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The views of patients with advanced cancer regarding participation in serial interviewing.

The views of patients with advanced cancer regarding participation in serial interviewing.
The views of patients with advanced cancer regarding participation in serial interviewing.
Longitudinal research helps to clarify changing needs and the timing of treatments and referral but is hampered by poor recruitment and retention of participants. We explored, using semi-structured interviews in a cross-sectional design, the views and preferences of patients with advanced cancer on taking part in planned longitudinal questionnaire-based research studies. Patients with advanced lung and colorectal cancer were recruited from outpatient clinics in a London hospital. Semi-structured interviews were undertaken to explore their views about taking part in a specific future questionnaire study and their preferences regarding format. In all, 20 of 47 patients initially identified were recruited. Their preferences for the planned questionnaire study were for face-to-face interviews undertaken at home from late morning onwards with recontact at a mean of 6 weeks. Fluctuating symptom control needs could result in unexpected admission to or discharge from hospital. Developing flexible and responsive recruitment procedures is vital to retain patient participation as more than one contact might be required to successfully conclude an interview
advanced cancer, longitudinal quantitative research, oncology/cancer, patient, participating in research, questionnaires, recruitment, serial interviews
0269-2163
913-920
Shipman, C.
e4158446-ccdc-4729-a199-9758f34f92bd
Hotopf, M.
2cbaf083-846d-4471-aa5d-49b67a114173
Richardson, A.
3db30680-aa47-43a5-b54d-62d10ece17b7
Murray, S.
d24084d8-07e9-4428-9c03-49abcbb81f38
Koffman, J.
de34a526-a90c-4bb8-a625-f50555759b97
Harding, R.
c7e37246-e61c-4b0f-b654-e20c5608802b
Speck, P.
e5ac2871-5b71-4da1-b1ca-9011986342f0
Higginson, P.
7d01f468-a71a-4ca9-a2f8-4bc7e4771099
Shipman, C.
e4158446-ccdc-4729-a199-9758f34f92bd
Hotopf, M.
2cbaf083-846d-4471-aa5d-49b67a114173
Richardson, A.
3db30680-aa47-43a5-b54d-62d10ece17b7
Murray, S.
d24084d8-07e9-4428-9c03-49abcbb81f38
Koffman, J.
de34a526-a90c-4bb8-a625-f50555759b97
Harding, R.
c7e37246-e61c-4b0f-b654-e20c5608802b
Speck, P.
e5ac2871-5b71-4da1-b1ca-9011986342f0
Higginson, P.
7d01f468-a71a-4ca9-a2f8-4bc7e4771099

Shipman, C., Hotopf, M., Richardson, A., Murray, S., Koffman, J., Harding, R., Speck, P. and Higginson, P. (2008) The views of patients with advanced cancer regarding participation in serial interviewing. Palliative Medicine, 22 (8), 913-920. (doi:10.1177/0269216308098087).

Record type: Article

Abstract

Longitudinal research helps to clarify changing needs and the timing of treatments and referral but is hampered by poor recruitment and retention of participants. We explored, using semi-structured interviews in a cross-sectional design, the views and preferences of patients with advanced cancer on taking part in planned longitudinal questionnaire-based research studies. Patients with advanced lung and colorectal cancer were recruited from outpatient clinics in a London hospital. Semi-structured interviews were undertaken to explore their views about taking part in a specific future questionnaire study and their preferences regarding format. In all, 20 of 47 patients initially identified were recruited. Their preferences for the planned questionnaire study were for face-to-face interviews undertaken at home from late morning onwards with recontact at a mean of 6 weeks. Fluctuating symptom control needs could result in unexpected admission to or discharge from hospital. Developing flexible and responsive recruitment procedures is vital to retain patient participation as more than one contact might be required to successfully conclude an interview

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More information

Published date: 1 December 2008
Keywords: advanced cancer, longitudinal quantitative research, oncology/cancer, patient, participating in research, questionnaires, recruitment, serial interviews

Identifiers

Local EPrints ID: 69379
URI: https://eprints.soton.ac.uk/id/eprint/69379
ISSN: 0269-2163
PURE UUID: 328afc56-1df9-4628-98f9-340e7e1f2c10
ORCID for A. Richardson: ORCID iD orcid.org/0000-0003-3127-5755

Catalogue record

Date deposited: 10 Nov 2009
Last modified: 05 Nov 2019 01:43

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Contributors

Author: C. Shipman
Author: M. Hotopf
Author: A. Richardson ORCID iD
Author: S. Murray
Author: J. Koffman
Author: R. Harding
Author: P. Speck
Author: P. Higginson

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