Towards standardisation of adult person-reported outcome domains in diabetes research: Consensus Statement Development Panel

Accepted/In Press date: 9 April 2024

Additional Information: Full list of authors: Katharine Barnard-Kelly, PhD, CPsychol, AFBPsS, BHR Ltd, 42 Kilmiston Drive, Fareham, Hampshire, PO16 8EG, UK, +44 7590 532866, katharinebarnard@bhrltd.com, ORCID: 0000-0002-3888-3123 David Marrero, PhD, dgmarrero@arizona.edu Maartje de Wit, PhD, Amsterdam UMC, m.dewit@amsterdamumc.nl. Frans Pouwer, PhD, 1) Department of Psychology, University of Southern Denmark, Odense, Denmark; 2) Steno Diabetes Center Odense, Odense, Denmark 3) Department of Medical Psychology, Amsterdam UMC, Amsterdam, fpouwer@health.sdu.dk Kamlesh Khunti, CBE, FRCGP, FRCP, MD, PhD, FMedSci, LLD, University of Leicester, , Leicester, KK22@leicester.ac.uk, ORCID: 0000-0003-2343-7099 Norbert Hermans, PhD, Research Institute of the Diabetes Academy Mergentheim (FIDAM), Germany, hermanns@fidam.de, ORCID: 0000-0002-2903-2677 Jessica S. Pierce, PhD, Center for Healthcare Delivery Science, Nemours Children’s Hospital, , Orlando, USA, 407-650-7508, jessica.pierce@nemours.org Lori Laffel, MD, MPH, Joslin Diabetes Center lori.laffel@joslin.harvard.edu Richard IG Holt, PhD, University of Southampton, , Southampton, R.I.G.Holt@soton.ac.uk Tadej Battelino, MD, University Medical Center Ljubljana, and Faculty of Medicine, University of Ljubljana, Ljubljana, Slovenia, tadej.battelino@mf.uni-lj.si Diana Naranjo, PhD, Stanford University School of Medicine, San Francisco CA, USA, Dnaranjo@stanford.edu Jacqueline Fosbury, BA (Hons), MPhil, United Kingdom Council for Psychotherapy, London jackiefosbury@gmail.com Lawrence Fisher, PhD., ABPP, University of California San Francisco, USA, larry.fisher@ucsf.edu William Polonsky, PhD, CDCES, Behavioral Diabetes Institute, San Diego, USA, (858) 336-8693, whp@behavioraldiabetes.org Jill Weissberg-Benchell, Ph.D., CDCES, Northwestern University Feinberg School of Medicine, Pritzker Department of Psychiatry and Behavioral Health, Ann and Robert H. Lurie Children’s Hospital of Chicago, Chicago, USA, jwbenchell@luriechildrens.org Korey K. Hood, PhD, Department of Pediatrics, Division of Endocrinology and Diabetes, Stanford University School of Medicine, Palo Alto, USA, kkhood@stanford.edu Oliver Schnell, Forschergruppe Diabetes e. VMunich, Germany, oliver.schnell@lrz.uni-muenchen.de, Laurel H. Messer, PhD, RN, CDCES, Barbara Davis Center, University of Colorado, Laurel.messer@cuanschutz.edu; Tandem Diabetes Care, San Diego, CA, LMesser@tandemdiabetes.com, , ORCID: 0000-0001-7493-0989 Thomas Danne, MD, AUF DER BULT, Diabetes-Center for Children and Adolescents, Hannover, Germany, danne@hka.de Revital Nimri, MD; The Jesse Z and Sara Lea Shafer Institute for Endocrinology and Diabetes, National Center for Childhood Diabetes, Schneider Children’s Medical Center of Israel, Petah Tikva Israel; Israel and Sacker Faculty of Medicine, Tel-Aviv University, Tel-Aviv, Israel, Revitalnimri@gmail.com, ORCID: 0000-0003-3571-4938 Soren E. Skovlund, PhD, Evidera, London UK, soren.skovlund@evidera.com ORCID: 0000-0003-3464-0885 Julia K. Mader, MD; Division of Endocrinology and Diabetology, Department of Internal Medicine, Medical University of Graz, Graz, Austria, julia.mader@medunigraz.at; ORCID: 0000-0001-7854-4233 Jennifer L. Sherr, MD, PhD, Department of Pediatrics, Yale School of Medicine, Yale University, New Haven, USA, Jennifer.sherr@yale.edu. ORCID: 0000-0001-9301-3043 Desmond Schatz MD, Diabetes Institute, University of Florida College of Medicine Past President, American Diabetes Association 2016 Gainesville FL 32610 USA, schatda@peds.ufl.edu Simon O’Neill, RN, Diabetes UK, London UK, simon.oneill@diabetes.org.uk Emma Doble, Patient author, Scotland, UK, emmajanedoble@gmail.com Marissa Town, RN, BSN, CDCES, Children with Diabetes, Cincinnati Children's Hospital, Cincinnati, USA, marissatown@childrenwithdiabetes.com Karin Lange, Prof. Dr. (PhD), Hannover Medical School, Department Medical Psychology, Hannover, Germany, lange.karin@mh-hannover.de, ORCID: 0000-0002-3636-2025 Carine de Beaufort, MD,PhD, DECCP, Centre Hospitalier de Luxembourg, Luxembourg , GD de Luxembourg, Technology and Medicine, University of Luxembourg, Luxembourg , , bcschim@pt.lu Linda Gonder-Frederick, PhD, Center for Diabetes Technology, Center for Behavioral Health and Technology, Department of Psychiatry and Neurobehavioral Sciences, University of Virginia, Charlottesville, USA, lag3g@virginia.edu Sarah S. Jaser, PhD, Vanderbilt University Medical Center, Department of Pediatrics, Nashville, USA, , sarah.jaser@vumc.org. 0000-0002-7958-7662 Alon Liberman, PhD, Jesse Z. and Sara Lea Shafer Institute of Endocrinology and Diabetes, National Center for Childhood Diabetes, Schneider Children's Medical Center of Israel, Petah Tikvah, Israel, libermalon@gmail.com David Klonoff. MD, FACP, FRCP (Edin), Fellow AIMBE, Mills-Peninsula Medical Center, San Mateo, USA. Email: dklonoff@diabetestechnology.org. 0000-0001-6394-6862 Nuha A. ElSayed, MD, MMSc, Vice President, Health Care Improvement, American Diabetes Association, Arlington, VA, Harvard Medical School, Boston, MA; NEISayed@diabetes.org Raveendhara R. Bannuru, MD, PhD, Vice President, Medical Affairs and QI Outcomes, American Diabetes Association, Arlington, VA; RBannuru@diabetes.org Christopher G. Parkin, MS, CGParkin Communications, Inc., Henderson, USA, chris@cgparkin.org, ORCID: 0000-0001-6838-5355 Frank Snoek Amsterdam UMC, Vrije Universiteit Amsterdam, Medical Psychology, Amsterdam Netherlands, Amsterdam Public Health, Mental Health, Amsterdam, the Netherlands, fj.snoek@amsterdamumc.nl

Local EPrints ID: 489165

URI: http://eprints.soton.ac.uk/id/eprint/489165

ISSN: 1464-5491

PURE UUID: f8b36260-9334-4140-a230-0dec2a861b62

ORCID for Richard Holt: orcid.org/0000-0001-8911-6744

Date deposited: 16 Apr 2024 16:34

Last modified: 17 Apr 2024 01:36