Impacto de una intervención multisectorial comunitaria en la salud de las personas con enfermedad de Parkinson y sus familiares cuidadores
Impacto de una intervención multisectorial comunitaria en la salud de las personas con enfermedad de Parkinson y sus familiares cuidadores
Objective To evaluate the impact of a community-based multisectoral intervention aimed at optimizing the use of local resources on the quality of life (QoL), perceived social support, and health status of individuals with Parkinson's disease (PD) and their family caregivers. Methods A randomized pre-post intervention study was conducted across six primary healthcare centers. The intervention comprised three monthly informational sessions over a three-month period, targeting both patients and caregivers, focused on raising awareness of available community resources and services. Outcome measures included QoL in individuals with PD (PDQ-39) and caregivers (PDQ-Carer), perceived social support (DUFSS), health status (EQ-5D-5L), and caregiver burden (BSFC-s). Results A total of 67 individuals with PD (mean age: 80.56 years in the intervention group [IG], 79.48 in the control group [CG]) and 56 family caregivers participated. The CG demonstrated statistically significant improvements in QoL in individuals with PD across the domains of emotional well-being (P =.011), cognitive functioning (P =.024), and communication (P =.041). Among caregivers, the CG also reported better scores in the self-care domain (P =.045). Attrition rates were 28.4% among individuals with PD and 25% among caregivers. Conclusions This feasibility study facilitated the identification of community resources relevant to the target population. Expanding the resource mapping to additional districts and disseminating the information through public repositories could enhance the clinical applicability of the intervention. These findings support the potential for scaling up to a larger randomized controlled trial with an extended intervention period.
Caregivers, Community health services, Health Status, Parkinson disease, Quality of life, Social support
Calzada García, M.
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Ayala, A.
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Navarta Sánchez, M.V.
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Palmar Santos, A.M.
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Portillo, M.C.
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González García, B.
57e38a9d-47ff-428d-8eaf-569d56d541c5
Carabajal Pendón, E.
f83de67b-82f6-4ae3-a7ed-a3956eac77d9
López Manzanares, L.
abfa45e8-f3b3-45c1-881e-2a1fdfa946b3
Pedraz Marcos, A.
d6b7f3ad-d063-4c17-ac60-d84b19cfac0a
March 2026
Calzada García, M.
c386a98c-3f29-48e5-9f70-973f14efc8b0
Ayala, A.
84333dd6-41fe-4a4e-8f75-c4afda223347
Navarta Sánchez, M.V.
7f602943-ffc5-41d2-9b21-e4ce32be5d30
Palmar Santos, A.M.
d5537a69-6f90-40f6-9b65-5e4d112043fc
Portillo, M.C.
f913b5c5-b949-48f2-b1d0-eb7505484d5c
González García, B.
57e38a9d-47ff-428d-8eaf-569d56d541c5
Carabajal Pendón, E.
f83de67b-82f6-4ae3-a7ed-a3956eac77d9
López Manzanares, L.
abfa45e8-f3b3-45c1-881e-2a1fdfa946b3
Pedraz Marcos, A.
d6b7f3ad-d063-4c17-ac60-d84b19cfac0a
Calzada García, M., Ayala, A., Navarta Sánchez, M.V., Palmar Santos, A.M., Portillo, M.C., González García, B., Carabajal Pendón, E., López Manzanares, L. and Pedraz Marcos, A.
(2026)
Impacto de una intervención multisectorial comunitaria en la salud de las personas con enfermedad de Parkinson y sus familiares cuidadores.
Medicina de Familia. SEMERGEN, 52 (2), [102694].
(doi:10.1016/j.semerg.2026.102694).
Abstract
Objective To evaluate the impact of a community-based multisectoral intervention aimed at optimizing the use of local resources on the quality of life (QoL), perceived social support, and health status of individuals with Parkinson's disease (PD) and their family caregivers. Methods A randomized pre-post intervention study was conducted across six primary healthcare centers. The intervention comprised three monthly informational sessions over a three-month period, targeting both patients and caregivers, focused on raising awareness of available community resources and services. Outcome measures included QoL in individuals with PD (PDQ-39) and caregivers (PDQ-Carer), perceived social support (DUFSS), health status (EQ-5D-5L), and caregiver burden (BSFC-s). Results A total of 67 individuals with PD (mean age: 80.56 years in the intervention group [IG], 79.48 in the control group [CG]) and 56 family caregivers participated. The CG demonstrated statistically significant improvements in QoL in individuals with PD across the domains of emotional well-being (P =.011), cognitive functioning (P =.024), and communication (P =.041). Among caregivers, the CG also reported better scores in the self-care domain (P =.045). Attrition rates were 28.4% among individuals with PD and 25% among caregivers. Conclusions This feasibility study facilitated the identification of community resources relevant to the target population. Expanding the resource mapping to additional districts and disseminating the information through public repositories could enhance the clinical applicability of the intervention. These findings support the potential for scaling up to a larger randomized controlled trial with an extended intervention period.
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Accepted/In Press date: 16 November 2025
e-pub ahead of print date: 17 February 2026
Published date: March 2026
Alternative titles:
Impact of a community-based multisectoral intervention on the health of individuals with parkinson's disease and their family caregivers
Keywords:
Caregivers, Community health services, Health Status, Parkinson disease, Quality of life, Social support
Identifiers
Local EPrints ID: 511358
URI: http://eprints.soton.ac.uk/id/eprint/511358
ISSN: 1138-3593
PURE UUID: b14e7719-09ff-43a7-9b27-da71518014d3
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Date deposited: 12 May 2026 16:56
Last modified: 13 May 2026 01:48
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Contributors
Author:
M. Calzada García
Author:
A. Ayala
Author:
M.V. Navarta Sánchez
Author:
A.M. Palmar Santos
Author:
B. González García
Author:
E. Carabajal Pendón
Author:
L. López Manzanares
Author:
A. Pedraz Marcos
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