Patient and public perspectives shaping scientific and medical research: panels for data, discussions, and decisions
Patient and public perspectives shaping scientific and medical research: panels for data, discussions, and decisions
This paper explores the role of patient panels for shaping research for health, scientific research about health and illness, and applied medical research. After examining the history and purposes of involving patients in discussions and decision making for research, it outlines the expertise and skills required if panels are to be successful. The paper also analyses existing guidance for panels that include patients. Panels benefit from the experiential knowledge of panel members, craft knowledge of panel facilitators, and organizational knowledge gained through previous experience of hosting panels. Guidance is available that addresses structures and resources (for panel funders) and interpersonal communication and group dynamics (for panel members and facilitators). This guidance is most comprehensive when it has itself been developed by all these types of stakeholders.
Liabo, Kristin
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Stewart, Ruth
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Rees, Rebecca
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Oliver, Sandy
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16 January 2012
Liabo, Kristin
948ac36c-0b22-4a50-a90c-4c6dee98dd0f
Stewart, Ruth
da56ee4f-4b66-4475-bf48-c65d9f1e8a94
Rees, Rebecca
47dd323d-7781-40de-ab18-ea00c4a37ae2
Oliver, Sandy
4483a2b3-42b4-42de-8d02-f768fbad7b7e
Uhm, Seilin, Liabo, Kristin, Stewart, Ruth, Rees, Rebecca and Oliver, Sandy
(2012)
Patient and public perspectives shaping scientific and medical research: panels for data, discussions, and decisions.
Patient Intelligence, 2012 (4).
(doi:10.2147/pi.s17835).
Abstract
This paper explores the role of patient panels for shaping research for health, scientific research about health and illness, and applied medical research. After examining the history and purposes of involving patients in discussions and decision making for research, it outlines the expertise and skills required if panels are to be successful. The paper also analyses existing guidance for panels that include patients. Panels benefit from the experiential knowledge of panel members, craft knowledge of panel facilitators, and organizational knowledge gained through previous experience of hosting panels. Guidance is available that addresses structures and resources (for panel funders) and interpersonal communication and group dynamics (for panel members and facilitators). This guidance is most comprehensive when it has itself been developed by all these types of stakeholders.
Text
PI-17835-patient-and-public-perspectives-shaping-scientific-and-medic_011312
- Version of Record
More information
Accepted/In Press date: 16 November 2011
Published date: 16 January 2012
Identifiers
Local EPrints ID: 491068
URI: http://eprints.soton.ac.uk/id/eprint/491068
ISSN: 1179-3198
PURE UUID: d56e3678-10d6-455b-a607-952eff975e8f
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Date deposited: 11 Jun 2024 23:47
Last modified: 12 Jun 2024 00:06
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Contributors
Author:
Seilin Uhm
Author:
Kristin Liabo
Author:
Ruth Stewart
Author:
Rebecca Rees
Author:
Sandy Oliver
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