READ ME File For Dataset for Deprescribing for people with dementia or mild cognitive impairment in primary care: a qualiatitve study

Dataset DOI: 10.5258/SOTON/D3390

Date that the file was created: February 2025

ReadMe Author: Dr Nicola Andrews, University of Southampton [ORCID ID 0000-0003-2595-1825]


This dataset supports the publication:
AUTHORS: Nicola Andrews, Cindy Brooks, Jay Amin, Rosemary Lim, Michele Board, Sue Latter, Simon Fraser and Kinda Ibrahim
TITLE:The importance of a relationship centred approach to deprescribing for people with dementia or mild cognitive impairment in primary care: a qualiatitive study.
JOURNAL:
PAPER DOI IF KNOWN:

This dataset contains all the raw interview and photographic data that underpin the article plus the participant information sheets and consent forms used in the recruitment process.

The dataset contais 4 folders:
1)'Blank consent forms' contains uncompleted versions of the four consent forms (patient, informal caregiver, primary care professional and older persons mental health practitioner).
2)'Participant information sheets' contains the four participant information sheets (patient, informal caregiver, primary care professional and older persons mental health practitioner).
3)'Interview transcripts' contains all the raw interview data that underpin the results, divided into three sub-folders:
a) People with dementia or MCI interview transcripts (nine transcripts)
b) Informal caregiver interview transcripts (nine transcripts)
c) Primary care and older persons mental health professional interview transcripts (sixteen transcripts)
4) 'Photographs' contains participant photographs that did not contain potentially identifying features, subdivided into six sub-folders, based on analysis categories that underpin the results.
a) Photographs categorised as administration aids (sixteen photographs)
b) Photographs categorised as reminders (five photographs)
c) Photographs categorised as routines (twenty one photographs)
d) Photographs categorised as multiple medications (nine photographs)
e) Photographs categorised as carer management (thirteen photographs)
f) Photographs categorised as quality of life (two photographs)
All photographs are labelled with the participant ID and the number allocated to the photo for that participant.

Description of methods used for collection/generation of data: Interview transcipts are from audio recorded qualiative interviews, undertaken in-person for patients and informal caregivers and via Microsoft Teams for professionals.
Interview topic guides are available alongside the publication.
Nicola Andrews interviewed all patient and informal caregiver participants. Cindy Brooks interviewed all professional participants. Kinda Ibrahim contributed to data analysis including categorisation of photographs.
Photographs were taken by patients and informal caregivers of their day-to-day medication management, in advance of the interview and informed the interview discussion.

Date of data collection: July 2023 to May 2024

Information about geographic location of data collection: Wessex, UK