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What really matters to patients living with chronic obstructive pulmonary disease? An exploratory study

Record type: Article

There is limited published research into what really matters to people living with chronic obstructive pulmonary disease (COPD). Most previous research in this area focuses on the impact of the symptoms of COPD, rather than on the issues defined as important by patients themselves. This paper describes an exploratory study investigating what is most important to people living with COPD. A qualitative approach employing in-depth interviews with COPD patients was chosen. Thematic analysis was used to code and categorize data. Six patients with ‘moderate’ to ‘very severe’ COPD were recruited. They considered engagement in specific activities to be very important (walking, household maintenance and driving), even though these activities were mainly centred around the home environment, or within confined spaces, due to their physical limitations. This restriction led to feelings of social isolation that these patients tried to overcome through social participation (holidays, social interaction). People with COPD often experience physical restrictions, which can lead to reduced community mobility and social isolation. In this study, despite their physical limitations, these patients had a strong desire to participate and be engaged in various activities. The importance of enabling patients to ‘participate’ rather than just ‘do’ should be considered when planning and delivering patientcentred interventions across the whole spectrum of severity of COPD.

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Citation

Williams, Veronika, Bruton, Anne, Ellis-Hill, Caroline and McPherson, Kath (2007) What really matters to patients living with chronic obstructive pulmonary disease? An exploratory study Chronic Respiratory Disease, 4, (2), pp. 77-85. (doi:10.1177/1479972307078482).

More information

Published date: 2007
Keywords: COPD, qualitative methodology, social participation, thematic analysis

Identifiers

Local EPrints ID: 54999
URI: http://eprints.soton.ac.uk/id/eprint/54999
ISSN: 1479-9723
PURE UUID: 1bf62a0f-3562-42c5-9c46-b2da49c2195a
ORCID for Anne Bruton: ORCID iD orcid.org/0000-0002-4550-2536

Catalogue record

Date deposited: 30 Jul 2008
Last modified: 17 Jul 2017 14:34

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Contributors

Author: Veronika Williams
Author: Anne Bruton ORCID iD
Author: Caroline Ellis-Hill
Author: Kath McPherson

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