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Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process

Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process
Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process

Background: there is lack of standardisation in assessment tools used in geriatric medicine research, which makes pooling of data and cross-study comparisons difficult. 

Methods: we conducted a modified Delphi process to establish measures to be included within core and extended datasets for geriatric medicine research in the United Kingdom (UK). This included three complete questionnaire rounds, and one consensus meeting. Participants were selected from attendance at the NIHR Newcastle Biomedical Research Centre meeting, May 2019, and academic geriatric medicine e-mailing lists. Literature review was used to develop the initial questionnaire, with all responses then included in the second questionnaire. The third questionnaire used refined options from the second questionnaire with response ranking. 

Results: ninety-eight responses were obtained across all questionnaire rounds (Initial: 19, Second: 21, Third: 58) from experienced and early career researchers in geriatric medicine. The initial questionnaire included 18 questions with short text responses, including one question for responders to suggest additional items. Twenty-six questions were included in the second questionnaire, with 108 within category options. The third questionnaire included three ranking, seven final agreement, and four binary option questions. Results were discussed at the consensus meeting. In our position statement, the final consensus dataset includes six core domains: demographics (age, gender, ethnicity, socioeconomic status), specified morbidities, functional ability (Barthel and/or Nottingham Extended Activities of Daily Living), Clinical Frailty Scale (CFS), cognition, and patient-reported outcome measures (dependent on research question). We also propose how additional variables should be measured within an extended dataset.

Conclusions: our core and extended datasets represent current consensus opinion of academic geriatric medicine clinicians across the UK. We consider the development and further use of these datasets will strengthen collaboration between researchers and academic institutions.

ADL, Barthel, CFS, Frailty, Minimum dataset
1471-2318
Welch, Carly
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Wilson, Daisy
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Sayer, Avan A.
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Witham, Miles D.
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Jackson, Thomas A.
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Dhesi, Jugdeep
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Lochlainn, Mary Ni
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Aspray, Terry
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Dodds, Richard
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Frith, James
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Richardson, Sarah
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Tullo, Ellen
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Yarnall, Alison
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Walker, Richard
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Cunningham, Emma
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Prynn, Josephine
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Patel, Harnish
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Tiwari, Divya
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Henderson, Emily
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Keevil, Victoria
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Walesby, Katherine
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Allan, Louise
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Masoli, Jane
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Quinn, Terry
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Clegg, Andrew P.
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Hale, Matthew
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Conroy, Simon
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Taylor, Joanne
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Gladman, John
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Gordon, Adam
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Harwood, Rowan
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Cox, Natalie
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Roberts, Helen
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on behalf of the UK Geriatric Medicine Core Dataset Extended Working Group
Welch, Carly
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Wilson, Daisy
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Sayer, Avan A.
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Witham, Miles D.
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Jackson, Thomas A.
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Rajkumar, Raj
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Dhesi, Jugdeep
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Lochlainn, Mary Ni
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Aspray, Terry
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Dodds, Richard
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Frith, James
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Richardson, Sarah
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Tullo, Ellen
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Yarnall, Alison
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Walker, Richard
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Cunningham, Emma
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Prynn, Josephine
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Patel, Harnish
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Tiwari, Divya
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Makin, Stephen
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Myint, Phyo
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Henderson, Emily
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Walesby, Katherine
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Allan, Louise
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Masoli, Jane
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Quinn, Terry
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Clegg, Andrew P.
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Hale, Matthew
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Conroy, Simon
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Taylor, Joanne
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Gladman, John
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Gordon, Adam
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Harwood, Rowan
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Roberts, Helen
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Welch, Carly, Wilson, Daisy, Sayer, Avan A., Witham, Miles D. and Jackson, Thomas A. , on behalf of the UK Geriatric Medicine Core Dataset Extended Working Group (2023) Development of a UK core dataset for geriatric medicine research: a position statement and results from a Delphi consensus process. BMC Geriatrics, 23 (1), [168]. (doi:10.1186/s12877-023-03805-5).

Record type: Article

Abstract

Background: there is lack of standardisation in assessment tools used in geriatric medicine research, which makes pooling of data and cross-study comparisons difficult. 

Methods: we conducted a modified Delphi process to establish measures to be included within core and extended datasets for geriatric medicine research in the United Kingdom (UK). This included three complete questionnaire rounds, and one consensus meeting. Participants were selected from attendance at the NIHR Newcastle Biomedical Research Centre meeting, May 2019, and academic geriatric medicine e-mailing lists. Literature review was used to develop the initial questionnaire, with all responses then included in the second questionnaire. The third questionnaire used refined options from the second questionnaire with response ranking. 

Results: ninety-eight responses were obtained across all questionnaire rounds (Initial: 19, Second: 21, Third: 58) from experienced and early career researchers in geriatric medicine. The initial questionnaire included 18 questions with short text responses, including one question for responders to suggest additional items. Twenty-six questions were included in the second questionnaire, with 108 within category options. The third questionnaire included three ranking, seven final agreement, and four binary option questions. Results were discussed at the consensus meeting. In our position statement, the final consensus dataset includes six core domains: demographics (age, gender, ethnicity, socioeconomic status), specified morbidities, functional ability (Barthel and/or Nottingham Extended Activities of Daily Living), Clinical Frailty Scale (CFS), cognition, and patient-reported outcome measures (dependent on research question). We also propose how additional variables should be measured within an extended dataset.

Conclusions: our core and extended datasets represent current consensus opinion of academic geriatric medicine clinicians across the UK. We consider the development and further use of these datasets will strengthen collaboration between researchers and academic institutions.

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Accepted/In Press date: 7 February 2023
Published date: 23 March 2023
Keywords: ADL, Barthel, CFS, Frailty, Minimum dataset

Identifiers

Local EPrints ID: 496985
URI: http://eprints.soton.ac.uk/id/eprint/496985
ISSN: 1471-2318
PURE UUID: 0d6ad9ce-ac6a-47a9-b565-91594ca615db
ORCID for Richard Dodds: ORCID iD orcid.org/0000-0003-4968-7678
ORCID for Harnish Patel: ORCID iD orcid.org/0000-0002-0081-1802
ORCID for Natalie Cox: ORCID iD orcid.org/0000-0002-4297-1206
ORCID for Helen Roberts: ORCID iD orcid.org/0000-0002-5291-1880

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Date deposited: 09 Jan 2025 17:35
Last modified: 03 Jul 2025 02:41

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Contributors

Author: Carly Welch
Author: Daisy Wilson
Author: Avan A. Sayer
Author: Miles D. Witham
Author: Thomas A. Jackson
Author: Raj Rajkumar
Author: Jugdeep Dhesi
Author: Mary Ni Lochlainn
Author: Terry Aspray
Author: Richard Dodds ORCID iD
Author: James Frith
Author: Sarah Richardson
Author: Ellen Tullo
Author: Alison Yarnall
Author: Richard Walker
Author: Emma Cunningham
Author: Josephine Prynn
Author: Harnish Patel ORCID iD
Author: Divya Tiwari
Author: Stephen Makin
Author: Phyo Myint
Author: Emily Henderson
Author: Victoria Keevil
Author: Katherine Walesby
Author: Louise Allan
Author: Jane Masoli
Author: Terry Quinn
Author: Andrew P. Clegg
Author: Matthew Hale
Author: Simon Conroy
Author: Joanne Taylor
Author: John Gladman
Author: Adam Gordon
Author: Rowan Harwood
Author: Natalie Cox ORCID iD
Author: Helen Roberts ORCID iD
Corporate Author: on behalf of the UK Geriatric Medicine Core Dataset Extended Working Group

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