Self-management interventions for chronic widespread pain including fibromyalgia: a systematic review and qualitative evidence synthesis
Self-management interventions for chronic widespread pain including fibromyalgia: a systematic review and qualitative evidence synthesis
Supporting behavioural self-management is increasingly important in the care for chronic widespread pain (CWP), including fibromyalgia. Understanding peoples' experiences of these interventions may elucidate processes and mechanisms that lead to or hinder their intended impact. We conducted a systematic review and thematic synthesis of qualitative studies exploring peoples' experiences of self-management interventions for CWP, including fibromyalgia. MEDLINE, Embase, PsycINFO, CINAHL, and Web of Science were searched. Primary qualitative or mixed-methods studies were included if they explored people's self-management intervention experiences for their CWP, including fibromyalgia. Screening, data extraction, and critical appraisal were conducted by 2 reviewers. Data analysis was conducted through thematic synthesis. Twenty-three studies were included, mostly were rated as high or moderate quality. We developed 4 analytic themes: A multifaceted experience of the intervention, potential for transformative experience of group cohesion, a new outlook, and striving for change after the loss of support. Broadly, personalisation was perceived as beneficial and people experienced a range of emotional experiences. These appeared to support positive behavioural and cognitive changes. For most, group activities promoted acceptance and support, fostering new perspectives and improved self-management, although some found aspects of group contexts challenging. Lack of on-going support after interventions led to challenges in applying behavioural strategies, and some struggled without social support from the group. The experiences of self-management interventions for CWP reflect a complex, multifaceted process. Although many reported positive experiences, addressing issues with integration of physical activity, group dynamics and postintervention support may improve effectiveness for a broader range of people.
Chronic widespread pain, Fibromyalgia, Qualitative, Self-care, Self-management, Systematic review
Young, Ben
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Santer, Miriam
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Everitt, Hazel
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Pearson, Jen
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Bowers, Hannah
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Moore, Michael
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Little, Paul
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Pincus, Tamar
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Price, Cathy
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Robson, Tom
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de Barros, Clara
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Loewy, Jane
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Magee, Jenny
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Geraghty, Adam W A
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Young, Ben
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Santer, Miriam
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Everitt, Hazel
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Pearson, Jen
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Bowers, Hannah
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Moore, Michael
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Little, Paul
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Pincus, Tamar
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Price, Cathy
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Robson, Tom
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de Barros, Clara
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Loewy, Jane
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Magee, Jenny
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Geraghty, Adam W A
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Hu, Xiao-Yang, Young, Ben, Santer, Miriam, Everitt, Hazel, Pearson, Jen, Bowers, Hannah, Moore, Michael, Little, Paul, Pincus, Tamar, Price, Cathy, Robson, Tom, de Barros, Clara, Loewy, Jane, Magee, Jenny and Geraghty, Adam W A
(2024)
Self-management interventions for chronic widespread pain including fibromyalgia: a systematic review and qualitative evidence synthesis.
Pain.
(doi:10.1097/j.pain.0000000000003379).
Abstract
Supporting behavioural self-management is increasingly important in the care for chronic widespread pain (CWP), including fibromyalgia. Understanding peoples' experiences of these interventions may elucidate processes and mechanisms that lead to or hinder their intended impact. We conducted a systematic review and thematic synthesis of qualitative studies exploring peoples' experiences of self-management interventions for CWP, including fibromyalgia. MEDLINE, Embase, PsycINFO, CINAHL, and Web of Science were searched. Primary qualitative or mixed-methods studies were included if they explored people's self-management intervention experiences for their CWP, including fibromyalgia. Screening, data extraction, and critical appraisal were conducted by 2 reviewers. Data analysis was conducted through thematic synthesis. Twenty-three studies were included, mostly were rated as high or moderate quality. We developed 4 analytic themes: A multifaceted experience of the intervention, potential for transformative experience of group cohesion, a new outlook, and striving for change after the loss of support. Broadly, personalisation was perceived as beneficial and people experienced a range of emotional experiences. These appeared to support positive behavioural and cognitive changes. For most, group activities promoted acceptance and support, fostering new perspectives and improved self-management, although some found aspects of group contexts challenging. Lack of on-going support after interventions led to challenges in applying behavioural strategies, and some struggled without social support from the group. The experiences of self-management interventions for CWP reflect a complex, multifaceted process. Although many reported positive experiences, addressing issues with integration of physical activity, group dynamics and postintervention support may improve effectiveness for a broader range of people.
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self_management_interventions_for_chronic.703
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Accepted/In Press date: 2024
e-pub ahead of print date: 12 September 2024
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Copyright © 2024 The Author(s).
Keywords:
Chronic widespread pain, Fibromyalgia, Qualitative, Self-care, Self-management, Systematic review
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Local EPrints ID: 494879
URI: http://eprints.soton.ac.uk/id/eprint/494879
ISSN: 0304-3959
PURE UUID: 4d16efcc-95d7-4e2c-83d5-ef4c74a9a124
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Date deposited: 22 Oct 2024 16:31
Last modified: 23 Oct 2024 02:08
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Contributors
Author:
Xiao-Yang Hu
Author:
Ben Young
Author:
Jen Pearson
Author:
Tamar Pincus
Author:
Cathy Price
Author:
Tom Robson
Author:
Clara de Barros
Author:
Jane Loewy
Author:
Jenny Magee
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