READ ME File For 'Negotiating dementia care within informal family care networks: lived experiences from Bayelsa State, Nigeria.'

Dataset DOI:  https://doi.org/10.5258/SOTON/PG/D145

Date that the file was created: May, 2026

ReadMe Author: Lilian Iluobe Odaro, University of Southampton,0000-0002-8575-288X

Date of data collection: January 2024 - February 2024

Information about geographic location of data collection:
 
Data was collected from one of the states in the south-south region, known as Bayelsa state. Bayelsa State is bordered on the north by Delta State, on the east by Rivers State, and on the west and south by the Atlantic Ocean. Bayelsa state is made up of eight local government areas (LGAs), namely Brass, Ekeremor, Kolokuma/Opokuma, Nembe, Ogbia, Sagbama, Southern-Ijaw and Yenagoa (which is the capital city of the state).


Licenses/restrictions placed on the data, or limitations of reuse:

All Rights Reserved. Available on request via https://library.soton.ac.uk/datarequest.


This dataset contains:

The dataset contains a zip file which includes 11 .docx files belonging to each family. A total of twenty-one informal carers, one paid carer, and one paid helper were interviewed from eleven families living with dementia. The families have been pseudo-anonymised with the letters A-K used to identify each family. Some parts of the data were translated from pidgin English to English, while a few parts still retained the original phrase in pidgin used by the participants to maintain cultural context. 
The majority of the .docx files include interviews of more than one participant per family. The beginning and end of each participant interview within each .docx file has been clearly labelled and underlined. For example, in the beginning of the Family A .docx file, the first interview is labelled as ‘Interview transcript of Family A participant 1.’


Description of methods used for collection/generation of data: 

Qualitative research methods, such as semi-structured interviews, were used to collect the data. The data were analysed using reflexive thematic analysis rooted in the hermeneutic phenomenological approach. 

Methods for processing the data: The recorded interviews were transcribed and pseudo-anonymised by me.

Publisher: University of Southampton, U.K.