, Cheryl, Boardman, James P., Boyle, Elaine M., Carroll, William D., Dinwiddy, Kate, Dorling, Jon, Gallagher, Katie, Hardy, Pollyanna, Johnston, Emma, Mactier, Helen, Marcroft, Claire, Webbe, James and Gale, Chris (2022) National priority setting partnership using a Delphi consensus process to develop neonatal research questions suitable for practice-changing randomised trials in the United Kingdom. BMJ Open, 12 (9), [e061330]. (doi:10.1136/bmjopen-2022-061330).

Record type: Article

Abstract

Introduction: methodologically robust clinical trials are required to improve neonatal care and reduce unwanted variations in practice. Previous neonatal research prioritisation processes have identified important research themes rather than specific research questions amenable to clinical trials. Practice-changing trials require well-defined research questions, commonly organised using the Population, Intervention, Comparison, Outcome (PICO) structure. By narrowing the scope of research priorities to those which can be answered in clinical trials and by involving a wide range of different stakeholders, we aim to provide a robust and transparent process to identify and prioritise research questions answerable within the National Healthcare System to inform future practice-changing clinical trials.

Methods and analysis: a steering group comprising parents, doctors, nurses, allied health professionals, researchers and representatives from key organisations (Neonatal Society, British Association of Perinatal Medicine, Neonatal Nurses Association and Royal College of Paediatrics and Child Health) was identified to oversee this project. We will invite submissions of research questions formatted using the PICO structure from the following stakeholder groups using an online questionnaire: parents, patients, healthcare professionals and academic researchers. Unanswered, non-duplicate research questions will be entered into a three-round eDelphi survey of all stakeholder groups. Research questions will be ranked by mean aggregate scores.

Ethics and dissemination: the final list of prioritised research questions will be disseminated through traditional academic channels, directly to key stakeholder groups through representative organisations and on social media. The outcome of the project will be shared with key research organisations such as the National Institute for Health Research. Research ethics committee approval is not required.

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Accepted/In Press date: 15 September 2022
e-pub ahead of print date: 28 September 2022
Keywords: Academies and Institutes, Consensus, Delphi Technique, Female, Health Priorities, Humans, Infant, Newborn, Pregnancy, Randomized Controlled Trials as Topic, Surveys and Questionnaires, United Kingdom

Identifiers

Local EPrints ID: 484990
URI: http://eprints.soton.ac.uk/id/eprint/484990
ISSN: 2044-6055
PURE UUID: ae918c76-f8c8-4fc8-92d8-dd50e75323e8
ORCID for Jon Dorling: ORCID iD orcid.org/0000-0002-1691-3221

Catalogue record

Date deposited: 27 Nov 2023 17:56
Last modified: 18 Mar 2024 04:16

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Contributors

Author: Katie Evans
Author: Cheryl Battersby
Author: James P. Boardman
Author: Elaine M. Boyle
Author: William D. Carroll
Author: Kate Dinwiddy
Author: Jon Dorling ORCID iD
Author: Katie Gallagher
Author: Pollyanna Hardy
Author: Emma Johnston
Author: Helen Mactier
Author: Claire Marcroft
Author: James Webbe
Author: Chris Gale

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