The experiences of endometriosis patients during primary healthcare encounters: a systematic review of qualitative evidence
The experiences of endometriosis patients during primary healthcare encounters: a systematic review of qualitative evidence
Endometriosis affects 10% of those assigned-female-at-birth worldwide. Diagnosis typically takes between 5–12 years. This qualitative systematic review explored endometriosis patients’ experiences with primary healthcare professionals from presentation before diagnosis to post-diagnosis follow-up. Six electronic databases were searched: CINAHL, MEDLINE, Embase, PubMed, Scopus, and PsycINFO. A total of 37 articles were included and synthesized thematically. Findings showed common issues that patients were experiencing during their interactions with primary healthcare professionals, including dismissal regarding their symptoms, delayed referral to secondary care, and lack of knowledge regarding endometriosis. This review highlights a need for improved education and awareness surrounding endometriosis amongst primary healthcare professionals.
Endometriosis, patient experience, primary healthcare/general practice, qualitative research, systematic review
Harris, Sarah
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Tata, Laila J.
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Qureshi, Nadeem
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Read, Katie
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Bains, Manpreet
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Harris, Sarah
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Tata, Laila J.
59813410-634f-485a-beeb-c79bd1880084
Qureshi, Nadeem
48c1e15a-f152-4532-b657-ed2877dc0b6b
Read, Katie
b0c45694-a58b-45de-9f31-36797729564b
Bains, Manpreet
a2fbb898-dd06-4fbd-86c9-1ca9b291db07
Harris, Sarah, Tata, Laila J., Qureshi, Nadeem, Read, Katie and Bains, Manpreet
(2025)
The experiences of endometriosis patients during primary healthcare encounters: a systematic review of qualitative evidence.
Women's Reproductive Health.
(doi:10.1080/23293691.2025.2545308).
Abstract
Endometriosis affects 10% of those assigned-female-at-birth worldwide. Diagnosis typically takes between 5–12 years. This qualitative systematic review explored endometriosis patients’ experiences with primary healthcare professionals from presentation before diagnosis to post-diagnosis follow-up. Six electronic databases were searched: CINAHL, MEDLINE, Embase, PubMed, Scopus, and PsycINFO. A total of 37 articles were included and synthesized thematically. Findings showed common issues that patients were experiencing during their interactions with primary healthcare professionals, including dismissal regarding their symptoms, delayed referral to secondary care, and lack of knowledge regarding endometriosis. This review highlights a need for improved education and awareness surrounding endometriosis amongst primary healthcare professionals.
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Accepted: The experiences of endometriosis patients during primary healthcare encounters: a systematic review of qualitative evidence.
- Accepted Manuscript
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The Experiences of Endometriosis Patients During Primary Healthcare Encounters A Systematic Review of Qualitative Evidence
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Accepted/In Press date: 4 August 2025
e-pub ahead of print date: 21 August 2025
Keywords:
Endometriosis, patient experience, primary healthcare/general practice, qualitative research, systematic review
Identifiers
Local EPrints ID: 505710
URI: http://eprints.soton.ac.uk/id/eprint/505710
PURE UUID: c9f05df0-6af5-4184-a52f-00ee093993e4
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Date deposited: 16 Oct 2025 17:00
Last modified: 17 Oct 2025 02:17
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Contributors
Author:
Sarah Harris
Author:
Laila J. Tata
Author:
Nadeem Qureshi
Author:
Katie Read
Author:
Manpreet Bains
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