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The development and validation of population clusters for integrating health and social care: a protocol for a mixed-methods study in Multiple Long-Term Conditions (Cluster-AIM)

The development and validation of population clusters for integrating health and social care: a protocol for a mixed-methods study in Multiple Long-Term Conditions (Cluster-AIM)
The development and validation of population clusters for integrating health and social care: a protocol for a mixed-methods study in Multiple Long-Term Conditions (Cluster-AIM)
Background: multiple long-term health conditions (Multimorbidity) (MLTC-M) are increasingly prevalent and associated with high rates of morbidity, mortality and health-care expenditure. Strategies to tackle this have primarily focused on addressing biological aspects of disease, but MLTC-M are also the result of and associated with additional psycho-social, economic and environmental barriers. A shift towards more personalised, holistic and integrated care could be effective. This could be made more efficient by identifying groups of the population based on their health and social need. These will, in turn, contribute to evidence-based solutions supporting delivery of interventions tailored to address the needs pertinent to each cluster. Evidence is needed on how to generate clusters based on health and social need and to quantify the impact of clusters on long-term health and costs.

Objective: to develop and validate population clusters that consider determinants of health and social care need for people with MLTC-M using data-driven ML(machine-learning) methods compared to expert-driven approaches within primary care national databases, followed by evaluation of cluster trajectories and their association with health outcomes and costs.

Methods: a mixed-methods programme of work with parallel work streams including; 1) Qualitative semi-structured interview study exploring patient, carer and professional views on clinical and socio-economic factors influencing experiences of living with, or seeking care in MLTC-M, 2) Modified Delphi with relevant stakeholders to generate variables on health and social (wider) determinants and to examine feasibility of including these variables within existing primary care databases and 3) Cohort study with expert driven segmentation, alongside data-driven algorithms. Outputs will be compared, clusters characterised and trajectories over time examined, to quantify associations with mortality, additional long-term conditions, worsening frailty, disease severity and ten-year health/social care costs.

Results: the study will commence in October 2021 and is expected to be completed by October 2023.

Conclusions: by studying MLTC-M clusters we will assess how more personalised care can be developed, accurate costs provided, better understand the personal and medical profiles and environment of individuals within each cluster. Integrated care that considers the ‘whole person’ and their environment is essential in addressing the complex, diverse and individual needs of people living with MLTC-M. Clinical Trial: Not applicable
Dambha-Miller, Hajira
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Simpson, Glenn W.
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Akyea, Ralph K.
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Hounkpatin, Hilda
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Morrison, Leanne
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Gibson, Jon
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Stokes, Jonathan
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Islam, Nazrul
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Chapman, Adriane
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Stuart, Beth
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Zaccardi, Francesco
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Jones, Karen
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Roderick, Paul
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Boniface, Michael
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Santer, Miriam
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Farmer, Andrew
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et al.
Dambha-Miller, Hajira
58961db5-31aa-460e-9394-08590c4b7ba1
Simpson, Glenn W.
802b50d9-aa00-4cca-9eaf-238385f8481c
Akyea, Ralph K.
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Hounkpatin, Hilda
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Morrison, Leanne
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Gibson, Jon
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Stokes, Jonathan
fc92a200-ceb0-4eb6-b886-b61d2119a9b5
Islam, Nazrul
e5345196-7479-438f-b4f6-c372d2135586
Chapman, Adriane
721b7321-8904-4be2-9b01-876c430743f1
Stuart, Beth
a51c80d3-5855-4672-b24f-8c65fd2e1444
Zaccardi, Francesco
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Jones, Karen
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Roderick, Paul
dbb3cd11-4c51-4844-982b-0eb30ad5085a
Boniface, Michael
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Santer, Miriam
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Farmer, Andrew
cfd4b749-4fe8-4bcc-879b-a4d9aa7f9b2e

[Unknown type: UNSPECIFIED]

Record type: UNSPECIFIED

Abstract

Background: multiple long-term health conditions (Multimorbidity) (MLTC-M) are increasingly prevalent and associated with high rates of morbidity, mortality and health-care expenditure. Strategies to tackle this have primarily focused on addressing biological aspects of disease, but MLTC-M are also the result of and associated with additional psycho-social, economic and environmental barriers. A shift towards more personalised, holistic and integrated care could be effective. This could be made more efficient by identifying groups of the population based on their health and social need. These will, in turn, contribute to evidence-based solutions supporting delivery of interventions tailored to address the needs pertinent to each cluster. Evidence is needed on how to generate clusters based on health and social need and to quantify the impact of clusters on long-term health and costs.

Objective: to develop and validate population clusters that consider determinants of health and social care need for people with MLTC-M using data-driven ML(machine-learning) methods compared to expert-driven approaches within primary care national databases, followed by evaluation of cluster trajectories and their association with health outcomes and costs.

Methods: a mixed-methods programme of work with parallel work streams including; 1) Qualitative semi-structured interview study exploring patient, carer and professional views on clinical and socio-economic factors influencing experiences of living with, or seeking care in MLTC-M, 2) Modified Delphi with relevant stakeholders to generate variables on health and social (wider) determinants and to examine feasibility of including these variables within existing primary care databases and 3) Cohort study with expert driven segmentation, alongside data-driven algorithms. Outputs will be compared, clusters characterised and trajectories over time examined, to quantify associations with mortality, additional long-term conditions, worsening frailty, disease severity and ten-year health/social care costs.

Results: the study will commence in October 2021 and is expected to be completed by October 2023.

Conclusions: by studying MLTC-M clusters we will assess how more personalised care can be developed, accurate costs provided, better understand the personal and medical profiles and environment of individuals within each cluster. Integrated care that considers the ‘whole person’ and their environment is essential in addressing the complex, diverse and individual needs of people living with MLTC-M. Clinical Trial: Not applicable

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Published date: 21 October 2021

Identifiers

Local EPrints ID: 488659
URI: http://eprints.soton.ac.uk/id/eprint/488659
PURE UUID: dd01ae49-1762-4e89-acfe-958d43388f42
ORCID for Hajira Dambha-Miller: ORCID iD orcid.org/0000-0003-0175-443X
ORCID for Glenn W. Simpson: ORCID iD orcid.org/0000-0002-1753-942X
ORCID for Hilda Hounkpatin: ORCID iD orcid.org/0000-0002-1360-1791
ORCID for Leanne Morrison: ORCID iD orcid.org/0000-0002-9961-551X
ORCID for Nazrul Islam: ORCID iD orcid.org/0000-0003-3982-4325
ORCID for Adriane Chapman: ORCID iD orcid.org/0000-0002-3814-2587
ORCID for Paul Roderick: ORCID iD orcid.org/0000-0001-9475-6850
ORCID for Michael Boniface: ORCID iD orcid.org/0000-0002-9281-6095
ORCID for Miriam Santer: ORCID iD orcid.org/0000-0001-7264-5260

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Date deposited: 04 Apr 2024 16:32
Last modified: 10 Apr 2024 02:10

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Contributors

Author: Ralph K. Akyea
Author: Leanne Morrison ORCID iD
Author: Jon Gibson
Author: Jonathan Stokes
Author: Nazrul Islam ORCID iD
Author: Adriane Chapman ORCID iD
Author: Beth Stuart
Author: Francesco Zaccardi
Author: Karen Jones
Author: Paul Roderick ORCID iD
Author: Miriam Santer ORCID iD
Author: Andrew Farmer
Corporate Author: et al.

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