The Cancer Experiences Collaborative (CECo) UK for the development of research capacity in supportive and palliative care: Narratives of cancer and life-limiting illness

Brown, Janice, Bingley, Amanda and Addington-Hall, Julia (2007) The Cancer Experiences Collaborative (CECo) UK for the development of research capacity in supportive and palliative care: Narratives of cancer and life-limiting illness. National Cancer Research Institute (NCRI-2007), Birmingham, UK. 05 - 08 Oct 2007. B144 .

Abstract

Background The Cancer Experiences Collaborative (CECo) began in 2006 as a five year funded programme. It is a partnership between five UK universities to develop research capacity in supportive and palliative care. The narrative theme is independent and interdependent with two other themes: ‘older adults’ and ‘complex symptoms’. Narratives have much to teach us about living with life-limiting illness and experiences of care. Research designed to capture and explore narratives can inform changes to improve practice and policy.
Aims 1) To promote the study of narratives to increase understanding of patient and carer experiences in life-limiting illness; 2) To assess how narrative analysis can be used for service improvement and practice development; 3) To build research skills and capacity in the use of narrative research; 4) To engage with researchers, clinicians and service users to develop innovative narrative research protocols
Methods Three approaches are being taken to build research capacity: i) tri-annual protocol development events bringing together researchers, clinicians, and service users to build methodological skills, develop research protocols and seek funding ii) annual ‘State of the Science’ meetings focusing on developing new initiatives and knowledge in narrative research iii) construction of web-based research resources and communication network.
Outcomes A collaborative interdisciplinary research programme using a range of innovative narrative research methods which aim to build and sustain research excellence in palliative and supportive care.

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