The University of Southampton
University of Southampton Institutional Repository

A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries

Kersten, P., McLellan, D.L., Gross-Paju, K., Grigoriadis, N., Bencivenga, R., Beneton, C., Charlier, M., Ketelaer, P. and Thompson, A.J. (2000) A questionnaire assessment of unmet needs for rehabilitation services and resources for people with multiple sclerosis: results of a pilot survey in five European countries Clinical Rehabilitation, 14, (1), pp. 42-49. (doi:10.1191/026921500669834306).

Record type: Article

Abstract

Objective : To develop an international services and needs assessment instrument (SUN) for people with multiple sclerosis and their carers and to pilot this in different countries of the European Community.
Design : Interview study of people with multiple sclerosis, their carers and nominated key professionals examining the unmet needs of patients and carers.
Setting : Belgium, Estonia, Greece, Italy and the United Kingdom.
Main outcome measures : Needs assessment questionnaire.
Results : The study comprised 137 people with multiple sclerosis, 125 carers and 111 professionals. Patients reported on average 2.9 unmet needs for themselves; their carers and professionals reported on average 2.4. Needs were categorized into seven broad categories. Due to difficulties experienced by the local researchers in distinguishing between needs and objectives a large proportion of needs had to be assigned to the ‘other’ category.
Conclusions : The SUN is a valuable and practicable tool for the identification of unmet needs for people with multiple sclerosis and their carers. Formal validation and reliability testing of the different language versions is recommended.

Full text not available from this repository.

More information

Published date: 2000

Identifiers

Local EPrints ID: 55334
URI: http://eprints.soton.ac.uk/id/eprint/55334
ISSN: 0269-2155
PURE UUID: b3f0f747-9409-4d02-aca0-b0b9954cde22

Catalogue record

Date deposited: 05 Aug 2008
Last modified: 17 Jul 2017 14:33

Export record

Altmetrics

Contributors

Author: P. Kersten
Author: D.L. McLellan
Author: K. Gross-Paju
Author: N. Grigoriadis
Author: R. Bencivenga
Author: C. Beneton
Author: M. Charlier
Author: P. Ketelaer
Author: A.J. Thompson

University divisions

Download statistics

Downloads from ePrints over the past year. Other digital versions may also be available to download e.g. from the publisher's website.

View more statistics

Atom RSS 1.0 RSS 2.0

Contact ePrints Soton: eprints@soton.ac.uk

ePrints Soton supports OAI 2.0 with a base URL of http://eprints.soton.ac.uk/cgi/oai2

This repository has been built using EPrints software, developed at the University of Southampton, but available to everyone to use.

We use cookies to ensure that we give you the best experience on our website. If you continue without changing your settings, we will assume that you are happy to receive cookies on the University of Southampton website.

×