READ ME File For 'Dataset title' Dataset DOI: https://doi.org/10.5258/SOTON/D2919 Date that the file was created: May, 2023 ------------------- GENERAL INFORMATION ------------------- ReadMe Author: KATE HOUGH, University of Southampton [https://orcid.org/0000-0002-5160-2517] Date of data collection: May 2023 Information about geographic location of data collection: Hampshire, UK Related projects: Patient and public involvement and engagement group called ALL_EARS@UoS. -------------------------- SHARING/ACCESS INFORMATION -------------------------- Licenses/restrictions placed on the data, or limitations of reuse: Recommended citation for the data: This dataset supports the publication: AUTHORS:Kate Hough, Mary Grasmeder, Heather Parsons, William B Jones, Sarah Smith, Chris Satchwell, Ian Hobday, Sarah Taylor, Tracey Newman TITLE: Patient and public involvement and engagement (PPIE): how valuable and how hard? An evaluation of ALL_EARS@UoS PPIE group, 18 months on. JOURNAL:Research Involvement and Engagement PAPER DOI IF KNOWN: -------------------- DATA & FILE OVERVIEW -------------------- This dataset contains: Excel file named: Patient and Public Involvement and Engagement Group ALL_EARS@UoS - Evaluation Questionnaire (1-11) DATA v2 This file contains the raw data as well as any data analysis including descriptive statistics of rating scale questions and demographic questions and reflexive thematic analysis of free-text answers. -------------------------- METHODOLOGICAL INFORMATION -------------------------- Description of methods used for collection/generation of data: Anonymous, mixed-method questionnaire was sent to members of the PPIE group. Data was collected using an online platform (Microsoft Forms). After the data collection period, the raw data excel file was downloaded. Methods for processing the data: Descriptive statistics of rating scale questions and demographic questions and reflexive thematic analysis of free-text answers. Software- or Instrument-specific information needed to interpret the data, including software and hardware version numbers: Only excel was used to process the data. People involved with sample collection, processing, analysis and/or submission: Kate Hough, Tracey Newman, Sarah Smith, Chris Satchwell, Ian Hobday, Sarah Taylor. -------------------------- DATA-SPECIFIC INFORMATION -------------------------- 11 participants completed the anonymous questionnaire. All RAW data is on page 1 of the excel file. Each page is labelled to indicate what data/analysis are on that page. Questionnaire questions are on page 1, row 1. Likert scale questions - data analysis are on pages 3, 4, 5. Coding for reflexive thematic analysis are on pages: 'What worked well - coding', 'what area would you like to see improvements in', 'IMPACT', 'Benefits'. All themes are on the page'ALL THEMES'. Quotes to go which each theme are on the pages; 'Increased knowledge', 'Contributing to research', 'positive impact on individual', 'positive impact on others', 'running of the group'.