Inequalities in access to specialist allergy services in the United Kingdom: a report from the BSACI Registry for Immunotherapy (BRIT)

Abstract

Background: there is an unmet need for specialist allergy treatment in the United Kingdom. Allergen immunotherapy and treatment with Omalizumab for Chronic Spontaneous Urticaria (CSU)are key markers for these services. The British Society for Allergy and Clinical Immunology(BSACI) Registry for Immunotherapy (BRIT) is a national project to record the real-world effectiveness, safety and access to treatment for aero-allergen, venom and peanut immunotherapy as well as Omalizumab for CSU.

Methods: we described participant demographics, Index of Multiple Deprivation (IMD) and access to treatment from registry launch. Data for 1835 participants were available for analysis from centres enrolled between 1st October 2018 and 24th 12 August 2023.

Results: 96.5% (1771/1835) were living in England with only 3.5% (64) being from the devolved nations. 14.4% (251/1748) were in the most affluent IMD decile compared to 4.5%(78/1748) in the most deprived IMD decile. White participants were 1.74 times more likely to be referred directly from primary care compared to people of Asian, black, mixed or other minority ethnic groups. Instead, these groups were referred more frequently from secondary or tertiary hospital services. The median distance travelled from home to treatment centre was 15.2 miles with evidence of clustering around specialist centres.

Conclusions: we have described disparities and unwarranted variation in the provision of treatment around the UK. The data suggest that there is limited access to immunotherapy in the devolved nations. Access is also reduced by socio-economic deprivation. White participants were more likely to receive a direct referral from primary care than those from other ethnic groups whose referral pathways were more complex. Registry data is limited by participant enrolment and may have selection bias. Nevertheless, BRIT has highlighted inequity in access to specialist allergy services in the UK.

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Identifiers

ORCID for Mich Erlewyn-Lajeunesse: orcid.org/0000-0003-1982-1397

ORCID for Luciano Perfetti Villa: orcid.org/0000-0001-6885-0296

ORCID for Olga Maslovskaya: orcid.org/0000-0003-3814-810X

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