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Interviews dataset in support of the paper "Co-design of a new integrated care model with people affected by Huntington’s Disease: a mixed methods study"

Interviews dataset in support of the paper "Co-design of a new integrated care model with people affected by Huntington’s Disease: a mixed methods study"
Interviews dataset in support of the paper "Co-design of a new integrated care model with people affected by Huntington’s Disease: a mixed methods study"
Interview dataset collected through the Integrate-HD II project, except direct and indirect identifiers. This dataset is supportive of the published paper entitled "Co-design of a new integrated care model with people affected by Huntington’s Disease: a mixed methods study" The interviews are semi-structured and individual, taken with service users (SUs) and service providers (SPs) living with Huntington's Disease or supporting people with Huntington's Disease care. A total of 24 participants were consented and interviewed between January and June 2024, 15 SUs and 9 SPs.
integrated care, Huntington's Disease, neurology, care models, person-centered care, outcomes, Mixed methods, health inequalities, continuity of care
University of Southampton
Bartolomeu Pires, Sandra Martins
bac6d261-405a-4a39-9fe2-3f38deeacb22
Kunkel, Dorit
6b6c65d5-1d03-4a13-9db8-1342cd43f352
Manera, Karine
3388c0eb-4b16-4d63-bb1f-13784277b420
Goodwin, Nicholas
d52d32b5-87ab-4659-b43b-181ebb506f67
Kipps, Chris
e43be016-2dc2-45e6-9a02-ab2a0e0208d5
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c
Bartolomeu Pires, Sandra Martins
bac6d261-405a-4a39-9fe2-3f38deeacb22
Kunkel, Dorit
6b6c65d5-1d03-4a13-9db8-1342cd43f352
Manera, Karine
3388c0eb-4b16-4d63-bb1f-13784277b420
Goodwin, Nicholas
d52d32b5-87ab-4659-b43b-181ebb506f67
Kipps, Chris
e43be016-2dc2-45e6-9a02-ab2a0e0208d5
Portillo, Mari Carmen
f913b5c5-b949-48f2-b1d0-eb7505484d5c

Bartolomeu Pires, Sandra Martins (2026) Interviews dataset in support of the paper "Co-design of a new integrated care model with people affected by Huntington’s Disease: a mixed methods study". University of Southampton doi:10.5258/SOTON/D3653 [Dataset]

Record type: Dataset

Abstract

Interview dataset collected through the Integrate-HD II project, except direct and indirect identifiers. This dataset is supportive of the published paper entitled "Co-design of a new integrated care model with people affected by Huntington’s Disease: a mixed methods study" The interviews are semi-structured and individual, taken with service users (SUs) and service providers (SPs) living with Huntington's Disease or supporting people with Huntington's Disease care. A total of 24 participants were consented and interviewed between January and June 2024, 15 SUs and 9 SPs.

Text
READ_ME_FILE_IntegrateHD_II_interviews_dataset_20260121.txt - Dataset
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Spreadsheet
PURE_dataset_participant_characteristics_interview_information_20250827.xlsx - Collection
Available under License Creative Commons Attribution.
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Archive
PURE_IntegrateHD_interviews.zip - Dataset
Available under License Creative Commons Attribution.
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More information

Published date: 28 February 2026
Keywords: integrated care, Huntington's Disease, neurology, care models, person-centered care, outcomes, Mixed methods, health inequalities, continuity of care
Learn more about School of Health Sciences research Learn more about Institute for Life Sciences research

Identifiers

Local EPrints ID: 508454
URI: http://eprints.soton.ac.uk/id/eprint/508454
DOI: doi:10.5258/SOTON/D3653
PURE UUID: 3895b9aa-80c2-4878-972f-854c43e57047
ORCID for Sandra Martins Bartolomeu Pires: ORCID iD orcid.org/0000-0003-3711-9040
ORCID for Dorit Kunkel: ORCID iD orcid.org/0000-0003-4449-1414
ORCID for Chris Kipps: ORCID iD orcid.org/0000-0002-5205-9712
ORCID for Mari Carmen Portillo: ORCID iD orcid.org/0000-0003-1583-6612

Catalogue record

Date deposited: 22 Jan 2026 17:39
Last modified: 28 Jan 2026 03:52

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Contributors

Creator: Sandra Martins Bartolomeu Pires ORCID iD
Research team head: Dorit Kunkel ORCID iD
Contributor: Karine Manera
Research team head: Nicholas Goodwin
Research team head: Chris Kipps ORCID iD
Research team head: Mari Carmen Portillo ORCID iD

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