The University of Southampton
University of Southampton Institutional Repository

Experiences of user-centred design with agile development for clinically supported self-management of Long Covid

Experiences of user-centred design with agile development for clinically supported self-management of Long Covid
Experiences of user-centred design with agile development for clinically supported self-management of Long Covid

The aim of the study reported here was to reflect and report on lessons learned from adapting HCI methods to fit into an agile development process delivering a digital intervention for people managing Long Covid. During the project, we maintained a record of all activities and interim design products. Subsequently, selected records were analysed qualitatively. Challenges included engaging patients managing this complex, debilitating health condition and fitting the digital intervention into different and evolving patient pathways provided by clinics. The key contributions of this article are a description of the clinically supported self-management app, Living With Covid Recovery, and of adapted methods for user-centred design and testing; narratives on engaging diverse clinics integrating a digital health intervention in their care pathways; reflections on designing for diverse users; implications for design of future technologies for supported self-management; and insights into multi-disciplinary working that are rarely discussed within HCI.

DHI, digital health intervention, UCD, HCI methods, agile software development, healthcare technology, Long Covid, clinically supported self-management
1073-0516
Blandford, Ann
1a959d23-6ce2-41bd-89ea-b81b61ec5f7a
Bindman, Julia
4ab7a996-61ff-4504-a1bb-33a4192205d9
Bradbury, Katherine
87fce0b9-d9c5-42b4-b041-bffeb4430863
Cooper, Belinda
cf34d3c5-b2c0-45cb-8623-cde604660ab8
Costanza, Enrico
ebedb17b-8d6a-4305-a469-635fee61b252
Edwards, Sandra L.
538413eb-7c36-4707-9114-7d07749ccb41
Hamilton, Fiona L.
3ed5bd8f-5cbd-468e-bf0b-9886b87ad89e
Heightman, Melissa
05350af8-d79e-41c8-8750-3659a95f6ec0
Hurst, John R.
37c4256e-b20f-4df0-ada0-cf3cbd59ecdf
Hylton, Hannah
00ee2a43-f2d3-42df-ad69-e2f7c4dc6756
Linke, Stuart
1c79b2cc-1e16-4b44-a104-d6b76154258f
Pfeffer, Paul
27b22a6f-c29a-4d81-9635-b5dff591716f
Ricketts, William
f16390fa-ba59-4f6b-8d6c-43ac41de5c9d
Robson, Chris
52a364fa-3c5a-4690-b906-52dd4b7c5a64
Stevenson, Fiona
881eb2a9-d7a8-449d-be50-ead6fda5cd3e
Sunkersing, David
848c46be-b9ec-4086-8d66-67284dd67602
Waywell, Jonathan
aa865bb7-8931-4135-8195-dbf866c974a2
Goodfellow, Henry
8d655992-8e49-451b-ab83-a57523694b32
Blandford, Ann
1a959d23-6ce2-41bd-89ea-b81b61ec5f7a
Bindman, Julia
4ab7a996-61ff-4504-a1bb-33a4192205d9
Bradbury, Katherine
87fce0b9-d9c5-42b4-b041-bffeb4430863
Cooper, Belinda
cf34d3c5-b2c0-45cb-8623-cde604660ab8
Costanza, Enrico
ebedb17b-8d6a-4305-a469-635fee61b252
Edwards, Sandra L.
538413eb-7c36-4707-9114-7d07749ccb41
Hamilton, Fiona L.
3ed5bd8f-5cbd-468e-bf0b-9886b87ad89e
Heightman, Melissa
05350af8-d79e-41c8-8750-3659a95f6ec0
Hurst, John R.
37c4256e-b20f-4df0-ada0-cf3cbd59ecdf
Hylton, Hannah
00ee2a43-f2d3-42df-ad69-e2f7c4dc6756
Linke, Stuart
1c79b2cc-1e16-4b44-a104-d6b76154258f
Pfeffer, Paul
27b22a6f-c29a-4d81-9635-b5dff591716f
Ricketts, William
f16390fa-ba59-4f6b-8d6c-43ac41de5c9d
Robson, Chris
52a364fa-3c5a-4690-b906-52dd4b7c5a64
Stevenson, Fiona
881eb2a9-d7a8-449d-be50-ead6fda5cd3e
Sunkersing, David
848c46be-b9ec-4086-8d66-67284dd67602
Waywell, Jonathan
aa865bb7-8931-4135-8195-dbf866c974a2
Goodfellow, Henry
8d655992-8e49-451b-ab83-a57523694b32

Blandford, Ann, Bindman, Julia, Bradbury, Katherine, Cooper, Belinda, Costanza, Enrico, Edwards, Sandra L., Hamilton, Fiona L., Heightman, Melissa, Hurst, John R., Hylton, Hannah, Linke, Stuart, Pfeffer, Paul, Ricketts, William, Robson, Chris, Stevenson, Fiona, Sunkersing, David, Waywell, Jonathan and Goodfellow, Henry (2025) Experiences of user-centred design with agile development for clinically supported self-management of Long Covid. ACM Transactions on Computer-Human Interaction, 32 (1), [6]. (doi:10.1145/3711839).

Record type: Article

Abstract

The aim of the study reported here was to reflect and report on lessons learned from adapting HCI methods to fit into an agile development process delivering a digital intervention for people managing Long Covid. During the project, we maintained a record of all activities and interim design products. Subsequently, selected records were analysed qualitatively. Challenges included engaging patients managing this complex, debilitating health condition and fitting the digital intervention into different and evolving patient pathways provided by clinics. The key contributions of this article are a description of the clinically supported self-management app, Living With Covid Recovery, and of adapted methods for user-centred design and testing; narratives on engaging diverse clinics integrating a digital health intervention in their care pathways; reflections on designing for diverse users; implications for design of future technologies for supported self-management; and insights into multi-disciplinary working that are rarely discussed within HCI.

Text
3711839 - Accepted Manuscript
Available under License Creative Commons Attribution.
Download (2MB)

More information

Accepted/In Press date: 30 September 2024
e-pub ahead of print date: 9 January 2025
Published date: 21 April 2025
Keywords: DHI, digital health intervention, UCD, HCI methods, agile software development, healthcare technology, Long Covid, clinically supported self-management

Identifiers

Local EPrints ID: 498484
URI: http://eprints.soton.ac.uk/id/eprint/498484
ISSN: 1073-0516
PURE UUID: 452dbcaf-57e0-476a-b5f4-3979986bb29f
ORCID for Katherine Bradbury: ORCID iD orcid.org/0000-0001-5513-7571

Catalogue record

Date deposited: 20 Feb 2025 17:30
Last modified: 22 Aug 2025 02:01

Export record

Altmetrics

Contributors

Author: Ann Blandford
Author: Julia Bindman
Author: Belinda Cooper
Author: Enrico Costanza
Author: Sandra L. Edwards
Author: Fiona L. Hamilton
Author: Melissa Heightman
Author: John R. Hurst
Author: Hannah Hylton
Author: Stuart Linke
Author: Paul Pfeffer
Author: William Ricketts
Author: Chris Robson
Author: Fiona Stevenson
Author: David Sunkersing
Author: Jonathan Waywell
Author: Henry Goodfellow

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×