Top 15 research priorities for preterm birth with clinicians and service users’ involvement–outcomes from a James Lind Alliance priority setting partnership

Uhm, Seilin S, Alderdice, Fiona, Chambers, Bev, Gyte, Gill, Duley, Lelia, James, Catherine P., David, Anna L., McNeill, Jenny, Turner, M., Shennan, Andrew, Deshpande, Sanjeev, Crowe, Sally, Chivers, Zoe, Brady, I and Oliver, Sandy (2014) Top 15 research priorities for preterm birth with clinicians and service users’ involvement–outcomes from a James Lind Alliance priority setting partnership. Archives of Disease in Childhood: Fetal and Neonatal Edition, 99 (suppl 1), A158. (doi:10.1136/archdischild-2014-306576.463).

Abstract

Background
Preterm birth is the single most important determinant of adverse infant outcomes in terms of survival, quality of life, psychosocial and emotional impact on the family, and health care costs. Research agenda in this area has been determined primarily by researchers, and the processes for priority setting in research have often lacked transparency.

Objectives
To identify 15 most important priorities for future research for practitioners and service users in the area of preterm birth.

Methods
A priority setting partnership was established by involving clinicians, adults who were born preterm, and parents and families with experience of preterm birth. Research uncertainties were gathered from surveys of service users and clinicians, and analyses of systematic reviews and clinical guidance, and then prioritised in a transparent process, using a methodology advocated by the James Lind Alliance.

This record has no associated files available for download.

Contributors

Author: Seilin S Uhm

Download statistics