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Confidentiality of personal health information used for research

Kalra, Dipak, Gertz, Renate, Singleton, Peter and Inskip, Hazel M. (2006) Confidentiality of personal health information used for research BMJ, 333, (7560), pp. 196-198. (doi:10.1136/bmj.333.7560.196).

Record type: Article

Abstract

Medical research has a long history in the United Kingdom and has generally enjoyed good public support. Researchers take confidentiality seriously and few breaches have been recorded. Concerns over research practices at Alder Hey hospital related to consent rather than confidentiality,1 but they tarnished the overall reputation of research. At much the same time, the Data Protection Act 1998 defined stricter criteria for handling personal data,2 supplementing the provisions in the UK common law of confidentiality. There is thus a legal and a moral impetus to ensure that research is conducted with the maximum respect for participants and their privacy, even if the research is not linked to clinical care. Many questions can be answered without the active participation of individuals, but researchers must strike a careful balance between their pursuit of health improvements for all and their obligation to maintain the privacy of individuals participating in research.

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Published date: July 2006

Identifiers

Local EPrints ID: 61269
URI: http://eprints.soton.ac.uk/id/eprint/61269
ISSN: 0959-8138
PURE UUID: 9b4cbd7b-6985-4a42-b0ac-27ff93c6c158
ORCID for Hazel M. Inskip: ORCID iD orcid.org/0000-0001-8897-1749

Catalogue record

Date deposited: 23 Mar 2009
Last modified: 17 Jul 2017 14:22

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Contributors

Author: Dipak Kalra
Author: Renate Gertz
Author: Peter Singleton
Author: Hazel M. Inskip ORCID iD

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