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The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus

The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus
The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus
Background: the roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines.

Method: on 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: (i) patient and system centred outcomes, (ii) health benefits, iii) measurement, (iv) prescription, (v) clinical considerations, and (vi) future directions. The consensus was achieved by a stepwise process, involving: (i) written evidence-based synopses; (ii) peer critique of synopses; (iii) oral presentation to consensus group and peer challenge of revised synopses; and (iv) anonymous voting on final proposed synopses for adoption to the consensus statement.

Results: the final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements.

Conclusion: this consensus can be used to support health promotion by relevant stakeholders for people with CF.
respiratory disease, lifestyyle, health, clinical practice
1479-9723
Williams, Craig A.
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Barker, Alan R.
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Button, Brenda
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Causer, Adam J.
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Curran, Máire
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Dwyer, Tiffany J.
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Hatziagorou, Elpis
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Hulzebos, H.J. (Erik)
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Morrison, Lisa
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Stanford, Gemma E.
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Young, Rachel
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Tomlinson, Owen W.
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Williams, Craig A.
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Stanford, Gemma E.
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Urquhart, Don S.
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Young, Rachel
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Tomlinson, Owen W.
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Williams, Craig A., Barker, Alan R., Denford, Sarah, van Beurden, Samantha B., Bianchim, Mayara S., Caterini, Jessica E., Cox, Narelle S., Mackintosh, Kelly A., McNarry, Melitta A., Rand, Sarah, Schneiderman, Jane E., Wells, Greg D., Anderson, Peter, Beever, Daniel, Beverley, Z., Buckley, Ronan, Button, Brenda, Causer, Adam J., Curran, Máire, Dwyer, Tiffany J., Gordon, Warren, Gruet, Mathieu, Harris, Ryan A., Hatziagorou, Elpis, Hulzebos, H.J. (Erik), Kampouras, Asterios, Morrison, Lisa, Cámara, Marietta N., Reilly, Clare M., Sawyer, Abbey, Saynor, Zoe L., Shelley, James, Spencer, Grace, Stanford, Gemma E., Urquhart, Don S., Young, Rachel and Tomlinson, Owen W. (2023) The Exeter Activity Unlimited statement on physical activity and exercise for cystic fibrosis: methodology and results of an international, multidisciplinary, evidence-driven expert consensus. Chronic Respiratory Disease, 19. (doi:10.1177/14799731221121670).

Record type: Article

Abstract

Background: the roles of physical activity (PA) and exercise within the management of cystic fibrosis (CF) are recognised by their inclusion in numerous standards of care and treatment guidelines. However, information is brief, and both PA and exercise as multi-faceted behaviours require extensive stakeholder input when developing and promoting such guidelines.

Method: on 30th June and 1st July 2021, 39 stakeholders from 11 countries, including researchers, healthcare professionals and patients participated in a virtual conference to agree an evidence-based and informed expert consensus about PA and exercise for people with CF. This consensus presents the agreement across six themes: (i) patient and system centred outcomes, (ii) health benefits, iii) measurement, (iv) prescription, (v) clinical considerations, and (vi) future directions. The consensus was achieved by a stepwise process, involving: (i) written evidence-based synopses; (ii) peer critique of synopses; (iii) oral presentation to consensus group and peer challenge of revised synopses; and (iv) anonymous voting on final proposed synopses for adoption to the consensus statement.

Results: the final consensus document includes 24 statements which surpassed the consensus threshold (>80% agreement) out of 30 proposed statements.

Conclusion: this consensus can be used to support health promotion by relevant stakeholders for people with CF.

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williams-et-al-2022-the-exeter-activity-unlimited-statement-on-physical-activity-and-exercise-for-cystic-fibrosis - Version of Record
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e-pub ahead of print date: 6 September 2022
Published date: 1 January 2023
Keywords: respiratory disease, lifestyyle, health, clinical practice

Identifiers

Local EPrints ID: 493836
URI: http://eprints.soton.ac.uk/id/eprint/493836
ISSN: 1479-9723
PURE UUID: 146a649e-ae34-4984-a788-4810e9f30e2e
ORCID for Zoe L. Saynor: ORCID iD orcid.org/0000-0003-0674-8477

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Date deposited: 13 Sep 2024 16:58
Last modified: 14 Sep 2024 02:13

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Contributors

Author: Craig A. Williams
Author: Alan R. Barker
Author: Sarah Denford
Author: Samantha B. van Beurden
Author: Mayara S. Bianchim
Author: Jessica E. Caterini
Author: Narelle S. Cox
Author: Kelly A. Mackintosh
Author: Melitta A. McNarry
Author: Sarah Rand
Author: Jane E. Schneiderman
Author: Greg D. Wells
Author: Peter Anderson
Author: Daniel Beever
Author: Z. Beverley
Author: Ronan Buckley
Author: Brenda Button
Author: Adam J. Causer
Author: Máire Curran
Author: Tiffany J. Dwyer
Author: Warren Gordon
Author: Mathieu Gruet
Author: Ryan A. Harris
Author: Elpis Hatziagorou
Author: H.J. (Erik) Hulzebos
Author: Asterios Kampouras
Author: Lisa Morrison
Author: Marietta N. Cámara
Author: Clare M. Reilly
Author: Abbey Sawyer
Author: Zoe L. Saynor ORCID iD
Author: James Shelley
Author: Grace Spencer
Author: Gemma E. Stanford
Author: Don S. Urquhart
Author: Rachel Young
Author: Owen W. Tomlinson

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