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Living with chronic illness from the family perspective: an integrative review

Living with chronic illness from the family perspective: an integrative review
Living with chronic illness from the family perspective: an integrative review
Living with chronic illness has an impact on the family’s wellbeing and quality of life. An integrative review was conducted to identify and analyse the existing scales that evaluate the process of living with chronic illness or related factors of daily living from the family perspective. A search was developed in Medline, CINAHL, PsycINFO, Cochrane Library, Cuiden and Scielo databases until May 2019. From 5,344 identified articles, 13 studies were eligible for inclusion. 16 scales were identified and assessed constructs related to the concept of living with chronic illness, including quality of life; perceptions and needs; life satisfaction and well-being; impact; and psychological adjustment to the disease. However, these scales do not measure the family process of living with chronic illness from a comprehensive perspective. This review highlights the need to develop and validate a scale that evaluates the multidimensional nature of living with chronic illness from the family perspective.
579–590
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
Navarta-Sanchez MV, Carvajal A
a0b1306e-cbd6-4223-80c0-da90b5e74fa9
Ambrosio, Leire
0a21749c-3817-49de-bf15-0ea9233ecc5c
Navarta-Sanchez MV, Carvajal A
a0b1306e-cbd6-4223-80c0-da90b5e74fa9

Ambrosio, Leire and Navarta-Sanchez MV, Carvajal A (2020) Living with chronic illness from the family perspective: an integrative review. Clinical Nursing Research, 30 (5), 579–590. (doi:10.1177/1054773820947983).

Record type: Article

Abstract

Living with chronic illness has an impact on the family’s wellbeing and quality of life. An integrative review was conducted to identify and analyse the existing scales that evaluate the process of living with chronic illness or related factors of daily living from the family perspective. A search was developed in Medline, CINAHL, PsycINFO, Cochrane Library, Cuiden and Scielo databases until May 2019. From 5,344 identified articles, 13 studies were eligible for inclusion. 16 scales were identified and assessed constructs related to the concept of living with chronic illness, including quality of life; perceptions and needs; life satisfaction and well-being; impact; and psychological adjustment to the disease. However, these scales do not measure the family process of living with chronic illness from a comprehensive perspective. This review highlights the need to develop and validate a scale that evaluates the multidimensional nature of living with chronic illness from the family perspective.

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Published date: 11 August 2020

Identifiers

Local EPrints ID: 509768
URI: http://eprints.soton.ac.uk/id/eprint/509768
PURE UUID: 1cc26b6d-a4f1-46d8-aeff-0e9791037f24
ORCID for Leire Ambrosio: ORCID iD orcid.org/0000-0002-9450-7210

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Date deposited: 04 Mar 2026 17:50
Last modified: 05 Mar 2026 03:00

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Contributors

Author: Leire Ambrosio ORCID iD
Author: Carvajal A Navarta-Sanchez MV

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